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Atonic seizure with gene SLC6A1 - 4 yo

Hi, my son diagnosed with atoniz seizure haven't put to any medication yet.He suffer drop attack whenever he is having fever or tiredness. It can happen very frequent like more than 30 times in 4 hours. Is there any older child who have the same seizure? How is the development of the child and how can it affect the child? Does it get worse as in duration, frequency and severity?

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Hi, Thank you for posting, it

Hi, Thank you for posting, it sounds like you all have been through a lot. It’s important that you all continue follow-up with your son’s healthcare team to express your concerns and if he continues experiences any changes in seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for him. If you have not already, you may want to consider having him see an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialistSeizures can take on many different forms and affect different people in different ways. Learn more about seizures and atonic seizures, here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during... Review our section on recognizing risks and precautions to take to help keep your son safe, with his healthcare provider, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe...  It’s common for those who are in caregiver role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers  It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting:  https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-...  Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline 

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