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Anxious

Sat, 11/03/2018 - 01:23
Hi, my name is Tori. I was diagnosed with primary generalized epilepsy when I was eight; I am now 22. I have two beautiful children now. I had multiple seizures while pregnant with my first child. He is fine now, he’s 5. No problems, thank goodness. I used to not have auras when I was younger but as I got older I have them. Since I’ve been on Keppra October of 2013, I haven’t had a seizure since. I was already on Lamictal but that wasn’t controlling them. Lamotrigine has truest been my life saver. The past year though, I have developed anxiety. I am assuming it is due to my seizures because I am always so scared I’m going to have one. Waking up from having the seizure isn’t the scary part for me. It’s the aura. It is so damn frightening. It’s hard. So, what I am assuming is anxiety, feels EXACTLY like when I have an aura. My fight or flight kicks in, I can’t swallow, fast heart rate, depersonalization, dry mouth. Now, I have never had a seizure while on my medication. But for some reason I am starting to develop these, and during the attack I’m actually scared the whole time it’s a seizure. I don’t know if anyone else has this happening to them as well or similar? It’s so scary that I don’t even want to leave the house anymore. If so please please comment and explain.. just feeling alone in all of this. This is my first time posting in a group.

Comments

I actually just posted about

Submitted by marcyinkandstylist on Wed, 2018-11-07 - 15:43
I actually just posted about my feelings right after coming out of a seizure, I have 4 kids, and I had a ton of seizures with my second child.  I also take lamitrogine, and it has worked the best thus far! My seizures have always been nocturnal, they started when I was 12yrs old, and I am 37 now, always while I'm sleeping, stress always brings them, you should find a way to reduce stress, even an anti anxiety medicine, I take klonopin on top of my lamictal, and it really helps, just a small dosage makes a huge difference, klonopin is also an anti-convulsant.  whenever I've gone to the hospital with multiple seizures in a row they give me IV benzodiazepines. You are definitely not alone, I know exactly how you feel.

Hi Tori! I actually was

Submitted by Broyston on Fri, 2018-11-09 - 23:44
Hi Tori! I actually was diagnosed with generalized epilepsy when I was 8 and I am 23 now. Small world. I struggled as a kid and was terrified growing up because I had no idea what was going on. I didn't have my first GTC until the summer before high school. I had the VNS and that helped and I'm taking Vimpat, Topomax and Onfi. That's the magic 3 for me. I've been seizure free 3 years. But I'm terrified about that "What if..." About "Could this be the day?"I think the thing that scares me most is having kids. 2 of my meds can affect it. I'm so scared about getting pregnant for that reason.

Hey Tori, I feel like there

Submitted by Believer_59cd4d81a99cf on Wed, 2018-11-14 - 21:52
Hey Tori, I feel like there has to be a LOT of us out there who can relate. When I'm experiencing symptoms that are similar to the start of my seizures, I become a total wreck as well. It's definitely making it harder to work, and be in public or crowded places. BUT. If you've for certain ruled out that these events are seizures, and know for a fact that it's anxiety, maybe try getting help. You're definitely not alone in this, and maybe someone out there can help you figure out what to do or think when it's happening. I figure most people with epilepsy have some amount of anxiety. For me, it's mostly manageable if I know what to think and what to tell myself. But it's SCARY. And I'm way too familiar with the way you're feeling. And I hate having to make myself "brave" to go do everyday things. But if it's stopping you from leaving your house, it's not just scary, it's also not letting you live the life you want. And you can live that life. You thankfully have control of your seizures, you can definitely take steps to get control over anxiety as well, or at least learn how to live well with it.Stay hopeful, you're definitely not alone!B 

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