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Community Forum

Topic: Parents & Caregivers

Created By: Flower Roberts | 03/2019 | 1 Comment

We need input from mothers of children who have children with epilepsy. My daughter has had epilepsy since she was a baby. Now she is 26. We have a blog and are working on a book about her life....

Created By: Sunmama304 | 03/2019 | 3 Comments

My 12 year old son was diagnosed with focal onset aware in December. They put him on Keppra and he didn't handle that well. He was switched to Trileptal and it has made a huge difference. At...

Created By: Loren | 03/2019 | 4 Comments

My 16 month old is on 100 mg of Keppra twice a day plus Vitamin B6 once a day. He started on this right after he turned one year old. He had seizures at birth for 3 days (went home on...

Created By: Kpursell | 03/2019 | 4 Comments

I am looking for help and reassurance. My four year had 2 febrile seizures 2 years apart. The second was different than the so I thought best to get neuro evaluation. After the second seizure I...

Created By: KaylaBlu2019 | 03/2019 | 5 Comments

Hi! This is my first post, and I'm new to learning about Epilepsy (although have done a lot of research). My husband is 31 and just started having seizures on Dec 26, 2018. He had two grand...

Created By: Erinna1 | 02/2019 | 2 Comments

Hi All,

Our 13yo daughter just had her first seizures a couple of days ago. She was admitted to the hospital but couldn't determine what type it was because she didn't have one...

Created By: Kakanik | 02/2019 | 6 Comments

Hello everyone
Thank you inadvance for your help and suggestions. My daughter (8 yr old) started having complex partial seizures 9 months ago. She is on Vimpat (225mgs/day) right now and she...

Created By: rebecca1975 | 02/2019 | 4 Comments

Hi. I'm new here. We live in MD. My daughter started having absence seizures I don't know exactly how long ago. She reported them while we were at the neuro's for migraines. Had EEG...

Created By: aloha51703 | 02/2019 | 3 Comments

Hello,
My daughter is 9 years old and has ADHD and mild autism. Last week her school called me and said she wasn't acting like herself, was disruptive in class, and was refusing to...

Created By: TinaMG43 | 02/2019 | 5 Comments

Hello,

My son is 16, he had first seizure at school about 3 1/2 weeks ago, he was in cafeteria sitting at table watching his phone and fell to the floor convulsing. He hit his face on floor...

Created By: IWantMyIndependence | 01/2019 | 1 Comment

Hello, I'm new this site but not new to seizures. I grew up with them for more than half my life now.
My question comes from the fact that my mom has recently started talking very...

Created By: epilepsyresearcher1 | 01/2019 | 1 Comment

I'm a researcher looking into ways that apps could be used to improve seizure control in children. I'm looking into a chapter-based game in which you unlock levels based on how well you...

Created By: Mmadison | 01/2019 | 0 Comments

My seven year old has been on depakote for 2 weeks now and I’m not sure I’m liking some of the side effects. If you’ve had a child what were some of the side effects you’ve noticed?

Created By: Hazel_33 | 01/2019 | 4 Comments

Hello, I'm new to this site. But desperately need some advice from someone who understands what in going through. My 14 year old son was just diagnosed with Epilepsy. He had his 2nd seizure...

Created By: NJGiants | 01/2019 | 1 Comment

My daughter was diagnosed with generalized seizure 3 years ago. She had a few grand mal ones. One year ago we were in the car in the driveway. I turned to the back and my daughter was just staring...

Created By: eanderson95 | 01/2019 | 0 Comments

Hello, I am new to this group. I have an 18 year old son who started have tonic clonic seizures when he was 15. He only had them once every couple of months. A year ago he had two different...

Created By: Megdella | 01/2019 | 1 Comment

My 5 year old son was diagnosed a day ago. He’s only had one known seizure and it lasted 15 minutes. My question is this: Since the seizure he’s urinating twice as much as normal if not more. Is...

Created By: Worried Parent | 01/2019 | 6 Comments

First timer - 8 yr old daughter with BCECTS (aka BRE - benign rolandic). Just diagnosed and we have some practical parenting questions. Not sure where to post them to best get answers. one of...

Created By: maylin | 12/2018 | 4 Comments

Hi my 2 months old baby was diagnosed with epilepsy at 5 weeks. She is being in Keppra since then and she is doing fine 0.8ml twice a day she weight 9 pounds. MRI was fine, they are doing a series...

Created By: arp84 | 12/2018 | 0 Comments

Hello! We adopted our daughter at birth, she is now 13 months old. The day after her 1st birthday party she had what we now know was a partial seizure. She started staring to the left, threw up...

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