Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: stokerfan | 12/2018 | 1 Comment

Does this sound like I have a seizure? I stopped with my hand a door frame. Unresponsive to simple questions. Hand slightly. Staring off. Tight grip on objects in hand. Needed support to...

Created By: irwin2ka | 12/2018 | 0 Comments

Hi everyone! I finally have become more comfortable and also curious if there are others out there who have possible had a similar experience as mine...

In January of 2014 I was diagnosed...

Created By: rleon | 12/2018 | 0 Comments

Goodnight, I'm from the Dominican Republic, I do not speak English, I'm using a translator to express and tell my story.
I have a 7-year-old girl, who was diagnosed with epilepsy...

Created By: scrislip1 | 12/2018 | 0 Comments

I wrote my first book and it is titled “Weird Girl With a Tumor” - available on Amazon. It entails struggles and challenges I went through while living with epilepsy. I hope it inspires others...

Created By: blgibbs@hotmail.com | 12/2018 | 0 Comments

Sad to say this but is true that I was born with a seizure disorder because the doctor or CT scan found a scar inside my skull that is not able to be removed from the tissue part from the brain...

Created By: SallySue | 12/2018 | 7 Comments

Hello,
I would like input into your experiences of how likely it is to find activity of simple partial ( or focal) seizures on EEG? As I get mixed reviews on this. For instance would video...

Created By: Pinkie062790 | 12/2018 | 0 Comments

My first seizure happen when I was eight years old. My mom told had grand mal in her bed but didn't waking up a little until was in ambulance. I was full awake once I realized I was in...

Created By: nicolejking15@gmail.com | 12/2018 | 0 Comments

https://www.gofundme.com/epileptic-needs-help-with-tuition&rcid=r01-15438290574-a2b65c8939fe4ace&pc=ot_co_campmgmt_w

Hello. I am trying to figure out how I will be able to...

Created By: Livestrong_5aa285b245f85 | 12/2018 | 0 Comments

Dear All,
Wish you the best of the day. My question is a simple one. I have been seizure free for the past 10 years but i sometimes go through auras but they are taken care of in due time,...

Created By: Spanky25 | 12/2018 | 1 Comment

I’ve been on Dilantin since I was a teenager. I am now 48 & seizure free since on the meds.
The past few months I smell this gas toxic smell. However, my wife & family says...

Created By: Momto2 | 11/2018 | 2 Comments

My healthy teenage son was on a delayed vaccination schedule because of my concerns with vaccines in the first place. As he got ready for middle school I felt pressured to finish his vaccines and...

Created By: sl272 | 11/2018 | 1 Comment

Hello,
I am the mother of an 18 year old boy who had his first general/primary seizure May /2018 lasting over 8 minutes. He has been healthy other than normal childhood illnesses cold, ear...

Created By: Flora_5bfeb7f3091f8 | 11/2018 | 0 Comments

Hello! I am new here. I have epilepsy since i was 12 and now I am 33. I have used many drugs but the main drug that i take is depakine chrono. When i was younger i used to have many seizures but...

Created By: mmg | 11/2018 | 0 Comments

I am new here and I kinda saw some old discussions and exchanges in this site which I thought were really helpful. Ive had fainting spells which were tested and diagnosed to be linked with...

Created By: stokerfan | 11/2018 | 1 Comment

Hi. I'm new to this. I had my first seizure when I was 44. Seemed a little late in life to have one. I don't remember any of it. All i remember was asking my husband numerous times...

Created By: Danylik12 | 11/2018 | 0 Comments

I had my first seizure in Kindergarten when I was 6 years old and I was diagnosed with epilepsy a little later that year; at the time I was having about 50 seizures a day including the seizures I...

Created By: crshorty3 | 11/2018 | 0 Comments

Hi there, I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have any history of seizures so im kinda asking for insight. A little back story of...

Created By: ChannonMarie | 11/2018 | 0 Comments

I was first diagnosed with epilepsy on August 27, 2010; apparently they lost me twice, no pulse, nothing. I remember seeing this bright light and a woman’s face that I feel like I had seen before...

Created By: HF1 | 11/2018 | 1 Comment

Had my first seizure during an extreme physical challenge equivalent to several triathlons. I was throwing up and ultimately seized then went into a coma for near a week.
I was honorably...

Created By: katrina138 | 11/2018 | 1 Comment

My son is 6 years old. He had his first seizure when he was 2 days old. He was admitted to the hospital for 2 weeks. He was then put on seizure control medication. He went a year without having a...

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