Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Parents & Caregivers

Created By: vrawls | 06/2006 | 3 Comments
I noticed the other day my 2yr old took an unusually long nap of 4 hours. A few hours later, while waiting for my daughter to finish karate class, he becomes limp, semi-lethargic and bites his tongue...
Created By: vrawls | 06/2006 | 5 Comments
Reluctantly, I enrolled my daughter in karate for the summer. I noticed she has great difficulty with her sense of direction. I would love to tell you what type of seizures she has, but...
Created By: dansmom3 | 06/2006 | 40 Comments
Hi I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he...
Created By: AndrewNJ | 06/2006 | 3 Comments
Hi everyone. Thanks to all of you who responded and sent good thoughts to my previous posts. Well, it probably goes without saying that I am at the low point in my life; we had an appointment this...
Created By: lisavmorris | 06/2006 | 19 Comments
Hi, I'm new to this, my son (10years old) was diagnosed with temporal lobe epilepsy last week, i believe he has simple partial seizures although the doctor did not go into this. For the past year or...
Created By: chrisalis | 06/2006 | 9 Comments
our 3 mos. foster baby who was exposed in utero to cocaine at the least, has had two EEGs. the second at a different hospital returned a report " continuous polymorphic delta activity excessively...
Created By: elaine | 05/2006 | 3 Comments
My daughter was dx with Infantile Spasms 3 weeks ago. My world has been turned upside down. She was developing so normally and was just a happy, easy-going baby. All of the sudden, I noticed she...
Created By: Keri Kennedy | 05/2006 | 1 Comment
Rebecca was diagnosed at 4 months with Infantile Spasms (she is almost 1 now). We have recently had 100% seizure control with a combination of Topomax and Phenobarbital. We are now seeing clusters...
Created By: AndrewNJ | 05/2006 | 10 Comments
Hi everyone. Let me begin by saying I'm scared like I've never been before, and am pretty emotional (and often overreactive). Sorry if this is a little bit of a ramble. The story so far: About 6...
Created By: ScottM | 05/2006 | 3 Comments
Ok this is hard enough to talk about being that she is my little girl and all but i know she is growing up and all. my daughter is 13 soon to be 14yro. she has been epileptic since she was btwn 10-11...
Created By: Brubaha Mom | 05/2006 | 2 Comments
I need some help/input. My 2 week old son has been twitching at least once or twice a day for the last week or so. He does it while sleeping or awake. Usually it's just his limbs but today I...
Created By: ScottM | 05/2006 | 4 Comments
has anyone in here Joined them? they have several medical id bracelets that my daughter likes but you have to join them to buy them. from talking with them if sounds as if they are a middle man btwn...
Created By: zzzzzing | 05/2006 | 6 Comments
My 3 yo had a strange fainting type spell last week, she was with our nanny so I wasn't there to witness what happened. The nanny brought her to me immediately after, and my daughter was extremely...
Created By: jolieweng | 05/2006 | 40 Comments
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are...
Created By: jksmith | 05/2006 | 0 Comments
I am relatively new to epilepsy.com. I am a 33 yr old mom with epilepsy that was diagnosed at age 12. My 4 year old daughter was diagnosed with the same seizure pattern this year. I have been...
Created By: tony73 | 05/2006 | 1 Comment
My 18-yr. old daughter will be traveling to Europe with her school soon and I wonder if there is any advice/info for her as far as managing the time change and meds when she goes. Her seizures are...
Created By: mcccknight | 05/2006 | 2 Comments
Hi I'm new here. My name is Michelle, I have 3 girls (17, 6, and 4 yrs old). My 17 yr old was diagnosed adhd age 7, ODD age 13, and then Bipolar at age 15. My 4 year old has asthma. My 6 year old is...
Created By: mamaoffive | 05/2006 | 15 Comments
Hello eveyone. My five year old daughter was just discharged from the hopital after a two day stay. She had her second seizure (that we have witnessed) the other night. Like her first seizure, she...
Created By: Eliz | 05/2006 | 1 Comment
Hi, I was interested in a post by Littlebug about her daughter. It sounded like my son, who was diagnosed with complex partial seizures. After adjusting his Lamictal to a good level after 3 years (he...
Created By: Pamelake | 05/2006 | 3 Comments
My 6 month old grandaughter has been having seizures since 2-3 months of age. They have not found a reason and are continuing to do testing and medication adjustments. She also has hypotonia. While...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline