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Community Forum

Topic: Parents & Caregivers

Created By: mom2tnt | 05/2006 | 4 Comments
hi all we are some what new to this my son whos 9 was dinosed in nov 05 . we stated lamictal and did very well on it for about amost 5 mo than came the rash , so then we started the depakote...
Created By: ekoorb | 04/2006 | 3 Comments
My 5 year old is going to camp this summer. Any advice or discussions to have with the camp director regarding epilepsy?
Created By: c.reader | 04/2006 | 0 Comments
thanx Barbie for your imput. my son sees a pediatric neurologist, however he has seen the nurse practioner most of the time. just found out today that the np will be leaving after this week. i know...
Created By: c.reader | 04/2006 | 2 Comments
hi all, it has been awhile. i am trying to help my son and everthing his dr tries doesn't work. time for a second opinion? my son never wants to talk about his seizures, so it is really hard to tell...
Created By: Jo2 | 04/2006 | 4 Comments
I'm a newbie...
Created By: fortune | 04/2006 | 4 Comments
hi ya all,i need some help here.my son is epileletic and he is almost three years old but he cannot construct asentence.he only utters just few words.he's on tegretol,rivotril,pb.could this be...
Created By: judymae | 04/2006 | 1 Comment
what doe this actually mean,mt grand daughter has been diagnose with this she had several febrile seizures before age 5 and now shes 7 and a month ago she had a seizure eeg confirmed misfireing as...
Created By: Missyat | 04/2006 | 0 Comments
It is that time again, EFNW (Epilepsy Foundation North West) is doing a walk and I have created a ''team'' Check out the Website and give some creative input...
Created By: ekoorb | 04/2006 | 3 Comments
My daughter was diagnosed with epilepsy in the last 3 months. I was amazed to learn that all the definition is is 2 or more seizures. The term epilepsy has such a stigma to it. When I asked my...
Created By: paisleysmama | 04/2006 | 3 Comments
hi my 15 mth old daughter was just recently diagnosed with epilepsy..they arent saying if its a specific kind..im not sure if she should ahve a label..but they say it isnt grand mal or petit mal.....
Created By: ac420ec | 04/2006 | 1 Comment
Hi -- I just found this forum . My daughter has been diagnosed w/ frontal lobe epilepsy (nocturnal) after 2 years of being misdiagnosed with a sleep disorder. Its good to finally have some answers...
Created By: Karatanoron | 04/2006 | 6 Comments
My daughter is 2 1/2 y.o. and is taking Frisium and Lamactal ( I am sure I am spelling that one wrong). Ever since she started taking Lamactal, she has been having a really hard time sleeping. She...
Created By: alismom | 04/2006 | 8 Comments
Has anyone experienced they or their child having seizure activity increase while engaged in sports or physical activity or while being very hot from exercise? My 9 year old daughter has mostly...
Created By: ekoorb | 04/2006 | 17 Comments
My 5 year old was recently diagnosed with Panayiotopolous Syndrom/Benign Occipital Epilepsy. For anyone else with the same diagnosis, have your seizures ever appeared during the day? My daughter's...
Created By: ytirahc | 04/2006 | 7 Comments
I CURRENTLY TAKE DILANTION 3X PER DAY...
Created By: ekoorb | 04/2006 | 2 Comments
Has anyone's child had one of these? Is it stressful on the child?
Created By: Karatanoron | 04/2006 | 6 Comments
Hi! In January my daughter was diagnosed with having Epilepsy. I was wondering what the normal amount of seizures is. I mean she had four today. Is that a lot? I have no way to compare. Sounds crazy...
Created By: lestey | 04/2006 | 3 Comments
My daughter is having these episodes where she shakes uncontrollably. the shaking is sort of like a tremor. It usually begins in her legs then travels up her body to her head and affects her jaw. It...
Created By: niksmom | 04/2006 | 3 Comments
My 2 y.o. son is on lamicatal--just started a month ago and we are in the slow ramp-up phase. My son is now on 10mg/day (he only weighs 26 pounds) and we are increasing 5mg per two weeks until we hit...
Created By: LIGHT1 | 04/2006 | 0 Comments
Hi, Please advise I have a 2 year old little girl with multiple problems one of which the doctors think is epilepsy. She has been referred for tests etc - (not sure how long that will take. Anyway...

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