Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: Jennifer Young | 06/2018 | 0 Comments

Does anyone have any information on these type of seizures. They say that my seizures are due to stress. I am in the process of learning coping skills to learn to deal with these type of seizures...

Created By: Sknasel | 06/2018 | 1 Comment

Hello. My son is almost 20 years old. He was diagnosed with epilepsy when he was 9. He had a left temporal lobectomy/amygdilalohippocampectomy when he was 12. He takes Tegretol XR 400mg twice a...

Created By: Katerade88 | 06/2018 | 0 Comments

Hello all!

Happy to be here and grateful to share my complicated experience thus far.
a baffling tonic clonic story!
Background: many years of depression that I’ve spent 10...

Created By: Sabrinamadias | 06/2018 | 0 Comments

Hi everyone. My name is Sabrina. I'm 36 years old living with catamenial epilepsy. I had my first seizure in 2009 about a month after losing my mom. It stemmed from a brain injury when...

Created By: Lynnette Brown | 06/2018 | 0 Comments

I have quite a long story to tell, but fortunately, it has a happy ending!
I was diagnosed with gran mal (now called tonic-clonic) seizures at the age of 6 months after hitting a coffee...

Created By: Momof2e | 06/2018 | 0 Comments

I was diagnosed at 14 with JME after some bad grandmals. Even with medication, I’ve had a hard time controlling my seizures over the years. They’ve gotten better in my thirties, but I did have...

Created By: Bernie_5b18bd9de5e32 | 06/2018 | 0 Comments

Hi everyone I need help oct 26 2015 I was in a car accident I was at the stop sign stopped another driver was texting and driving late for work he rear end me pushed me four feet passed stop sign...

Created By: eat.more.meat | 06/2018 | 2 Comments

Hi everyone!
I'm 24 and I have seizures since 2007 but no doctor can help me, every diagnosis say that I'm sane. I don't know what I have to do...

COURSE OF SEIZURES...

Created By: kristinspringman | 06/2018 | 1 Comment

I am a 22 year old nursing student and just expirienced my first grand mal seizure in April, the morning after my birthday. I am blessed that my boyfriend made me run a little late that morning,...

Created By: Seven | 06/2018 | 10 Comments

I'm a 25yo university student with tonic clonic/grand mal seizures that are triggered by lack of sleep and stress. I know, what a great combo right?

Buuuuuuut there's no one to...

Created By: Katiex | 06/2018 | 1 Comment

I'm 19 & at the start of last month (may2018) I had a seizure. I remember getting out of bed, making a drink and sitting in the living room with my brother and cousin. I was speaking...

Created By: Katiex | 06/2018 | 0 Comments
Created By: realrocknrolla | 05/2018 | 1 Comment

My mom was in a car accident when she was 5 months pregnant with me. She had blood poisoning and the drs wanted to do an abortion because they said I would be severely retarded if I even survived...

Created By: tdrossos | 05/2018 | 1 Comment

How are other using it? does is work?
one large dose a day or 3-4 smaller doses a day, etc.
How do you measure it? So many different droppers....

Created By: bluesongs80 | 05/2018 | 4 Comments

Hi everyone. I'm here seeking some advice on how to help my boyfriend deal with epilepsy. He was diagnosed when he was about 8, he is now 25. The thing is that ever since he was diagnosed he...

Created By: Lochness | 05/2018 | 0 Comments

I am currently 24 yrs old and I have had epilepsy since i was a infant. My parents had me on multiple medications for years until my mother saw that my seizures stopped and she winged me off all...

Created By: Lakegirl | 05/2018 | 1 Comment

I had my lobectomy four weeks ago and it seems I’m suffering from major depression. They say it could be from the surgery. Anyone experience this!

Created By: verber001 | 05/2018 | 0 Comments

Hello...I had my first seizure back in 2014. Does anyone else get simple partials if they laugh or cough too hard. They happen at other times as well but if I have a real laugh...they seem to...

Created By: Katlady_5afb252286d0e | 05/2018 | 2 Comments

I have a very very long story about my daughter Jennifer so I don't know if it can all fit but I'll try to short form our situation. 27 years old my daughter is and suffers from...

Created By: Lakegirl | 05/2018 | 1 Comment

I am a 44 year old wife and mother of 5 and three weeks had a right temporal lobectomy. Can anyone share with me their experience and how long it took to be a regular functioning person. I just...

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