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Add your thoughts here!

Sat, 03/11/2006 - 06:47
This thread is beign 'amended' to give users a place to list ideas for equipment, products, resources or helpful links that they would like to share with others. Please feel free to list these in other posts, but copy to here so you can come back and find it easily fof future use. Try to title threads to make easy to find... for yourself and others. Also, please note that Epilepsy.com does not endorse any specific products, resources or links. Staff and volunteers may add educational links and resources, but users should discuss the use of these with their doctor(s) and other health care providers. Also please visit the Resource Section on the home page of www.epilepsy.com for additional resources! www.epilepsy.com/epilepsy/devices_links.html Epi_help Epilepsy.com Resource Specialist

Comments

Re: Add your thoughts here!

Submitted by Anonymous on Sat, 2006-03-11 - 07:01
For first time users, there are lots of section of the website to explore. Take a look at the "first time user" button to see what is available! www.epilepsy.com/epilepsy/use_site.html Have a good day! Epi_help

Re: Re: Add your thoughts here!

Submitted by Les on Sun, 2006-11-05 - 07:30
For light sensitivity, I found blue googles which are actually UV Shield glasses that many with vision problems use, very helpful to me as I also suffer migranes. Another person has found plum to be helpful. The goggles are made by a company named Noir and can be found in the Maxi Aids catalogue. ( I can't recall if there is a hyphen in the web page name but try www.maxiaids.com ) The person with whom I coresponded had said it would be great if every ambulance had a pair of plum goggles available for epilepstics so that ambulance personnel could use them for epileptics when they answer a call for seizures. He said is going to the president of the Bronx, NY and then to Mayor Bloomberg to present his idea that all the ambulances be equipped with Noir plum glasses. Les

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