Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Do Seizure Types Change

Tue, 03/03/2020 - 14:34
I have had tonic-clonic grand mal seizures for roughly the last 4-5 years. They appear to be brought on by stress. When my life is the most hectic, that's when they strike. Yesterday, after a busy weekend, receiving a Dr. bill for higher than anticipated, and getting a notice that my homeowner insurance was going up, another one hit. I always have an aura before the full seizure and I have a dropper bottle of an herbal supplement given to be by a great naturopath that will stop a seizure at the aura phase if I can get it into my system before it advances on to full on tonic-clonic. I felt the aura and took some of the dropper, but it was toward the end of the bottle so I didn't get a full dose in the dropper before it all went south. I have never had any seizure other than the full on grand mal seizing on the floor while my face turns blue. Yesterday, something different happened. I was walking around, talking to others - but not making much sense. I spoke in real words and sentences, but my words and sentences did not fit into context of the rest of the conversation so my coworkers knew something was off. One coworker very familiar with my situation promptly took me and made me take more dropper medicine - apparently I didn't want to? Anyway, I don't remember anything from the time I felt it coming and took a small dose to the time my coworker got me to take more. My memories start back shortly after taking more dropper medicine. Does that sound like a different type of seizure? Or maybe it just didn't fully develop into the usual grand mal seizure because I had a small amount of dropper meds in my body? It's just different and a new thing to be careful of. Sometimes right after a grand mal seizure my flight response kicks in and I just bolt for the nearest door no matter where I am, but this could be more dangerous if I walk and talk, and appear normal - just don't speak in context of any conversation around me but have no memory of it whatsoever.

Comments

I've found it helpful to stop

Submitted by birdman on Wed, 2020-03-04 - 09:41
I've found it helpful to stop thinking of the "aura" as a warning before the seizure.  The aura you experience is a seizure that is happening in just a small part of the brain.  The grand mal is the seizure once it has "generalized" or spread to a greater portion of the brain.  With that understanding you can then see how seizure can easily change in nature just by taking a slightly different path.Your seizures sound very much like the "complex partial" or "focal seizures" with impaired awareness that I experience.  These happen in the dominant temporal lobe.  I used to have the generalized seizures almost monthly, but over the years they have become focal seizure.  They do change maybe because of age and hormonal changes, or maybe long term treatment with the herbal supplement has changed the course of your seizures.Mike

Hi, Thank you for posting and

Submitted by Anonymous on Wed, 2020-03-04 - 09:53
Hi, Thank you for posting and for sharing your story. Seizures can take on many different forms and affect different people in different ways. For some symptoms during a seizure usually are stereotypic (occur the same way or similar each time), or episodic (come and go), and may be unpredictable. It’s important that you’re able to recognize that the episode you experienced yesterday differed from the seizures you describe experiencing previously and that your co-workers are familiar with and know how to respond if you were to have a seizure. It’s important that you're following up with your healthcare team to explore this further and if you continue to experience any potential changes in seizure types/frequency, side effects, symptoms, moods or behaviors to help determine what individual treatment plan is best for you. While we cannot say for sure why stress can trigger seizures, we do understand it is the most commonly reported trigger of seizure activity. https://www.epilepsy.com/learn/triggers-seizures/stress-and-epilepsy .Part of reducing stress is being able to identify your stressors & taking action to reduce them. Tracking seizures, triggers, moods,and behaviors over time may help you to recognize patterns, then modify your behavior or lifestyle appropriately. A journal or a diary can be a helpful tool. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,can be used to organize your medical history, manage medications, side effects, side effects, personal experiencesthat may affect seizures and wellness, develop seizure response plans and more, which can be shared with your healthcare team. For more information and resources on the importance of stress management, visit: https://www.epilepsy.com/living-epilepsy/healthy-living/stress-and-wellness .Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community.

I am different at different

Submitted by Plan-To-Succeed on Tue, 2020-03-17 - 18:15
I am different at different times and depending what time of the year but you to might of never thought of the hole thing of thinking of it may be affecting you but most of all family and friends never leaving us alone with asking how are you felling over and over again and then we are like O my gosh that is it if it was a day of watching all most loved movies and listening to loved music not a small amount of them fellings and naps we deal with and this is how I found it to be.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.