Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: jwk232002_5d523e4cf1819 | 08/2019 | 2 Comments

I've had seizures, partial/petit mal mostly and some grand mal since age 9. I am almost 34. The famous Dr. Benjamin Carson removed a part of my brain, left temporal lobe, in 2004. Seizures...

Created By: mistermattm77 | 08/2019 | 1 Comment

Almost 2 weeks ago, I had my first seizure at 41, while driving home from work. I wrecked my car and was taken to the emergency room(Where I later had another seizure) and stayed at the hospital...

Created By: Rex_5d4e7c4c7a38b | 08/2019 | 2 Comments

Hi I’m after a bit of advice or wondering whether anybody has shared a similar experience, my nephew is currently in hospital he is nearly 4 years old and about a week ago he suffered a number of...

Created By: beth_teacher | 07/2019 | 1 Comment

I had my first seizure before the age of one. I had 2 more grand mal seizures by the age of 5 and no one knew why. I don't know if any of you have ever heard of LeBonheur Children's...

Created By: April_Aussie90 | 07/2019 | 1 Comment

Hi everyone
Just wanted to get a sort of view with anyone who goes to the gym that uses protein for weight loss while eating healthy & working out..
I'm 29yrs old I'm...

Created By: Ganja | 07/2019 | 1 Comment

About 3 months ago i noticed i was getting migraines and around the same time my wife noticed my first siezure in my sleep. This could have been going on for longer but since i do not remember my...

Created By: Singsqueen | 07/2019 | 3 Comments

surgery was 18mo ago after 8 years of seizures (grand mal, nocturnal, complex partial). surgery was a must due to seizures of course, but the memory loss had started in small bits that we were...

Created By: garyhoward234 | 07/2019 | 1 Comment

So I go to my primary care Dr, I go in for memory loss and feared dementia. So blood tests and other written tests he doubted it was dementia, he sends me to a neurologist. MRI and such CT scan...

Created By: timnovotny | 07/2019 | 1 Comment

I had a 15 minute grand maul seizure and went into status epilepticus in front of my 9 year old daughter. Very scary. It was my first seizure that lasted that long.

Created By: timnovotny | 07/2019 | 2 Comments

I wanted to bring up CBD. I had been diagnosed with epilepsy in 2015, and suffered through many seizures (while on medication) before discovering the benefits of CBD in 2018. I had a 15 minute...

Created By: Georgie123 | 07/2019 | 1 Comment

I had childhood epilepsy and stopped having seizures when I was around 11 years old. I am now 22. I was diagnosed with 3 different types: petit mal, grand mal and drop.

I haven't had a...

Created By: Phelpsyjnr | 07/2019 | 1 Comment

Hi,

Looking for some advice to see if anyone else has had a similar problem to me. I was diagnosed with Epilepsy in 2007 and after many years of trial and error, my seizures were brought...

Created By: CamRead | 07/2019 | 2 Comments

I started having seizures in 2017 and I’ve had only had three seizure on my second one I almost died and on my third one on New Year’s Day this year. Ever since I’ve been diagnosed with anxiety...

Created By: Sorcron11 | 07/2019 | 2 Comments

My name is Rich and I juvenile mayoclonic epilepsy, or however it is spelled lol. I started having seizures about three years ago at the age of 22. Ever since then I’ve had some major emotional...

Created By: avonlady | 06/2019 | 2 Comments

Hi
I go to the driving rang several times a week, ride bike go to the gym. I have almost 10,000 steps on my body daily. The more exercise you have the less stress you have. With me the...

Created By: sederqu | 06/2019 | 3 Comments

Hello, I'm 25 and my first seizure was when I was 14 years old. It was at a friends house after staying up all night trying to get a perfect score on "Through the Fire and Flames"...

Created By: bW_5d143a0599a33 | 06/2019 | 2 Comments

Hi, I am 24 years old and have had 4 grand mal seizures. My first seizure occurred when I was 21. All have been after heavy nights of drinking. I drank heavily plenty of times before that and...

Created By: traeman2000 | 06/2019 | 1 Comment

So in the last year I have started noticing "weird habits" for lack of a better term (I blame my neurologist) and I'm not sure if it sounds seizure related or if I'm just being...

Created By: Riverlily896 | 06/2019 | 1 Comment

To think at 29 years old I would be dealing with this issue. Is something I never expected. Day in and day out it takes a toll on my body for 6 months I asked the doctors at Reading Hospital to...

Created By: JasmineLynch0227 | 06/2019 | 2 Comments

Hi, I'm Jasmine I'm 26 & I've been living with seizures for 3 yrs now.. I also have Rheumatoid arthritis and I've been dealing with that since I was 12.. I go to...

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