Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: gmerashell | 08/2018 | 0 Comments

I had my first seizure when I was 13 in the school library. I lost all consciousness and was taken to the emergency room. Since elementary school amd so on though when I was around computers my...

Created By: viktor92 | 08/2018 | 0 Comments

Hello everyone,

About 7 years ago I had 3 epileptic shocks, after EEG test, magnetic resonance, doctors said that the brain function is normal. The shock started with a feeling in my right...

Created By: viktor92 | 08/2018 | 2 Comments

Hello everyone,

About 7 years ago I had 3 epileptic shocks, after EEG test, magnetic resonance, doctors said that the brain function is normal. The shock started with a feeling in my right...

Created By: Natasharodrig | 08/2018 | 1 Comment

Hi guys
So I’ve had two seizures the first one was in a car driving with my friends normal day at uni
I remember that morning I had a head ache and it happened while I was in the...

Created By: klovephx | 08/2018 | 1 Comment

My best friend has seizures on a regular basis and she is on so many medications. I have been trying to help her and I finally found the ONE THING and the only thing that has been all the...

Created By: G3 | 08/2018 | 1 Comment

Through personal experience I’ve learned that overcoming one's temporal lobe epilepsy is indeed possible. What's the secret? Creating the proper mindset to accomplish your fitness/...

Created By: sln935 | 07/2018 | 0 Comments

I'm looking to get my first tattoo and have been seizure free for six years. Has anyone have advice for getting a tattoo for the first time having epilepsy? I'm a little nervous and don...

Created By: MariaMachado | 07/2018 | 2 Comments

Hello, i’m from Portugal and i have a baby with 12 months.
When she was 5 months old she had her first seizure .. the rmi did not detect anything and for 3/4 months she was ok with...

Created By: michellem167 | 07/2018 | 1 Comment

I've been on Keppra 2000 mg for 7 years and was also on Depakote 1500mg for 5 of those years. Over time I became more apathetic and angry. I thought about having kids so i decided to get off...

Created By: burwell1999 | 07/2018 | 2 Comments

I am putting up this chat because I am needing people's thoughts on the following situation: I am a 37 year old male with epileptic seizures. At the current time, I would like go to school...

Created By: ackmke | 07/2018 | 3 Comments

I have right temporal lobe epilepsy (TLE).. Last night I had a focal aware seizure. Today I feel very strange... I feel a bit unfocused, out of it, and tired. Which I think is normal... What'...

Created By: aceace | 07/2018 | 0 Comments

Employer is harassing me and I am filing with the state and federal government. I am still working there. Any advice? I can't find any information on how the claim process goes, what to...

Created By: aq1997 | 07/2018 | 4 Comments

hi! i thought i'd check this website out because i'm curious to see if anyone's ever had a similar experience. i had a grand mal seizure 3 years ago in my sleep. got taken to the...

Created By: ruebmeg10 | 07/2018 | 0 Comments

I’m new to this forum but I wanted to really share my story to see if anyone else is going through what I’ve been through! A couple years ago I fell down a flight of concrete stairs striking my...

Created By: CAJ84 | 07/2018 | 1 Comment

For a few years I've been having odd symptoms...mainly while trying to fall asleep. I get random left side numbness that comes and goes. As I'm falling asleep I get this feeling that my...

Created By: Hinesenberg79 | 07/2018 | 2 Comments

I had a Wada test back in 2004. When they put the left hemisphere to sleep, they said I wouldn't be able to speak. The strange thing was is that I still could and they did say why I could,...

Created By: kendavistoo | 07/2018 | 0 Comments

About 15 years ago my wife suddenly started having seizures. She was placed on Keppra, but continued having Grand Mal and Mini Mal seizures. Her worst day was with nine seizures. She is 70...

Created By: esaletta | 07/2018 | 1 Comment

Hi! My name is Emma and I was diagnosed with epilepsy when I was fourteen years old. When I had my first seizure, I was in the middle of working out with my trainer and my stepmom. I just stopped...

Created By: KristinawithaK | 07/2018 | 1 Comment

My name is Kristiana and I have spent much of my three decades on Earth trying to keep my feet planted firmly in the ground.

I was first diagnosed with "petit mal absence epilepsy...

Created By: camryn_dufrene | 07/2018 | 3 Comments

I feel bad for ranting here but I don't know where else to do it and feel safe about it. I have been dealing with epilepsy since I was 11 it started with absent seizures, then my 8th grade...

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