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Community Forum

Topic: Parents & Caregivers

Created By: DCB752 | 08/2006 | 7 Comments
My 22 month old son has been inpatient for seizures for more than 30 days since May 1, 2006. On May 1, Beau was 18 months old, he vommitted and then began having a complex partial seizure, mostley in...
Created By: EKlairsmom | 08/2006 | 5 Comments
My daughter is 3 1/2 years old and had been on medication since 6 months old for seizures. We are now in the process of weaning her off of lamictal and just taking Keppra (she has been on both for...
Created By: aidansmommy | 08/2006 | 1 Comment
Hi there. This wednesday we began a trial of anti convulsants (depakote) for my 3.2 year old son who has had two abnormal EEG's with slowing on the right and spikes. His diagnoses are: autism and...
Created By: jmccand | 08/2006 | 0 Comments
My 8 y.o. daughter has auras of headache, dizziness and throat pain. If she lies down immediately, sometimes this is all that will occur. However, her pain can be tremendous in her head and throat...
Created By: jmccand | 08/2006 | 0 Comments
My daughter was diagnosed with epilepsy 2 1/2 weeks ago. She had 2 seizures during the EEG--showing primary generalized. Other than the EEG, I have only seen complex partial seizures. She has been...
Created By: oldakasha | 08/2006 | 2 Comments
If you were told your child was a surgery canidate would you opt for it instead of a life time of taking meds. My daughter is almost 2 and may be a surgery canidate. WE have had one doctor say it...
Created By: stylzz | 08/2006 | 2 Comments
My son frequently holds his head as if to say it hurts orsomething isn't right.are seizures painful?does your head hurt even when they are not having a seizure?I just want to know...he is too young...
Created By: Christine1968 | 08/2006 | 9 Comments
I'm looking for information for my 10 year old son. He has recently added a new medication to help control his partial seizures. He is now taking 300 mg Carbatrol and 100 mg Lamictal twice per day...
Created By: Bobbie | 08/2006 | 0 Comments
Hi, my story reguarding my daughter is under Bobbie`s blog and the forum of new to my.epilepsy .com. My daughter is 9 years old and has rolandic epilepsy ,her neuro told us that there is a good...
Created By: stylzz | 08/2006 | 0 Comments
My son was watching pbs while in his playpen while I was doing dishes and I noticed that he was staring at the tv.while standing...I didn't think much of it until I noticed he was wobbly and sat.I...
Created By: stylzz | 08/2006 | 2 Comments
My sister mentioed on the phone today and asked if Alex has had a cat scan yet.They avoided it due to the radiation I think.Anyway should I mention it to the Dr. and ask if he should have one?He...
Created By: stylzz | 08/2006 | 3 Comments
My son wa sup from 12am to 4am last night.It seemed every time he would get himself to sleep He would wake right up...allmost hyper..like crawling out of his skin.And crying hysterically.He is only...
Created By: hayley | 08/2006 | 8 Comments
hi my 16 yr old daughter has been told she has photosensitive epilepsy but she also suffers with non epileptic seizures as a result of the epilepsy. doctors think that in feb they should reduce...
Created By: fortune | 08/2006 | 4 Comments
What is involved in speech therapy?I saw a pediatrician who recommended that i take my son for a speech therapy.He is three and can hardly construct a sentence and his single wording one cant...
Created By: Lauren | 08/2006 | 3 Comments
My daughter had an EEG one week ago. We're told to look for the results in 2 to 3 weeks. Is this a normal time period for result turn around? Thanks,
Created By: stylzz | 08/2006 | 8 Comments
My son often looks like he is staring off.I chalked it up to being tired.He has had myoclonic and grand mal.everyday he has dizzy spellswhere he loses his balance and twitches.Is that a seizure too...
Created By: stylzz | 08/2006 | 0 Comments
I'm started to get very scared.At first I thought it was going to all go away but now I just don't know.It started when he was 4 months old,the same day as his second round of shots.He had a seizure...
Created By: kamashda | 08/2006 | 3 Comments
My daughter was recemtly diagnosed with Rasmussen's Syndrome. My daughter has endured brain surgery and countless seizures. My wife and I are at our wits end and would love to hear from parents as to...
Created By: benjaminsmom | 08/2006 | 4 Comments
Hello, My son, Ben, was just today prescribed Keppra. The doc said that 2 out of 10 children experience psychotic behavior, are agitated and/or become violent...obviously makes me a bit nervous....
Created By: mjsmom | 08/2006 | 23 Comments
She had yet another seizure this evening, right after we finished dinner...went only 4 days in between this time... She's so upset...she says she doesn't want to take her pills anymore, they don't...

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