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We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Topic: Share Your Story

Created By: George1356 | 04/2019 | 2 Comments

HI I am on Lamictal, was 50 morn and 50 night. After a seizure, my neuro changed it to 75 morn and 75 night. Now after being dizzy, it is back to 50 morn and 75 night. Has anyone had anything...

Created By: Ramraghav | 04/2019 | 0 Comments

Dear all,

I am Raghav Dubey from India. I am 12 years old and a student in seventh grade. Since last year October, I have epilepsy seizures at least once in a month. The few things that my...

Created By: TayRenae | 04/2019 | 0 Comments

As a 21 year old pregnant epileptic, there's a lot of things you already worry about going into this crazy thing called adulthood. As a mother with general idiopathic epilepsy, this is not...

Created By: Ajp | 03/2019 | 3 Comments

Hi
I am not diagnosed with epilepsy as at the age of 51 I only had a first seizure 2 weeks ago and taken to hospital. I’m hoping just a one off as after having just one I cannot imagine how...

Created By: chele0785 | 03/2019 | 3 Comments

Hello. I woke up at 4am to feed my 3 month old, she finishes, put her back to bed and then I went to lay back down. I started to fall asleep, but like normal I have a hard time falling back asleep...

Created By: JustG | 03/2019 | 3 Comments

My epilepsy awareness technically started yesterday. When my neurologist, who was treating me for Non-specific Narcolepsy Type 2 for the past 6 months, finally viewed one of my home videos of what...

Created By: JustG | 03/2019 | 1 Comment

Continued from part 1

I find a new psychiatrist to see if there is anything else to try. She puts me on clonidine(ok) and sertraline (ok,for the Mild Depressive Disorder she identifies). I...

Created By: Mstar05 | 03/2019 | 3 Comments

My daughter just turned 14 and had her 1st seizure last month . The MRI shows she has cortical dyspasia which they have told us is a abnormally from utero .and they are suprised this is the first...

Created By: Firefly_5c87f63947fdd | 03/2019 | 1 Comment

Hello,

I'm having a down day. They don't happen often, but it seems I'm being tested in a big way. Before I get too far, please know that I am a positive person heart and I...

Created By: Flower Roberts | 03/2019 | 2 Comments

My daughter and I have been working on a book about her twenty-plus-year journey with epilepsy. It has stories about her life and "mama" advice from me. We need some input at this point...

Created By: DennyPadfoot | 03/2019 | 2 Comments

Hello recently for the past week I have started to have migraines and dizziness 24/7 and can barely get out of bed.

I have always mostly suffered from Focal Seizures and I only have to do a...

Created By: Pelisesmith | 03/2019 | 2 Comments

Hi all! My name is Paige and I have JME. I was diagnosed in 2012 at 14 years old. I’m now 20 and taking 300mg of lamortagine (generic lamictal) once daily. I remember what it was like for me, a...

Created By: GruGruxQueen | 03/2019 | 2 Comments

Hi I'm new here. I was first diagnosed with epilepsy in 2003 when I was 27. I have no history of seizures it just came out of the blue. At first I was having over 20 seizures of all types a...

Created By: shroberts | 03/2019 | 2 Comments

My name is Shaka, a 21 year old. I had my first seizure when I was 19 years old and was fast sleep when it happened. So there I was feeling tired, so I went to bed...that's all that is ever...

Created By: Ambersloves2 | 03/2019 | 1 Comment

I had a seizure at work on 2.7.19. I am a 29 yr old female, with no history of seizure... I was sitting at my desk doing a loan application for my customer, when next thing I know I'm laying...

Created By: Mysterymare | 03/2019 | 0 Comments

Today I had an odd episode where I was going to get something from the fridge when all of a sudden I felt hazy, slowed down, stopped in my tracks then I had some odd abdominal muscle contractions...

Created By: hayleigh sigle | 03/2019 | 3 Comments

Hi, mt name is Hayleigh and i am 15 and has epilepsy my whole life. I have petit mal epilepsy and i am currently 5 months siezure free! I have not met anyone who understands what I go through and...

Created By: sillygirl | 03/2019 | 3 Comments

Has anybody on here with photosensitive/pattern sensitive epilepsy ever started their own business? I cannot work anymore. Computers (not just the light, but the flashing screens and patterns and...

Created By: Jenks289 | 02/2019 | 7 Comments

Hi, Im hoping to share and maybe get some feedback. As im sure many of you can relate, I don’t have anyone that really understands what I go through or how I feel and no one can really answer my...

Created By: jad.lebanon | 02/2019 | 2 Comments

hi all,
i would like to share my story with you maybe I'll find some matches to mine.
i was diagnosed with epilepsy at the age of 8 years old and started medication until the age...

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