Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Young adult son and work / daily activities

Tue, 10/15/2019 - 09:09
Hello, I'd love to hear from other parents and caregivers of young adults who have epilepsy, and whether or not they work outside the home, or do any sort of volunteering just to have something to do with their lives. My son is 26, was diagnosed at age 20 with medically-resistant, bi-temporal focal epilepsy. It has gotten progressively worse over the 6 years. He has an RNS implant device now - for almost a year. He is on medicine and still has auras and sometimes small seizures. Sometimes daily, sometimes a few times a week. He stopped working in early 2016. He can't drive and his life has become very limited. I'm wondering if you have a similar situation, and do your young adult children work or do anything to get them out of the house? I'd love to hear what you've done. I've suggested many things to my son, but he doesn't want to do anything, he's afraid of having a seizure while at work, and the medicines really mess with his head and mindset, so he's not up for much. Thanks.

Comments

Hi, Thanks so much for

Submitted by Anonymous on Wed, 2019-10-16 - 08:24
Hi, Thanks so much for posting and we understand your concerns. One of the most important things to help your son live with epilepsy is to find a support network. Learn more about community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsA key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about resources that are available & when help is needed. Learn more about public transportation resources, here: https://www.epilepsy.com/living-epilepsy/driving-and-transportation/transportationThere are many volunteer opportunities available for your son to get involved in by visiting: https://www.epilepsy.com/make-difference/get-involvedand by contacting your local Epilepsy Foundation. In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Explore the employment section of our website, to help manage the impact of epilepsy on work, learn more about legal rights and reasonable accommodations: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowFor additional information and resources regarding employment, please visit: https://www.ssa.gov/work/https://askjan.org/https://www.gettinghired.com/Additionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline  

Thanks for sharing your

Submitted by Rdb on Thu, 2019-10-17 - 17:42
Thanks for sharing your resources. I found the "Twenty-20s" group through one of the links and have shared it with my son. 

Hello, your son's situation

Submitted by brunoalonso98@hotmail.com on Thu, 2019-10-31 - 22:05
Hello, your son's situation is very similar to mine. I cant work so what I am doing now is dedicating all my time and strength on natural healing and it's giving me results that soon enough will be seen by everyone. I come here with the intention of spreading this info that works on every human and it only costs your time and patience.  Good luck

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.