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Community Forum

CDKL5 disorders


Two of my children had Infantile Spasms / West Syndrome. They have subsequently been found to have a CDKL5 disorder. This is a newly discovered gene that is not yet widely known about.

 Please send a link to your medical practitioner for to help spread awareness of these genetic disorders.


Re: CDKL5 disorders

Just checking, is This L?

Your Daughters are B & A?

This is S, K's Mom from MN!

I have posted in 2 threads here about CDKL5, I am hoping to find more families!


CDKL5 Xp22.13 

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