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Community Forum

Topic: Parents & Caregivers

Created By: TALPEACE | 12/2017 | 1 Comment

Hi. My son is 11 months old, about two months ago (10-14 days after vaccination against measles, he got the vaccine early because we went to Romania and there was an plague) he began to have...

Created By: CBeusch91 | 11/2017 | 1 Comment

Hello, my son has Landau Kleffner Syndrome and he has been through steroids before and we may be starting them again soon. I am wondering if any parents have done essential oils to help decrease...

Created By: fate525 | 11/2017 | 6 Comments

Hi there, I'm looking for some guidance. My son had a seizure 4 weeks ago. I guess it was a grand mal - he lost consciousness, dislocated his shoulder, hit his head. Someone who saw it said...

Created By: Lwid510 | 11/2017 | 6 Comments

I posted several months back. Long story shorter my 8 yo son had an extended EEG recommended by his neuropsychologist. It came back abnormal with several sharp spikes and waves mainly in sleep. He...

Created By: Milfordrefugee | 11/2017 | 10 Comments

My daughter who has a lifelong history of anxiety and had first seizure at 18 yrs old in August 2017 and again 2 months later at 19 yrs old in October.

First seizure diagnosed as Tonic...

Created By: kgeverett | 11/2017 | 2 Comments

My daughter suffered a TBI when she was four years old. Seven years post TBI, she suffered her first seizure. Her neurologist said it was "puberty on top of old injury" and put her on...

Created By: Lula_59ff98dc18663 | 11/2017 | 2 Comments

My son is almost 12yo and he was diagnosed with epilepsy last night and I’m reaching out for assistance or guidelines with this new challenge we have faced. This was his 3rd seizure in the past...

Created By: Smbergeron | 11/2017 | 2 Comments

Hello everyone, I'm new here and so lost and confused. As a child, I had 3 febrile seizures. My oldest, who is almost 8, had 11 febrile seizures between the ages of 13 months and 5 years old...

Created By: pete2018 | 11/2017 | 1 Comment

Hi All,

Our son is 2.5 yrs old. He has always been good with cognition and speech. His vocabulary has always been good. During his birth process he was under stress for sometime and then...

Created By: tkdecoste | 10/2017 | 4 Comments

Our youngest daughter (13) recently had a seizure and was diagnosed shortly after with genetic epileptic with post pubescent onset. She currently is on a progression with her medication at 50mg...

Created By: Suse850 | 10/2017 | 10 Comments

A few months ago, my daughter (8) had a sleep study to test for possible sleep apnea. As a result of that test, we were told she had several spikes in her brain while she was sleeping and we were...

Created By: Anjee0802 | 10/2017 | 15 Comments

My 16 year old granddaughter had a gran mal seizure two years ago and suffered some memory loss and continued strange sensations and temporary disconnects but the early EEG was normal. Now she is...

Created By: RTLEmum | 10/2017 | 6 Comments

My child is getting older (teenager) and his epilepsy is for the moment controlled. I am finding it hard to accept that he is doing so much better that I can actually loosen the reins a bit. But I...

Created By: Pscd | 10/2017 | 1 Comment

I've heard and read alot saying that ginkgo biloba can actually increase the risk of seizures, my daughter also has adhd and i was hoping to try this, I plan to discuss it with my doctor but...

Created By: Pscd | 10/2017 | 1 Comment

Hello there! I'm a proud mother of a bright and happy 11 year old who was diagnosed with epilepsy around 5, 6 years old. The first medication choice was tegratol which she had an allergic...

Created By: Shakanaj88 | 10/2017 | 3 Comments

My 10 y.o son started having seizures again back in Feb 2016 after taking Tamiflu. He has localized seizures that occur early AM 5-7 and sometimes wakes up with left sided weakness. The doctor...

Created By: MommaRobinKy | 10/2017 | 1 Comment

My name is Robin and my 15 year old daughter is Madison. She was diagnosed with a Convulsive Seizure Disorder in June of 2017. We are still undergoing testing and doctor appointments.

She...

Created By: Nael.mom | 10/2017 | 7 Comments

My little guy is 18 months old as of 10-7-17 and he started having seizures out of nowhere late September sorry I don’t know the exact date. He is teething (molers)and as a mommy I think that...

Created By: Keshiap87 | 10/2017 | 1 Comment

My son is 7, going on 8 and he's been taking Zarontin for almost three years. Of course we've seen side effects but I think i'm more worried about him slowing coming off the...

Created By: pete2018 | 10/2017 | 4 Comments

Hello

Our son is 21/2 yr old. We gave him all his vaccines but wanted to delay MMR and ChickenPox. Now we want to get him into Day Care but they need all the vaccines. With new CA law,...

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