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Community Forum

Topic: Parents & Caregivers

Created By: SarahMooney2217 | 07/2020 | 0 Comments

Hi all,

New here, my Dad lives with epilepsy. Last August he ended up having a tonic chronic seizure for the first time in 11 years. We thought we adjusted the dosage properly for his...

Created By: fallingangels1@hotmail.com | 06/2020 | 0 Comments

I wrote a short book. hoping to sell some copies and get a sense of achievement. I sat down and wrote my heart out. Unfortunately it isn't selling. Probably because its so depressing. I don...

Created By: Erika_VN | 06/2020 | 7 Comments

We have a new diagnosis for my 6 month old grandson, hypo prolinemia. It's type 1, very rare, and apparently causing his seizures. I don't see it on this website's list of...

Created By: ChrisS22 | 05/2020 | 2 Comments

Hello my brother just had his first seizure today! They discharged him from the hospital and as a family, we are worried this may be too soon. We also want to know if there are any support groups...

Created By: Erika_VN | 05/2020 | 2 Comments

How long might it take to find an effective anti-seizure medicine for an infant? We're on our 2nd med, since baby's first seizure about 2 months ago. Is it possibly months, or possibly...

Created By: Erika_VN | 05/2020 | 2 Comments

I'm grandmother to a 5-month old with epilepsy. The parents use loud hand clapping to help bring the baby out of his seizures. Is anyone else doing this? Is it effective? I'm searching...

Created By: ssmith090807 | 05/2020 | 2 Comments

I am hoping that I am not alone in wondering how safe will our children be once returned into a classroom setting, I have read many articles saying that epilepsy and seizures are not considered...

Created By: epilepsymom17 | 05/2020 | 1 Comment

My daughter has epilepsy. She is 2 and has slept with us since she was born. We have discussed transitioning her to a toddler bed, but we worry we wont know if she has a seizure. Where does your...

Created By: Sabrina99 | 04/2020 | 1 Comment

Looking for input from other BRE parents, My kid is drooling a lot during the day, especially when he's had a hard time sleeping the night before. No other noticeable seizure symptoms....

Created By: Lisa25_58f1d71391d87 | 04/2020 | 6 Comments

Has any one ever notice that a person who has just had seizure or during a Seizure has a certain smell about them. My son has epilepsy and I am continually smelling a certain smell just after his...

Created By: Rajeevaditya | 04/2020 | 1 Comment

MRI Shows heterotopia anb small cerbellum. Has seizures since 6 months of age. On two medicines Levitrasam and clobazam. Does not sit or crawl. Does not speak. Intelligence is not developed....

Created By: JFrederick | 03/2020 | 2 Comments

My HS Senior typically gets seizures in the first three months of the year. She has been so anxious about getting that she has been afraid to go to sleep. This morning she woke up after 10 am...

Created By: Ashsaurusrex | 03/2020 | 1 Comment

Hello all,
My two year old son was recently diagnosed with epilepsy, so far we've only witnessed absence seizures. Because epilepsy runs on both sides of the family, she doesn't...

Created By: Katarzyna | 02/2020 | 2 Comments

Hi everyone i have 9 year old son diagnosed with partial complex epilepsy 5years ego.Over the summer he have increase in seizures. He was put on vit D 1000mg×1 and vitB6 50mg×1 . His seizures...

Created By: Bellafeet | 02/2020 | 2 Comments

My daughter was diagnosed at age 8 was seizure free for two years on keppra x2 a day since and had a grand mal yesterday at age 10 feeling overwhelmed and anxious about the future she was so...

Created By: mjharrison_5e50a11a33f7f | 02/2020 | 4 Comments

My 11 year old son was diagnosed in January. How do the parents cope with this? I am in constant fear & stress over my child's safety. I constantly question "is he about to have...

Created By: Den_5e46a9d9b7c6e | 02/2020 | 2 Comments

Hello - I am a parent of an adult son whose has had epilepsy since he was six years old. All his life he exhibited behavioral problems. The question in my mind has always been how much is he in...

Created By: Jessica.k.1986 | 02/2020 | 2 Comments

My daughter stops breathing during a seizure. She's 11 and very recently got diagnosed. She's also asthmatic so we mistook her first couple seizures for really strong asthma attacks...

Created By: Wenglish12 | 02/2020 | 1 Comment

My 15 year old son is making the switch from1500mg of depakote to 300mg zonisamide. We are in week 1 of 3 for this transition. The reason for the change are extreme depression while on depakote....

Created By: JLS28 | 02/2020 | 2 Comments

Hi - new here and a little bit overwhelmed having just received an epilepsy diagnosis for my baby girl. About two weeks ago i started noticing seizure like episodes where my daughters eyes would...

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