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Night seizures

Tue, 10/27/2009 - 13:40

My 18 year old daughter has had seizures since having a large cycst removed from her brain. Most occur when she is sleeping. Consequently, there are times when she is afraid to sleep - even though she has been assured that it is not dangerous. Naturally she is always very distressed and dissoriented when she awakes after a seizure. Her last seizure happenend while she was sleeping in caualty - after an earlier seizure. It lasted 15 minutes and stopped as a result of the intravenous medicine she was given.

The last seizure was distressing to see because of the length of it. I also find it very hard to sleep- worrying if she is having a seizure. My quetion is: Is there a moniter/alarm that one can buy that can detect if anyone is having a seizure?

Comments

Re: Night seizures

Submitted by kennasmommy on Wed, 2009-11-04 - 01:55

Hi,

Our 9 year old daughter was diagnosed with Benign Occipital Childhood Epilepsy this year.  It has been a scary and terrifying ordeal as when she is having this nighttime only seizure (during the first 15 minutes of falling asleep), she becomes cyanotic, loses oxygen, respiration drops and her heart rate goes through the roof.The first 2 months after she was diagnosed, my husband and I never slept, taking turns keeping an eye on her during the night.  We purchased a video monitor, too. 

What really saved us is this:  a Pulse Oximeter.  It will alarm us if our daughter's heart rate increases or decreases and if her oxygen levels drop, and in our case, this means she is having a seizure.  We have been able to sleep since we rented one through our insurance company.  It is just like the monitors they have in hospitals, it is called "Masimo Set".  A small band-aid like tape moitor either stays on their finger or toe throughout the night and it monitors their blood oxygen and heart rate through the nail bed.

If your daughter's heart rate increases during a seizure, you can set the monitor to alarm you.  I hope this will help your situation.

Hi,

Our 9 year old daughter was diagnosed with Benign Occipital Childhood Epilepsy this year.  It has been a scary and terrifying ordeal as when she is having this nighttime only seizure (during the first 15 minutes of falling asleep), she becomes cyanotic, loses oxygen, respiration drops and her heart rate goes through the roof.The first 2 months after she was diagnosed, my husband and I never slept, taking turns keeping an eye on her during the night.  We purchased a video monitor, too. 

What really saved us is this:  a Pulse Oximeter.  It will alarm us if our daughter's heart rate increases or decreases and if her oxygen levels drop, and in our case, this means she is having a seizure.  We have been able to sleep since we rented one through our insurance company.  It is just like the monitors they have in hospitals, it is called "Masimo Set".  A small band-aid like tape moitor either stays on their finger or toe throughout the night and it monitors their blood oxygen and heart rate through the nail bed.

If your daughter's heart rate increases during a seizure, you can set the monitor to alarm you.  I hope this will help your situation.

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