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Community Forum

Topic: Parents & Caregivers

Created By: momyo2ac | 09/2006 | 10 Comments
Hi there, I am new to this site and looking for advice. Last year I noticed something wasn't quite right w/my daughter. She was spacing out, wondering through out the house and I was always having to...
Created By: abobe | 09/2006 | 2 Comments
My daughter (6 years old) has absence epilepsy. She tried lamictal alone for 6+ months and it didn't work for her. Then she tried lamictal + depakote and finally got her seizures under control in...
Created By: epilepsyandme | 09/2006 | 0 Comments
The Epilepsy Foundation of Greater Los Angeles is pleased to announce its 22nd Annual Camp Family Fun...
Created By: pmgsmom | 09/2006 | 16 Comments
My son was diagnosed two years ago with epilepsy. He is now 8 years old. I was wondering if anyone else has experienced the seizures to be brought on by change of season or with daylight savings...
Created By: My3Kids | 09/2006 | 3 Comments
Hi All, My 14 year old son was dx'd three years ago with Complex Partial Seizures and has been taking Trileptal (suspension form) quite successfully. His epilepsy is another 'symptom' of a few...
Created By: nicolec | 08/2006 | 15 Comments
Hi, My 2 yr old son was prescribed Zonegran, which apparently only comes in capsule form. I've tried opening them and mixing the powder in foods and drinks, but he won't touch anything we've mixed...
Created By: Woking Mum | 08/2006 | 8 Comments
I know that I will have answers to some of my questions next week when we meet an epilepsy specialist, but I was really hoping for non-clinical answers from real parents living with a child with...
Created By: lexis mom | 08/2006 | 1 Comment
My daughter 2 year old Lexi is on Phenobarb .. her levals are well within theraputic range acording to her docters but still she's having breakthrough Grand Mals .... she has also began having...
Created By: debdolan | 08/2006 | 10 Comments
Looking for any parent who has had their child's school suggest holding a kid back a year, even when child has an IEP. I am in a battle to keep my son from pyschological harm of being held back. At...
Created By: EKlairsmom | 08/2006 | 7 Comments
Hi! I was just wondering when you have a seizure do you lose control of bodily functions? I know that my daughter has when she has had a really big seizure but the other day she did not appear to...
Created By: stylzz | 08/2006 | 18 Comments
My son recently was switched to Keppra.We are slowly lowering his dose of Phenobarbital.and working towards a 500mg dose of Keppra.I am very anxious about any side effects.HAs anyone had good/bad...
Created By: Karatanoron | 08/2006 | 1 Comment
Hi! I have a daughter who has Epilepsy and the doctors always ask me if it runs in the family. I always say no but I remembered once when I was a kid something strange happened to me. I guess I was...
Created By: buchanant | 08/2006 | 1 Comment
16 year old finally seizure free. However she has been vomiting ALL SUMMER!! They say migraines, I don't agree anyone else experienced this? She has been through it all 12 meds, keto diet and VNS...
Created By: my2boys | 08/2006 | 3 Comments
I have an 8 year old son who was diagnosed last year with BRE. My question is....medication prevents seizures but not electric (seizure?) activity? Also, he has been on the medication for one year,...
Created By: esquivel_vs | 08/2006 | 9 Comments
Are breakthrough seizures a normal part of epilepsy or is it a sign that the medication is not right? Sheila
Created By: Karatanoron | 08/2006 | 8 Comments
Hi all! Emma-Leigh just turned 3 back in July and I am having such a hard time potty training her. She does not know how to pull down her underwear and she consistantly pees in her panties. I am...
Created By: d00r | 08/2006 | 10 Comments
Hi all, My 3-1/2 year old has frequent absence seizures a day. However, she is too young to tell me what she is feeling before (and if possible during) the seizure. That is if she feels anything, or...
Created By: tchaide05 | 08/2006 | 4 Comments
Well, they have scheduled a VEEG for lauren for next monday, She is having so many absence seizures per day that it is not even funny anymore, at least 10 or more a day. I just know that I want...
Created By: esquivel_vs | 08/2006 | 3 Comments
After a week with only one seizure (and been five days since he had one btw), I stretched the umbilical cord and let my son return to school. I even went so far as to pool information on the types of...
Created By: daffa | 08/2006 | 2 Comments
hi..i am mother of 20 month old baby,his got seizure since he's 3 months old,now his took 3 kinds medicine which is could not stop his seizure.my doctor in indonesia suggest for doing Vagus nerve...

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