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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Parents & Caregivers

Created By: tabitha_tad | 12/2018 | 1 Comment

My daughter has been taking Keppra since January. When she initially began Keppra, and we had our 3 month appt with the neuro, we asked the neuro if Keppra can cause stomach pain in children. She...

Created By: sy5 | 12/2018 | 7 Comments

Hi there! I just joined this forum and was curious if any of you had experience with Keppra? My son had 3 seizures back to back when he was 3 years old and has been on Keppra for 17 months. He...

Created By: poonam_sspm | 11/2018 | 1 Comment

Anybody has an idea about Epilepsy predictor wearable gadgets?

Created By: oliviam.b8 | 11/2018 | 2 Comments

Hi everyone,
I am currently in my junior year of college, attending Lehigh University. I am taking an Entrepreneurship class, and chose to focus my final project on designing a discreet...

Created By: traceyjt67 | 11/2018 | 1 Comment

I was wondering if any other parent/caregiver has been dealing with a child on the autism spectrum who is having aggression associated with their child's seizures. We have hit puberty, and...

Created By: anminer | 11/2018 | 1 Comment

Hello,

I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at straws to find out what is wrong with...

Created By: carriemceachin | 11/2018 | 2 Comments

Topic:
Diagnostic Dilemmas and Testing
Hey everyone. I could really use some advice on what to do for my two-year-old son. It’s a long story, so here we go: a couple months ago my son...

Created By: Elljen | 11/2018 | 0 Comments

My son is on day one of a 72-hour ambulatory VEEG. He's hanging in there, but not happy and feels like it's going to be a LONG 72 hours. Any tips for dealing with this? So far the...

Created By: mdmom914 | 11/2018 | 4 Comments

Hi-
My daughter is 8 and was diagnosed with absence seizures yesterday. It was only a week ago I was sure something more than daydreaming was happening so I am feeling very overwhelmed with...

Created By: VictoriasMommy28 | 10/2018 | 3 Comments

Hello,
My daughter has intractable epilepsy. She is currently on Vimpat, Felbamate, Phenobarbital, and Clonazepam.
We have noticed after felbamate she is very hyperactive, and does not...

Created By: Tinafish | 10/2018 | 4 Comments

My 8 year old son was diagnosed with epilepsy at age 2. He has nocturnal epilepsy. But has been doing well. His teacher called yesterday saying he has not been acting him self the last two days,...

Created By: Nickvinci3 | 10/2018 | 3 Comments

Hey everybody my 5 year old daughter has been struggling since birth with seizures since a birth injury of hypoxia causing brain damage, developmental delays, seizures, and horrible behavior...

Created By: Pattyann3 | 10/2018 | 1 Comment

Our son, 14, was diagnosed with tonic clinic seizures that accure mostly in his sleep. Has anyone tried monitoring devices? We are looking at a few for the Apple Watch that will alert if there...

Created By: Maggies Mom | 09/2018 | 0 Comments

Hi All
My Maggie has been having seizures off and on for at least a year. We have no official diagnosis and some docs have said shes faking it. Shes 3. She was seen by a chiropractor who...

Created By: Jade#20 | 09/2018 | 3 Comments

Where to start, my daughter age 14 has been recently diagnosed with IGE. Idiopathic Generalized Epilepsy. So recent that her first tonic-clonic seizure was August 11th. The neurologist felt...

Created By: mvm1185 | 09/2018 | 3 Comments

Hi everyone this is my first time on this chat, my daughter was diagnosed with Absance Seizures last year she is 8 years old. She started off on Ethosuximide for several months and then prescribed...

Created By: ktetreault1 | 09/2018 | 0 Comments

Hello Everyone!
I have recently created a website for people with Epilepsy, Photosensitivity, and sensory disabilities. It was created to provide people with a better understanding of what...

Created By: MinnesotaMom | 09/2018 | 4 Comments

Hi, I have a 21 year old college daughter who had her last seizure 2 weeks ago. After her seizures, the law is to not drive until three months after. After this last one though, she has been...

Created By: Danalou327 | 08/2018 | 1 Comment

Hi. I am new here, and new to epilepsy in general. Earlier this year, my 19 year old daughter was diagnosed with JME. It probably surfaced about 3 years earlier. A couple years ago, she randomly...

Created By: Mhinojosa12 | 08/2018 | 0 Comments

I have some questions!

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