Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: YvieJ | 06/2019 | 2 Comments

My son had a couple episodes of postictal psychosis… Has this ever happened to anyone else? He has since quit drinking alcohol and has been relatively seizure free without a couple auras for the...

Created By: Ericorn123 | 06/2019 | 1 Comment

Since 2014 ive been having seizures. Test results show to epilepsy. They tell me that they dont know what causes the seizures so they put me on medicine that doesnt work and makes me more anxious...

Created By: Moisesmoy | 06/2019 | 2 Comments

Hi, well i just wanted to share my experience with epilepsy i hope this can help or entretain someone, im 26 now and i had my first seizure at 23 so i been dealing with random seizures for the...

Created By: B&B0447epl | 06/2019 | 1 Comment

A year and a half ago was taking Keppra and Vimpat. Doctor decided to add Fycompa. Experienced severe altered sensorium (acute psychosis?) within a few days. Family not advised of my state, was...

Created By: locke32080 | 06/2019 | 1 Comment

I am having weird spontaneous dizziness that happens whether I'm sitting or laying still, and even when I'm walking. Doesn't discriminate between moving and not moving positions. It...

Created By: marisam145 | 06/2019 | 4 Comments

My Fiance and I want to have a family one day. I want a baby so bad but I'm so afraid . I have epilepsy and I'm afraid of having miscarriage or complications or my baby having birth...

Created By: ginger45snap | 06/2019 | 1 Comment

Have good news: Everyday, did a therapy (similar to acupressure) to myself the month before having EEG. Test results showed no sign of epilepsy. Now I'm seizure free. Been since 2015 that I...

Created By: Worriedoutofmymind | 06/2019 | 3 Comments

I live in Ga., My son lives in East Tx. My son is now 44 years old. As a kid he was diagnosed with Petit Mal absence seizures. Three years ago he started having Grand Mal seizures. I think he...

Created By: marisam145 | 05/2019 | 2 Comments

I have had seizures pretty much all my life, I won't go into detail because I be typing up a book. I use to be ashamed of my disorder, I fell into depressions and I blame my disorder for...

Created By: Jacouti08 | 05/2019 | 1 Comment

Now knowing what TLE is and what it can do has put an internal spot light on my past. Growing up I felt like any other regular kid, playing, joking, etc. I never thought that a crossed wiring...

Created By: Newyorkcita2 | 05/2019 | 4 Comments

Hello I'm Nicole
I was diagnosed with TLE as a child and when I was 14, stopped taking meds, but I think my seizures just changed and never stopped. However eegs keep coming out normal...

Created By: ocdrums12 | 05/2019 | 2 Comments

I was diagnosed officially three months ago with absence seizures along with epilepsy. Since then I would have a seizure every 15-25 days. My last three seizures have been while sitting in the...

Created By: Francine | 05/2019 | 1 Comment

Hi everyone. I am new here. I have a daughter who has had pseudo seizures for years, so I am not new to what it looks like. I know as a nurse these are not as dangerous as epileptic seizures. My 6...

Created By: walcal | 05/2019 | 2 Comments

Hello! First timer on this chat room. I am 43 and had been seizure free for 8 years until 5 days ago. I began having complex partial seizures at 33 and have only had that kind. MRI, CT and EEG...

Created By: philip k | 05/2019 | 2 Comments

In year 2004, I started to have convulsive seizures at my freshman years in the university. After my second convulsive seizures within 5 days after the first one, I had done the EEG test, and then...

Created By: ItStrella | 05/2019 | 6 Comments

Hi, I'm Stella and I've been diagnosed with juvenile myoclonic epilepsy since 2017. I've had five seizure attacks and most of them were because of keppra that i used to take. My...

Created By: hayleigh sigle | 04/2019 | 5 Comments

Hello my name is Hayleigh, I am 15 years old and has had epilepsy since birth. I am 6 months siezure free! I really want to get to 1 year but I feel like it's never going to happen. I will...

Created By: Kotix | 04/2019 | 1 Comment

Hi from Russia. I'm 31 yo, had my first seizure 9 years ago in 2010 probably after stress (had two final university exams that day). And after that everything was fine till today. Recently I...

Created By: ZyStar161 | 04/2019 | 3 Comments

Hello...

I'm reaching out because I feel I have no support. To make a long story short... I'm 36 and after having a couple of seizures growing up (which resulted in testing and...

Created By: George1356 | 04/2019 | 3 Comments

HI I am on Lamictal, was 50 morn and 50 night. After a seizure, my neuro changed it to 75 morn and 75 night. Now after being dizzy, it is back to 50 morn and 75 night. Has anyone had anything...

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