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Community Forum

Topic: Parents & Caregivers

Created By: Tommysmom | 01/2006 | 30 Comments

My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack...

Created By: KelleyV | 01/2006 | 15 Comments

My son is 15 and just started Lamictal. (First med treatment/started seizures approx 1 month ago)

I have been reading a lot re: Lamictal and Epilepsy online and have not run across anyone...

Created By: tnpeach | 01/2006 | 1 Comment

Hi, I was recently diagnosed with epilepsy. My seizures occur mainly in my sleep. But then I was told it could be hereditary. Anyone have experience with this? My oldest son had what we were...

Created By: colette | 01/2006 | 1 Comment

My daughter was diagnosed with epilepsy last fall. The doctors had previously diagnosed her with depression and we dealt with that for a little over a year. It took almost a year to diagnose her...

Created By: Haileighs dad | 01/2006 | 4 Comments

Hi I’m new here, looks like a great place for information. My 5 and a half year old daughter has had petite mal seizures since she was 3. She has been on Zarontin ever since. Her seizures have...

Created By: sweetabner | 01/2006 | 15 Comments

HI, I'm new to this site and i just had some questions and some concerns.Im going to try to make this short but my son is 6 he will be 7 in a few days.In November we started him on ritalin because...

Created By: Slewis | 01/2006 | 4 Comments

Just before Christmas my 6 year old son had an apparent seizure. He was sitting in his AWANA class. His head was on his desk & he was drooling. At first the teacher thought he was spitting...

Created By: JenCA | 01/2006 | 29 Comments

Hi,

I'm new here and still working with a preliminary diagnosis for my 6yo son. His neurologist says he's having complex partial seizures and we're scheduled for an EEG tomorrow, and an...

Created By: wmott1122 | 01/2006 | 15 Comments

Does anyone here have a teen who has tonic clonic seizures and therefore requires Diastat at school? If so, do you have a seizure protocol/plan of action on when and how to use it at school, and...

Created By: raivensmom | 01/2006 | 7 Comments

It's like my mind is always in over drive.
I can't help but to worry, some say try 2 forget about it (easier said than done). As a parent of a child with any kind of health complications I...

Created By: annemom | 01/2006 | 15 Comments

Hello all, I'm hoping someone can help me sort out my confusion and worries. My name is Anne, and my sweet, bright, handsome son (about to turn 9 this month) has had quite a strange year (in 2005...

Created By: mamato2kids | 01/2006 | 19 Comments

Hello...I am new to this site...my son may have petite mal seizures....since finding out that this may be true, we have been noticing a few things recently....the one I have that is most standing...

Created By: jjjlow3 | 12/2005 | 11 Comments

My five year old son started having seizures about 7 months ago. After a couple med trials, we have them somewhat stable (they aren't as long or severe). We have noticed that all of his seizures...

Created By: raivensmom | 12/2005 | 10 Comments

I'm the mother of a child who has battled seizures since she was 10 months old. At first I didn't noticed the signs of a seizure oncoming. But as time moves on & the older she gets, it seems...

Created By: bvbuchanan | 12/2005 | 0 Comments

My 16-year-old daughter has been lethargic and feeling very poorly for 7 weeks. Sleeps 15 hours per day and unable to attend high school. Doctor thinks her body has been unable to process her...

Created By: schuffert | 12/2005 | 11 Comments

Hi, I am looking for any advice out there. My 7 month old daughter had a full body seizure approx 1 month ago. She was taken to the children's hospital via ambulance. The seizure lasted for 19...

Created By: Dr Vara | 12/2005 | 3 Comments

I am a physician with no previous expertise in epilepsy. Here, I am only given a personal testimony as a parent and not as a clinician. I am making no claims, neither promoting a specific approach...

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