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Do your seizure symptoms match these?

fter having many severe episodes that I will describe below, an EEG showed seizure tendencies. I have now been using Keppra for about 3 months but am now having more episodes. The problem is, the neurologists (2 that I have seen) say that they have not seen seizures that manifest in the way that mine do (if these are indeed seizures).

I get severe vertigo and vomiting for two hours or more, along with a great deal of sweating and a feeling that I will lose control of my bowels. I cannot move during these episodes; the vertigo is like extreme spinning. It comes on in seconds without warning sometimes, even waking me from a deep sleep. Other times I have felt like I could tell it was coming on for a few days.

Does anyone have anything similar? these are very violent and frightening episodes.

Comments

Hi, Thank you for posting. It

Hi, Thank you for posting. It’s important that you're following-up with your healthcare team to explore this further and if you continue to experience any changes in symptoms, side effects,  moods or behaviors. If you have not already, you may want to consider getting a second opinion or seeing epileptologist (epilepsy specialist). https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/se... For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Seizures and auras can take on many different forms and affect different people in different ways. Some commonly reported symptoms before, during and after a seizure include, nausea or other stomach feelings (often a rising feeling from the stomach to the throat), sweating, lose of bowel control, and feeling lightheaded or dizzy. To learn more about seizures and auras, please visit: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during... a journal or a diary to document how you’re feeling in detail, (like you've done in your post) and providing a thorough medical and family history (impossible), will be very helpful to review with your healthcare team. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... a great tool for identifying & tracking these episodes you’ve experienced, triggers, recording medical history, setting reminders, managing medications & side effects, moods, behaviors, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

I have posted several

I have posted several responses related to your symptoms.  What caught my attention was when you stated about the 2 neurologists that you had seen and, thus you stated.....".....they have not seen seizures that manifest in the way that mine do (if these are indeed seizures) . "If you can (and if you must then utilize the assistance of the volunteers behind this epilepsy forum, I would believe that they would be willing/capable of doing so to then see what I have posted), please read what I have posted about my own discoveries of what triggers my epilepsy events across multi-chats that I have responded to.Irma 

Thank you very much.  How do

Thank you very much.  How do I go about finding your posts?

Please understand that

Please understand that seizures take on many different forms and as one epilepsy specialist said to me when he was first suggesting that my seizures were not even seizures, he acknowledged that anything that the brain can do normally, it can also do abnormally. He then admitted me for an extended video EEG monitoring, even though I had already undergone one before that had captured seizures, and he was able to capture more and better understand my epilepsy. Sometimes, there are also events that mimic seizures though too and that’s why it is important to undergo these extended video EEG monitoring to capture the events while they are happening especially when you have the kind of response to the medication that you are having now. These are typically available through epilepsy centers. Connect Help has already provided a link to get you connected with an epilepsy specialist, which are usually available through epilepsy centers. My advice is to get at least a 7 day video EEG monitoring so that they can try to capture as many events as possible. It’s what helped my doctor because I have so many different types, but the fact of the matter is that I may still have to undergo another if my treatment doesn’t work. It’s still worth it because it will help them figure out what is going on. 

Louise, thank you for being

Louise, thank you for being who you are.  As an epileptic or relative/friend of an epileptic, I wanted to know how to best answer your question regarding my posts, thus I went to epilepsy.com's  home page and scrolled down to their "24/7 Helpline" link that listed 1-800-332-1000  as a means to answer the very question you had.Long story short, I tried....and I failed to provide you a simple solution, thus (as I was told via the 1-800 customer service employee that I spoke to) you will have to read each and every frustrating/call for help from fellow epileptics just to see a glimmer of hope from what I have posted and/or from others who felt bonded in your/our/their frustration of having to live/deal with this very complex medical condition.Irma

Thank you again, Irma.  One

Thank you again, Irma.  One neurologist that I saw referred me to a neuro-otologist, because she believes that I need to be evaluated for Meniere's Disease.  It was a 4 month wait to see this specialist, but the date is finally tomorrow.  Perhaps this will shed some light.  It is entirely possible that these attacks are vertigo attacks from Meniere's, and that during them I am having seizure as well.  If allowed, I am going on vacation a few days after that appointment but will check back at this forum when I return.  The support here is uplifting.

I agree with what Gianna has

I agree with what Gianna has said about there being lots of different types and potentially seeing a specialist epilepsy doctor for extended eeg video monitoring. I had to have this to get proper suitable treatment. At the time I was living in Nofolk (uk) but had to see doctors in london cambridge and Birmingham to get a specific epilepsy diagnosis and specialist advice for treatment. I also had 7 day 24 hour telemetry which was on reduced sleep and reduced meds to try and trigger seizures so that consultants could see physically what was happening on video and what the telemetry showed in my brain. Maybe asking about seeing a specialist would help?

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