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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Brain tumor survivor writes her first book

Hello everyone. My name is Sierra. I'm 23 years old and am a brain tumor survivor from Hypothalamic Hamartoma. I had epilepsy, constant "Gelastic, laughing" seizures on a daily basis and poor social skills. It was removed when I was 8. My anxiety got 10x worse, I got bullied in school, and had learning disabilities. However, I recently wrote my first book, which has been published. It's titled "Weird Girl With a Tumor" and it talks about my experiences and hardships I faced with the tumor. I believe if you share your story with others, they will gain some understanding on you and who you are, without judging.


Hi scrislip1,  Thanks so much

Hi scrislip1,  Thanks so much for sharing your story, it sounds like you’ve been through a lot.  We know Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. One of the most important things to help those who live with epilepsy is to find a support network. You can learn more about your community support options and resources, here:

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