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Complex partial seizures

Mon, 05/13/2019 - 13:04
Hello! First timer on this chat room. I am 43 and had been seizure free for 8 years until 5 days ago. I began having complex partial seizures at 33 and have only had that kind. MRI, CT and EEG show no reason for the seizures. Feeling defeated cuz just had another one. Anyone here only have complex partial seizures.

Comments

Hi walcal, Thank you for

Submitted by Anonymous on Mon, 2019-05-13 - 14:39
Hi walcal, Thank you for sharing your experience. t’s important that you reach out to your doctor to discuss your most recent seizure activity. You may want to consider with your health care provider having a device that can help track your seizures, by visiting https://www.dannydid.org/ , so you can share this information with your health care team. Additionally keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary , as another self-management tool that may be helpful in tracking seizures, other symptoms, managing medication and other therapies, recognizing triggers and health events that may affect seizures and wellness, and communicating with your care providers.For more information about complex partial seizures and managing your epilepsy please visit https://www.epilepsy.com/learn/types-seizures/focal-onset-impaired-awareness-seizures-aka-complex-partial-seizures &  https://www.epilepsy.com/learn/managing-your-epilepsyIt can be discouraging to have a seizure after not having any for so many years and it may be helpful to connect with other people who live with epilepsy to ask questions, share experiences, and find and give support to each other. Find your local Epilepsy Foundation at epilepsy.com/localsupport , then contact them to find support groups, events, and programs in your community,  www.epilepsy.com/affiliates You may also contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org  , epilepsy.com/helpline  , where a trained information specialist can connect you to resources,  provide referrals and additional support.

Hey, I have many different

Submitted by Psychogenic epileptic.. or dave on Tue, 2019-05-21 - 23:21
Hey, I have many different kinds of seizures mainly tonic clonic,  but i do have complex and simple partials as well. It is a blow having significant seizures after being free for so long. All I truly can offer is advice. consistent behavior and environment are almost as important as medication. Sleep consistent and potentially longer than the norm. I try to get at least 9hrs. Avoid alcohol... Particularly for me I find that long periods without alcohol can help a lot. . And be careful of drinking on the once off.. even 2 drinks spontaneously every few months will usually result in seizures the next day or within 7 days. Funnily regular consistent drinking results in less aggressive seizures,  but you will still seize at some stage.All the best... and try your best to be consistent when you find a lifestyle that helps... even if it socks being less spontaneous. 

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