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Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: AaronZ | 06/2020 | 3 Comments

Hello everyone. I'll start by saying that I no longer have consistent seizures, aside from the random one about every 6 months due to stress, cold, etc. But I wanted to give my story in hopes...

Created By: Ge0192 | 06/2020 | 3 Comments

hello! i m not sure if i ve got epilepsy or maybe pseudoseizures. my seizures are strange... i m alaways aware before and after.. i ve got a feeling like fear before seizure is starting and the...

Created By: yamimed | 06/2020 | 2 Comments

Hello my friends ,
I will briefly tell you my story . In 2007 , I had an Traumaric brain injury that control the muscle of speech . I somehow recovered from it but till now sometimes I make...

Created By: XGambit139 | 06/2020 | 1 Comment

Hello everyone! I don't know if anyone is going to read this or respond, but I reached out and I was told to just share my story here.

I am almost 32 to give you an idea of how far...

Created By: ConcordMom | 06/2020 | 3 Comments

Hi all! I'm new to this website but unfortunately not new to epilepsy. I've had it my whole life and had my first tonic clonic when I was 18 in college - I should mention that I was...

Created By: jpoharescrz | 05/2020 | 2 Comments

My daughter, aged 20, had a single tonic-clonic seizure 14 mos/ago. Clean MRI
but borderline EEG. Original neurologist put her on 1000 mg keppra and got
cleared to drive. She's...

Created By: Aaj | 05/2020 | 2 Comments

Hads anyone ever felt dizzy for a short time, then right afterwards your body gets hot and sweaty?. I have had epilepsy for most of my life, I'm 62 now ,first one I had I was in my twenty. I...

Created By: seamuspg | 05/2020 | 1 Comment

I put my story here mostly to serve as a reference should anyone be inquiring about the use of Psychedelics and Epilepsy. It's a rather simple story, but I believe it's one that could be...

Created By: epihelp | 05/2020 | 4 Comments

Hi everyone,

I hope you've stayed safe and are doing okay in the past few months. As restrictions around the US, and in other countries, are lifting, many hospitals and clinics are...

Created By: BriM | 05/2020 | 3 Comments

Hey everyone im new to this site iv browsed it a few times but this is my first time posting. Im a 28 year old guy been having grand mal seizures sense i was 13 it was Christmas eve and i was...

Created By: Savannahraye123 | 05/2020 | 2 Comments

I'm new here, and I see this forum gets lots of attention. Sunday morning 5/10/20 my husband found me having a seizure around 4am. I had taken to much insulin and dropped to 20 prompting a...

Created By: Wayneor92 | 05/2020 | 1 Comment

Good morning, I have posted here a couple of times and had a good response so thought I would share again.
I had a seizure on Friday 8/5/20 while in work. This is the first seizure I have...

Created By: Verennes | 05/2020 | 3 Comments

Hi,

after 5 years of having problems such as being exhausted, lack of coordination, sensitivity to light, difficulty concentrating and feeling pressure in my head I was finally told to...

Created By: tma102013 | 05/2020 | 1 Comment

My son has epilepsy. He had a big seizure in 2015 and 2016. He is now 21 yrs old, taking med regularly but still has aura 2, 3 times a month. I am looking for parents who have the same situation...

Created By: irangel | 05/2020 | 0 Comments

I'm reaching out to fellow people who have had to deal with epilepsy whereby seizures were triggered by dairy products or calcium intake.

Thank you, in advance,

Irma

Created By: quida1017 | 05/2020 | 9 Comments

I was born 1lb.15 oz. premature at 6 months and at birth I was diagnosed with colpocephaly which is a congenital brain abnormality and malformation,and mild cerebral palsy. I also had to stay in...

Created By: ZiphoNguza | 05/2020 | 1 Comment

Hey guys I'm new here I hope everyone is well. So the first time I had a seizure I was 10 years old ,the doctors prescribed Epilim for 6 months then the doctors gradually tampered me off it,...

Created By: Jennmavity | 05/2020 | 1 Comment

I have a 19 year old son whi has been dealing with epilepsy since he was 12 years old. They are back to not being controlled. Plus in the last few months he has been experiencing new stuff. After...

Created By: semkul | 04/2020 | 7 Comments

Hi I am new to the forum. As a parent of 15year old boy, I am scared to death for him. During this pandemic month, my 15 years old son got his 1st seizure. He was taking a nap, and while waking up...

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