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Apple Watch app recommendations for detecting seizures
Tue, 09/10/2019 - 15:27Topic: Share Your Story
I (19 f) have recently started to have seizures, I had my first seizure in June (which happened whilst I was swimming in the ocean may I add I’m lucky I didn’t drown lol) and I had my second seizure about a week ago. I’m getting ready to go to uni this week and now I’m scared I will have a seizure while I’m out and about and no one will be alerted, so I’m looking for a way to alert my parents whenever I have a seizure because I experience memory loss after my seizures and most of the time I don’t even know I’ve had a seizure until someone tells me. I also have to wait until November to see a neurologist so I still don’t actually know what’s causing these seizures, however my family does have a history of epilepsy, so there’s a good chance it could be that.
Comments
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Submitted by Tonnystark on Wed, 2019-09-11 - 16:42
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Hi Tonnystark, Thanks so much
Submitted by Anonymous on Wed, 2019-09-11 - 08:59
Hi Tonnystark, Thanks so much for posting, we understand this must have been very scary to experience.It’s important that you continue to follow-up to discuss your concerns and any changes in seizure frequency, side effects, seizure types, changes in behaviors and symptoms with your healthcare team. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf For information regarding second opinions, or assistance finding a specialist near you, please visit : https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.ibe-epilepsy.org/https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures & find self-management tools. Learn more, by visiting: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy Epilepsy affects each person differently. As you plan for college, develop a personalized plan for managing your seizures and your learning needs. Planning ahead can help to lessen your risks, improve safety, and increase the chance of a successful college experience, both in and out of the classroom. For strategies, tips and resources for transitioning to college, visit: https://www.epilepsy.com/article/2018/8/epilepsy-strategies-transitioning-college Review our seizure alert device fact-sheet with your doctor and family, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfhttps://www.dannydid.org/ Create a seizure response or action plan, which is a helpful tool for those close to you understand what do if you have a seizure: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms Tracking your seizures, recording your medical history, set reminders of when to take your medicines, when to refill a prescription, or when you have medical appointments or tests, record side effects, moods, or other personal experiences, by using a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryLearn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe It is common for those living with epilepsy to report having difficulties with thinking, memory & attention. Learn more about challenges with Epilepsy here:https://www.epilepsy.com/learn/challenges-epilepsy/thinking-and-memory One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline