2018 Epilepsy Pipeline Conference

Watch Community Day of the 2018 Edition of the Epilepsy Foundation Conference, Live from San Francisco on Saturday, February 24


Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: kirsty_5a8181c909a82 | 02/2018 | 0 Comments

I’ve been diagnosed with epilepsy and non epilepsy attacks would a service dog help with both attacks or just with appilepsy

Created By: Pmcdonald2417 | 02/2018 | 2 Comments

My son had an accident when he was 12. They did an EEG and it was abnormal with consistency of generalized epilepsy. My son did a 48 he EEG and had the same results. His neurologist then had him...

Created By: vaconners | 02/2018 | 1 Comment

Hello Everyone,

I am not afraid to share to my story, and those I do share with tell me "it's courageous." To me, it's just the truth.

In 2016, while in a...

Created By: GingerRocks82 | 02/2018 | 4 Comments

Hi all, I'm new here and this is my story. Please do come back to me with your thoughts and suggestions here, i'm going to spill it all out with authenticity here so bare with me.

Created By: Jetaylor2425 | 02/2018 | 5 Comments

I am a 50 year old CPA with 2 kids who has had epilepsy since age 7.

Created By: Aspie | 02/2018 | 2 Comments

Hello. This is the first time I'm sharing my tale with someone who isn't my doctor or family. They just don't understand. I had my first seizure at 17 years old, I'm 31 now....

Created By: viktor92 | 02/2018 | 0 Comments

Hello everyone,

I want to share my experience with everyone of you, and ask for advises and your help.

My first attack happened around 6 years ago. I started to feel tingling on 2...

Created By: Aloni | 02/2018 | 0 Comments

I just started this and I wanted to say that I have had seizure ever since I was 5 and it is making me just a lot upset so I decided to talk about it.

Created By: Aloni | 02/2018 | 1 Comment

I just started this and I wanted to say that I have had seizure ever since I was 5 and it is making me just a lot upset so I decided to talk about it.

Created By: ashwednesday | 02/2018 | 3 Comments

About me: 26 year old male with no prior history of seizures.

I went to lie down shortly after 7:00 PM because I was feeling strange. The best way that I can describe it is that I felt...

Created By: epihelp | 02/2018 | 0 Comments

Hi everyone,

The Epilepsy Foundation national office is making some new videos and updating educational programs with new footage of seizures. While simulated seizures with actors can be...

Created By: MISSING U | 02/2018 | 4 Comments

Good night I have a burning question, my cousin age 33 died age from a seizure face down in her bed, just this past Sunday, blood on pillow urine on bed ...she was diagnosed with epilepsy maybe 3...

Created By: Bdisco | 02/2018 | 2 Comments

New at this, my daughter has had a few seizures just before and after being diagnosed with mono. She is currently on keppra. We have just taken her off of zonisamide due to the cognitive issues...

Created By: Loguecade | 02/2018 | 1 Comment

Hi, I'm new to this. Anyways, I was diagnosed with epilepsy when I was 16, i am 28 now. I was going into work the one morning over the summer, and crashed my truck into a tree. We thought I...

Created By: dee15 | 02/2018 | 1 Comment

Hi everyone, I am new on here but sadly not new to living life with epilepsy. I had my first seizure at the age of 11. I was diagnosed as having grand mal seizures. I am now 37 and I have been...

Created By: crazycurlyfrys@gmail.com | 02/2018 | 3 Comments

My mother-in-law has seizures every few months were she lays in bed shaking her head arms and legs. then she passes out right after and is still for a few seconds and Then she gasps for air with...

Created By: Abby1 | 02/2018 | 1 Comment

Hi all,

Unfortunately my husband had been diagnosed with epilepsy since late teens. Ten years down the line he's been doing really well for the last 6 months. This is mainly due to the...

Created By: BassGirl | 01/2018 | 1 Comment

Hi Everyone,

This is my first time writing about my experience with seizures. Growing up I never had signs of epilepsy and never thought that something other than epilepsy can cause you to...

Created By: Imme412 | 01/2018 | 0 Comments

I am 31 years old and was in an accident in my way home from Germany, I was a paratrooper. I don't remember much about what happened, just stories I've been told. That's somewhat...

Created By: poppy123 | 01/2018 | 1 Comment

I had 2 seizures in 2017, it transpires i had very low iron, two doses of intravenous iron and i feel so much better, but I've lost my driving license. Do I have to wait the 12 months, no...

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