Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: User1020 | 04/2018 | 1 Comment

I have found my self leaving hear and going to other sites helping and talking to those that think that they need to take their own life because of the seizures making them losing their liquid or...

Created By: likaasain | 04/2018 | 0 Comments

I recently missed my period for a week and i was like "Why is my period late?" I wasn't expecting a pregnancy to it really freaked me out. But then i found this page where i got...

Created By: likaasain | 04/2018 | 0 Comments

If you are facing challenges in maintaining post pregnancy health, here is a website where you can find useful articles on pregnancy. Most websites share knowledge on pregnancy stages and female...

Created By: Fahad Tehsin | 04/2018 | 0 Comments

Hi everyone.
My name is Fahad Tehsin and i am 23 yr old male. I was diagnosed Epileptic last year,2nd April 2017. I was having a fine life. I was entering into last year of my Engineering...

Created By: Senarson | 04/2018 | 0 Comments

I'm new here and thought I could find some kind of comfort in others in my shoes. My daughter had her 1st tonic clonic seizure on Christmas morning in 2017, 5 days before turning 14. Had an...

Created By: MandyPandy | 04/2018 | 0 Comments

Hi I'm 32 and had been free from meds for ten years before Bam! Found myself on the hallway floor. 7 weeks ago. Doctors determined it was a seizure. I have bad memory from the before seizures...

Created By: Golden mind | 04/2018 | 1 Comment

In late 2014, while eating lunch one day at work, I experienced my first complex partial seizure. I had my second a week later. Then, they started coming like crazy. At first, I was misdiagnosed....

Created By: Destiny1972 | 04/2018 | 1 Comment

Hi
I recently had a provoked fit when I tried a tens machine. I've never had a fit before and am not diagnosed with any heart problems. The whole experience was scary and unexpected. I...

Created By: Jess McBride | 04/2018 | 1 Comment

My 16 month old daughter has has seizures since she was 4 months old all her tests are normal but she keeps having seizures. She was having 8 a day until the Dr started her on keppra. They have...

Created By: emiannie | 04/2018 | 4 Comments

I've had epilepsy since December 2015. My first seizure was one where I lost consciousness...at the gym with a friend...lost bladder control. It was humiliating. It looked like I just...

Created By: Janessa528 | 04/2018 | 2 Comments

Hi my name is Brittany and I’m new to here. My 8 year old son has been diagnosed with epilepsy and experienced another seizure last night. I want to learn as much as I can about epilepsy so I can...

Created By: Benn Beckman | 04/2018 | 2 Comments

Hello everybody,

I would like to share one experience that I haven't had before just in case somebody would have experienced something similar in order to talk about it... I am...

Created By: nicksawyer | 04/2018 | 0 Comments

Hello. I have had complex partial seizures for 4 years now and for the past year or so I have been experiencing spasms after I've had a seizure. They always occur in my legs and testicular...

Created By: Mdanahy223 | 03/2018 | 1 Comment

My first seizure was on a very hot day in 2010 and I had no prior issues. They just said it was due to the heat and the caffeine I had. Then a couple of months later i had another one and was put...

Created By: FrankyHolan | 03/2018 | 0 Comments

Long story short, I had the worst SEIZURE in my life at school last week.

I was in the classroom sitting with my classmates as I start to feel the aura coming up (seizure) and I black out...

Created By: Juliebear04 | 03/2018 | 3 Comments

My daughter had a first time seizure 1/8/18 was taken to the hospital , had blood work and a ct scan done with everything coming back normal , so we went back to normal life then on 3/15/18 5 days...

Created By: Moonangel4evr | 03/2018 | 1 Comment

Ok, I'm new here. I'm pretty scared right now with something I'm experiencing and am looking for feedback. I'm 40. I've had seizures since I was 16 due to head trauma. I...

Created By: Clovergirl1025 | 03/2018 | 0 Comments

www.jordynschiarijourney.wordpress.com

I have lived with absence and focal seizures since I can remember, but was officially diagnosed when I was in 3rd grade. 2 years ago I had my first...

Created By: Fobby365 | 03/2018 | 1 Comment

New to the site and decided to introduce myself. My name is James and my first seizure was due to severe head trauma during high school. After that event occurred I would have episodes where I...

Created By: n2006cos | 03/2018 | 0 Comments

I am 25 now but I had my first seizure when I was 20 years old. At the hospital the CT scan revealed a tumor in my brain which I had removed a few months later. The tumor was classified as a...

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