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Community Forum

Topic: Parents & Caregivers

Created By: gmav | 10/2019 | 3 Comments

My 7 year old grandson was just diagnosed with general epilepsy following a three-night EEG. He had been taking Keppra a couple of months ago but had a seizure with that. He is now is taking...

Created By: Chrissie3309 | 09/2019 | 2 Comments

So I have a 4 year daughter and for past 6 months we noticed she was having a staring moments where she couldn’t be snapped out of even though they only lasted few moments they became more...

Created By: Dmurthy | 08/2019 | 2 Comments

Our two-year-old had 5 febrile seizures (tonic clonic) over the course of 4 months. Normal EEG and started on Keppra. Seizure free for three months, and then recently started one “frozen...

Created By: purple4myson | 08/2019 | 4 Comments

My son has had epilepsy for 5 yrs now; he is 14 now. Each year we get close towards him making it to being seizure free for at least a year and then in the month of August he would have one. The...

Created By: Ethan0314 | 07/2019 | 0 Comments

Hi- does anyone have a child with this or any experiences they can share with me?

Created By: eveline.m | 07/2019 | 2 Comments

My 9 month old had a tonic clonic seizure when she was 3 months. She had another one when she was 8 months. She also does a sort of shiver on and off. When she does it, she does it all day, when...

Created By: Momofautismandepilepsyboy | 07/2019 | 2 Comments

My son has seizures. Hes had 2 grandmals and lots of absence. He is on depakote and keppra. We are starting to wean him off keppra. But over the last week he has been tired to the point of napping...

Created By: Michaella | 07/2019 | 1 Comment

I hope this does not come off as inappropriate, but I am actually working on behalf of a consulting firm that wants to meet with epilepsy patients or their caregivers in DC. Their goal is to learn...

Created By: jrsymike | 07/2019 | 0 Comments

anybody have laser ablation and had health insurance that covered procedure if not completely to some extent. im having a hard time finding any insurance company willing to cover procedure

Created By: Lloyd_5d1fbbeda9358 | 07/2019 | 2 Comments

My Son was diagnose with seizure when he was about 7 months old. But he had it since he was about 3 days old, but we did not know. Here in Jamaica my son was given different diagnose. He was...

Created By: Cofran8487 | 05/2019 | 3 Comments
Created By: ssinnett11 | 05/2019 | 1 Comment

My son started having seizures in March at 7 months old. We went to the ER where they took blood and completed a CAT scan - both came back normal. Exactly one month later, he had another episode....

Created By: Amy_58d46477a2d24 | 05/2019 | 1 Comment

Hi all, my son was diagnosed 9yrs ago and been well controlled for about 5yrs. I have been a mess! I know this is all normal emotions of your child growing, changing and possibly moving away. But...

Created By: Mjovan | 05/2019 | 6 Comments

My 22 month old had a tonic clinic seizure and was hospitalized for 2 days. He tested positive for the cold virus so neuro felt the seizure was a result of the virus. Being aware of what to look...

Created By: MegLane | 05/2019 | 1 Comment

My younger brother, James, (27) had his first grand mal seizure at the age of 18. At the time, I lived at home with him and my mother, I am now age 31. Fear surrounded seizures from the first...

Created By: clh2246 | 04/2019 | 4 Comments

My 6 year old son was just diagnosed with epilepsy. He had a tonic clonic seizure 2.5 years ago. We never saw another seizure until about 2 months ago. He had 3 absence seizures over a two week...

Created By: Ingrid H | 04/2019 | 6 Comments

Hi! I'm new to this and I usually don't go onto forums to share personal things, but I'm at my wit's end. My husband is 32 and never had seizures until a year and a half ago,...

Created By: Chillville13 | 04/2019 | 1 Comment

Does anyone have any recommendations for CBD oil with no THC to treat seizures? My partner is pregnant and has had to go off all their seizure meds but their doctor said a roll on non ingested...

Created By: Amy Kate | 03/2019 | 1 Comment

Looking for friends who share concern about how to transition our still seizing kids into independence. Wondering about some kind of shared housing where family members might rotate in to monitor...

Created By: Mmadison | 03/2019 | 1 Comment

Hello,

We are working w/ my daughters school on a 504 plan for her absence seizures. Pretty much her teacher has never notice them at school (my daughter is not one that requires a lot of...

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