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Community Forum

Topic: Parents & Caregivers

Created By: LM | 07/2006 | 2 Comments
Hello all: I have a strange situation, or rather my 13 year old son has a strange situation. Last year we (he and I) contracted some virus or Lyme Disease. During that time we both were sent for MRI...
Created By: mykidzrgr8 | 07/2006 | 0 Comments
Brief overview...My 3 yo son developed E on March 28, 2006, we failed 4 drugs and diastat was beginning to fail...On June 29, 2006 we traveled to Baltimore MD to see a doc who put T on a Modified...
Created By: oldakasha | 07/2006 | 1 Comment
Do any of you have video's of your childs seizures? I am thinking of posting some of my daughters. She has epilepsy but really havent been told for sure what kind.
Created By: ekoorb | 07/2006 | 1 Comment
My daughter's seizures occur during sleep. My doctor has indicated that if my child falls out of a sleep pattern and becomes tired over a period of time, her threshold is lower and she is more...
Created By: ekoorb | 07/2006 | 5 Comments
My 5 year old had a seizure in March (a few several months before that) and had not had another one until this morning in her sleep. She has a childhood form that she is expected to outgrow. What...
Created By: Aphrodite | 07/2006 | 2 Comments
Hi, I live in Australia/Brisbane and my sisters child is 20 months and has seizure disorder. Her ECG's are normal. But her seizures are severe and uncontrollable. She appears to have reasonably...
Created By: MissusLewis | 07/2006 | 4 Comments
My daughter is nearly 12 and has been diagnosed with possible juvenile epilepsy. Her father was diagnosed with the same when he was an adult. He had partial seizures (extremties) most of his...
Created By: kassideysmom | 07/2006 | 2 Comments
Kassidey had another Grand Mal seizure on Tuesday. The doctor just upped her meds again. She's on Zonegran, Depakote, and Lamictal. I'm trying to get a 2nd opinion, but the current neurologist...
Created By: kksmom | 07/2006 | 2 Comments
My three year old goes to a child care facility and her behavior has affected other students. Her teachers did nothing to help her with her behavior and since has been terminated because they have...
Created By: dhemphill | 07/2006 | 11 Comments
My son is currently on 7 ml twice daily of Trileptol. We use the syringe that comes with the bottle and rinse it after every use. My son has had several seizures in the last week which is very...
Created By: dhemphill | 07/2006 | 4 Comments
My child is currently seeing a neurologist, but everyone on here seems to lean towards visiting an epileptologist. Is there anyone that lives in the Dallas/Fort Worth area that is/or has a child or...
Created By: DJsMom | 07/2006 | 1 Comment
Hello reader, my son is 7 and has had seizures since 20 months. First, just an occasional, short seizure, then later after being on Tegretol for a year, frequent myoclonic seizures. We added Topomax...
Created By: melissaiba | 07/2006 | 1 Comment
My son was diagnosed with epilepsy at 4 months after a 4 hr EEG. He has partial seizures only in his sleep. His hands and legs jerk slightly and those are the only signs. He is on both Trileptal...
Created By: fortune | 07/2006 | 9 Comments
hi there, i,ve been away for quite sometime coz of my son's worsening situation. Im really so stressed up. my son's doctor tells me he'll be ok but i think this is just a lie to make me feel better...
Created By: laurensmyprincess | 07/2006 | 15 Comments
My dd has been on Lamictal since April and titrating upwards slowly. We have typically seen 1 seizure every 1 or 2 weeks over the past few months. Over the last several days, she has been...
Created By: sydylo | 06/2006 | 8 Comments
Hello. My one month old baby is in the hospital with seizures, he was having them with body movement at home, jerking head back, knees up, arching back. He was admitted into the hospital and put on...
Created By: coryw | 06/2006 | 1 Comment
My son had a VSD (hole) repair in his heart when he was 1 yo. Post surgery, he had an infection and this led to cardiac arrest for 8 minutes. After arrest, for 4 days he had multitude of seizures...
Created By: jhuey8021 | 06/2006 | 7 Comments
My four year old has had developmental delays and we think it is associated with her various types of seizures. Does this ring a bell with anyone? Is there hope she may catch up? I know it could...
Created By: marsden | 06/2006 | 5 Comments
My son is 9 and has absence seizures. He has never had a TC seizure and our neuro said that he could at any time. That spooked my wife and me. He is having seizures frequently right now. He had 7...
Created By: kassideysmom | 06/2006 | 6 Comments
Well Kassidey had her first grad mal seizure yesterday. She was getting ready to go swimming and I went to put something up and there she was laying on the floor face down making a terrible noise....

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