Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: mnop21 | 04/2020 | 1 Comment

Hi everyone! I'm Marissa, and I'm a 20 year old college student who has been dealing with muscle jerks for the last 7 months. They started in September before I'd go to sleep. A...

Created By: roslyn1203 | 03/2020 | 4 Comments

Help, im so worried, my 12 year daughter just been diagnose with Petit Mal and she was put on depakote for 22 days so she just tell me she heard a whistle in her head and sometimes heard funny...

Created By: sabilli | 03/2020 | 2 Comments

I was wondering if anybody else has been struggling with the same thing as I so I decided to post this on a forum. I have had periodic seizures since I was 16 (every 6 months) and was put on anti-...

Created By: musicogenic-epilepsy | 03/2020 | 4 Comments

Hello,
i'm 22 years old girl and I'm coming from Slovenia. Last year I was diagnosed with musicogenic epilepsy. I have problems with music 10 years (I have seizure when I hear the...

Created By: Jada22 | 03/2020 | 14 Comments

I can't sleep! I keep getting flashbacks of what happened yesterday when my husband had a seizure while driving.
He was diagnosed with epilepsy, grand mal, at the age of 15 years, but...

Created By: Plan-To-Succeed | 03/2020 | 0 Comments

Most human's are forgetting this until the time of threat of life of any type and most of our living with epilepsy is not a complete threat of our lives and part of living so value living and...

Created By: jun1365_5e6fd877895b1 | 03/2020 | 3 Comments

Hello, my name is Don, and my 27 year old son has had absence seizures since the 3rd grade. He currently takes Lamictal and Fycompa. His main issues occur as soon as he wakes up, he will stay in a...

Created By: yaegea51 | 03/2020 | 6 Comments

I have Nocturnal Seizures and was seizure free 7 years. A month ago I had my first day time seizure. With all the anxiety and lack of sleep I was to the point I was having anxiety attacks that...

Created By: certwelder56 | 03/2020 | 2 Comments

Hi All, I just had my third breakthrough seizure at work. Godbless em they haven’t canned me yet. I’m still looking for the best anti-seizure med combination. Let me know what you might have. Have...

Created By: irangel | 03/2020 | 2 Comments

As an epileptic, we all know what would trigger my seizures may or may not apply to you, so keep this in mind as you read on. I would also like to say that, though I'm an epileptic, I'm...

Created By: Duaneh68 | 03/2020 | 4 Comments

Hi there im new to here and was wondering if maybe anyone elts has a similar issue . When I was 47 one dsy I walked into the bathroom and without memory i was back in my then gf's bedroom...

Created By: Schmitzj | 03/2020 | 1 Comment

Your friends in Canada put together this survey to help Epilepsy Toronto a non profit, raise awareness. We would love if you took 5 minutes to provide your answers.

https://forms.gle/...

Created By: sbauer420 | 03/2020 | 4 Comments

Hi all...I was diagnosed with epilepsy this past October after my second tonic/clonic seizure episode. Both seizures occured at work. How embarrassing! So, I lost my last job do to attendance...

Created By: jtaylo07 | 03/2020 | 4 Comments

I have had tonic-clonic grand mal seizures for roughly the last 4-5 years. They appear to be brought on by stress. When my life is the most hectic, that's when they strike. Yesterday, after a...

Created By: Sallen6861 | 02/2020 | 3 Comments

Just wanted to share my story. About 11 years ago my husband and I were working outside. Being a Nurse I knew to stay well hydrated and rest. Anyway after the second day of working outside in...

Created By: lazarus78 | 02/2020 | 2 Comments

Hello all,
My daughter had a seizure 4 days after treating ear infection, runny nose for more than a month. She didn't have high body temperature so doctors told us she needs to go and...

Created By: Michael1978374 | 02/2020 | 1 Comment

I grew up with epilepsy for over 33 years of my life. In 2011, I had a lobectomy on the left side of my brain to remove a non-cancerous tumor. I have been seizure free ever since! My life has...

Created By: MC_5a53c0cb79487 | 02/2020 | 3 Comments

I have Focal On-set Impaired Awareness Seizures (Complex Partial Seizures), and I can also have Tonic-Clonic Seizures (Gran-mal Seizures). Here are few incidents that have happened to me over the...

Created By: Smiller1090 | 02/2020 | 1 Comment

My husband was diagnosed with epilepsy when he was 8. It was during his parents divorce and the Dr said it was from stress and that he would grow out of it. He never did. Medications subsided/...

Created By: Jbinf | 02/2020 | 1 Comment

** warning this is a long post mostly rambling**

I was diagnosed with Epilepsy about 12 years ago (mostly complex partial seizures from temporal lobe) . I have been on different medications...

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