Toddler daughter

There are a few things to know...Seizures can change over time as the brain changes, hormones change, different types of epilepsy may have changes over time that many patients experience, etc...A fair percentage of people have epilepsy that is resistant to treatment with medication, can be common with certain genetic epilepsies or epilepsies where they can identify an issue on imaging.A few people just don’t respond well to a medication and could see increased seizures with a medication. They usually can’t tell in advance who will respond a certain way.Report anything strange, e.g. those frozen times sound like seizures. There are different kinds of seizures that can present like that, complex partials and absence but the complex partials usually last 20sec or longer (without meds) and absence usually shorter, even such that one can miss kids having hundreds per day. So if you are working with a regular neurologist and things keep trending more difficult, switch to a pediatric epileptologist. An epileptologist is a neurologist with a lot more training in epilepsy. Hope you are already working with one. Work this through with your doctor but understand that it can take a while to determine what’s going on or what the best course of action is when dealing with epilepsy.

Hi Dmurthy, Thanks so much for posting, we understand this can be very scary and confusing to experience. We cannot determine if these episodes you describe are seizure activity or a possible side effect of her medication. It's important that you all continue follow-up with your daughter’s healthcare team to express your concerns and discuss these episodes further, and any changes in side effects, seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for her. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf .          Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures & find self-management tools. Learn more, by visiting:  https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy For assistance finding an epilepsy specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist www.naec-epilepsy.org Additionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,  provide referrals and additional support.epilepsy.com/helpline   My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, recording her medical history, medications, side effects, moods, triggers, , which can be shared with her healthcare team. For more information regarding Keppra and side effects,visit: https://www.epilepsy.com/medications/levetiracetamhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects       It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.  https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf.The Wellness Institute: epilepsy.com/wellness  ,provides tools and strategies to better assist your loved one and support you in your important role. For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools