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We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: Dyjon | 10/2019 | 1 Comment

I am 28 this year. I have epilepsy since I am 23 years old. At the point of time, I am taking my Bachelor's degree. Before have epilepsy, I was able to drive since I am 19, attended and clear...

Created By: delphinium | 10/2019 | 1 Comment

I am moving. I don't know people around me. Paranoid Mom wants me to have alert for falls. They are ugly. I like pretty jewelry. Advice? Brand? Anything?

Created By: delphinium | 10/2019 | 0 Comments

I had a problem with my medic alert chain breaking. It got expensive and the things were ugly. I solved the problem with a tattoo and it has helped me so much. I never thought I would get a tattoo...

Created By: Iya | 10/2019 | 3 Comments

Hi! I am not sure what I have experienced. This happened three times this summer when I was waking up.

It felt like my brain got jammed in between awake and asleep state. It felt like I...

Created By: Struck90 | 10/2019 | 1 Comment

I have noticed the time between when I have episodes getting shorter. My first one was in 2011 and it was followed by a second one and hour after the first. I then went six years off meds and had...

Created By: LizLovesCheerios | 10/2019 | 1 Comment

Hi everyone, I'm Liz. I'm 14 years old and was diagnosed with generalized epilepsy when I was 3. I had about 1 seizure a year, and they were always febrile grand mal. However, when I was...

Created By: Dizzyagain | 09/2019 | 1 Comment

In all of my life (58yrs) I would never think this would happen to me...but it did over the weekend. I have been taking two different anti seizure medications for migraine headaches and my back...

Created By: Kmcdo | 09/2019 | 3 Comments

I recently had two seizures over the past several weeks, at the age of 31 with no previous ones that I am aware of. The first time I had to have stitches due to it causing a head injury, but the...

Created By: lkrause74 | 09/2019 | 1 Comment

My daughter just turned 21 and was diagnosed with petite mal (absence seizures) when she was about 2 years old. Shes been on Depakote sprinkles since about her diagnosis at 2. Shes been with a...

Created By: DAKEWLJAY | 09/2019 | 1 Comment

I had a dream that I was having a seizure a week or two ago, after I have awaken from the dream I had the shakes and I was sweating a lot. As if I actually had a seizure, I asked a friend of mine...

Created By: ivynguyen1980@yahoo.com | 09/2019 | 2 Comments

My son is almost 7 yrs old and he has one episode about 3yrs old then not happening again in April 2019 and then all the sudden on 9/18 he has 3 episodes in one day..... took him to ER they put...

Created By: Billc | 09/2019 | 1 Comment

I have been put on Vimpat. I have had two partial seizures. Is there a good chance I have epilepsy? I haven't seen the neurologist yet. I have a couple of weeks. I don't think there are...

Created By: meghaz98 | 09/2019 | 2 Comments

I am 21 years old, got diagnosed about 18 months ago. I suffer from tonic-clonic seizures and my trigger seems to be alcohol withdrawal. So the day after a heavy night drinking I will suffer from...

Created By: Tonnystark | 09/2019 | 2 Comments

I (19 f) have recently started to have seizures, I had my first seizure in June (which happened whilst I was swimming in the ocean may I add I’m lucky I didn’t drown lol) and I had my second...

Created By: Hammeroids4ever | 09/2019 | 2 Comments

Has anyone ever tried to make friends and were not successful? I have had epilepsy since ‘80 and absolutely no one ever tried being a good friend. I tried churches and was shut out after a seizure...

Created By: raenan1 | 08/2019 | 0 Comments

anyone tell me best meds with least side effects in children with noctural frontal lobe seizures?

Created By: raenan1 | 08/2019 | 1 Comment

my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with slurred speech and no control of limbs for a few...

Created By: Jeremycarew | 08/2019 | 5 Comments

Hello,
My name is jeremy, I was diagnosed with epilepsy back in 2016, I was also diagnosed with psychogenic ones as well, and now it looks like I have some new ones, i am getting some tests...

Created By: marwa_5d650e75d04ff | 08/2019 | 1 Comment

hello, I'm 20 years old and a sophomore in college I thought today I will hear good news but the doctor offered me another medication to treat the absence seizures so I'm on three now:...

Created By: Aishwarya Rao | 08/2019 | 3 Comments

To whomsoever concerned,
This is a story, the story I’d like to share with you, the story of me.
At times I wonder if I might get Alzheimer’s in the long run, so this letter is for me...

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