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status epilepticus in 5 year old - any info appreciated!!

Hello eveyone. My five year old daughter was just discharged from the hopital after a two day stay. She had her second seizure (that we have witnessed) the other night. Like her first seizure, she had just fallen asleep on the living room couch. (the fist seizure was also a grand mal, but only lasted 2-3 minutes) This seizure was also a grand mal and lasted 16 minutes. I called an ambulance about 3.5 minutes into the seizure. She was still seizing when they began tranporting her to the hospital 13-15 minutes later. While in the ambulance she vomited toward the end of the seizure. She was admitted and had a CT of the brain, an MRI and an EEG. The CT and MRI showed a small cyst and a calcium deposit in her brain but the neurologist did not seem concerned about either and said they were not in an area of the brain that would cause a seizure. The EEG however was abnormal as it showed irregular activity in all three phases (sleep, accelerated heart rate and use of strobe light) The irregularity was much stronger during the sleep phase. They started her on Trileptal 300mg 2x daily. We have her first follow up neurology appointment on thursday. These are my questions and concerns: I obviously haven't slept much since she's been home as I'm afraid I may sleep through another seizure. The last one was so very long and it scares me to think what could have happened if she were in her bed upstairs (where she sleeps 99% of the time) and had vomited during the seizure.Is vomiting common during a seizure or was it just because hers went on for such a long period of time? She is now sleeping in the room with myself and my husband until we see how she does over the next few weeks. However I still worry about waking up if she has another one as it was not overly noisey. The seizure itself involved her whole body ( head and eyes fixated to the left, left arm extended with hand curled inward, right curled against chest and both legs straight and jerking. However she did seem to hear us when we were talking to her. When we asked " Can you hear me , Mikaela?" or "Mikaela, are you okay?" she attempted to answer us although it was difficult to understand her. Is that normal to any ones knowledge? As I've been researching seizures and epilepsy, her situation does not seem to fit the norm (if there is such a thing). Looking back on it now I suppose its safe to assume that she's probably had other seizure while sleeping as there have been many days over the past year or two that we have been baffled as to why our early riser slept for 12 or 13 hours on occasion. We always chalked it up to he comming down with a bug or a grwth spurt or something. We would check on her - no fever or anything, she woke breifly but always wanted to go back to sleep. Now I figure it was most likely a seizure that had caused the sleepiness. Any information or suggestions would be greatly appreciated!!


Re: status epilepticus in 5 year old - any info appreciated!!

That sounds very similar to my childs first seizure (that we were aware of) with the forced head turning and leg jerking,and somewhat preserved responsiveness. She was 5 at the time. After that she began to have less severe complex partial seizures at night that involved fear, automatisms, wandering, etc. I think the first one we saw generalized. She was misdiagnosed with a sleep disorder and they put the first seizure down as a febrile (although her temp was only 101,she had an ear infection) Nearly 2 1/2 years and 3 eegs and 1 sleep study later the epi we took her too for a second opinion diagnosed her with frontal lobe seizures (which are hard to pick up on eeg). She has minor motor seizures about every 15 minutes all night. Only the longer ones registered on the eeg. She is now on trileptal 450 mg 2x a day. We have seen an improvement but not a complete cessation of the seizures yet. We got a video monitor for her room. It was under $50 (on amazon) Its wireless and the receiver plugs right into the tv in our room. With the picture in picture function we can watch movies, etc. while still having her in the corner of the screen and notice any major movement. If you decide to get one make sure it has a low light function, ours is Lorex brand and gives a clear picture even with virtually no light in her room. Its very scary to have your child go through this, I hope the meds work for her. Have they told you what type of seizures she has, a location, or syndrome? Good Luck!

Re: Re: status epilepticus in 5 year old - any info appreciated!

Thank You for the response! The video monitor is a great idea - wasn't even aware that they could plug into the television! We only had the one eeg while in the hospital which the neurologist said had ongoing abnormal electrical activity that intesified during the sleep phase of the test. He did not mention a specific location, type of seizure or syndrome. We go to the neurologist tommarow, so I will ask then. Will they be able to tell any of that by the EEG? It was not a 24 hour EEG. The emergency tech's who took her in the amulance just said she was having a grand mal seizure - nothing more specific than that. She was still seizing in the ambulance - so they were able to witness the actual seizure.

Re: status epilepticus in 5 year old - any info appreciated!!

I am so sorry to read about your frightening night with your daughter. It made me sad because it brought up so many emotions to our recent experience in March. My five year old daughter also was recently diagnosed with seizure disorder. She also has had them during sleep. When you get a chance, look up Panayiotopoulos syndrome (or Benign Occipital Childhood Epilepsy). This may not relate to your daughter and while I am clearly a lay person in this area, this type mostly occurs at night, it involves vomitting,eye deviate to one side, it lasts longer than normal seizures and the child usually afterwards sleeps for hours, wakes up normal. Also, the most common onset is between 4 and 5 years old and is more common in girls. This may not be your child but any information may help.

The main seizure I noticed for my daughter was she sat up and started coughing and I thought she was going to vomit. When I tried to talk to her she was nonresponsive but her eyes were open. This lasted at least 7 minutes. We completely freaked out and called an ambulance. She was fine at the hospital, came home, slept several hours and has no recollection of the incident.

Our daughter's seizures were different but certain aspects that you described could be similar.

Also, make sure you ask about the emergency med/suppository that parent can keep around if the seizure goes longer than 5 minutes.

Also, if this type sounds similar to you, the good news it is benign and the prognosis is really good because all the kids diagnosed with this syndrome out grow it.

Re: Re: status epilepticus in 5 year old - any info appreciated!

Thank you for the information - I will definately look up the syndrome. The neurologist already prescribed the emergency suupsitory - Diastat. Hope your daghter is doing well. Thanks again for the reply!

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I was wondering how your daughter is doing. Did the doctors give you any diagnosis as to a type of epilepsy?

Re: status epilepticus in 5 year old - any info appreciated!!

We have had a very similar experience with my daughter when she was 5 year old. She spent three days in the ICU. We have been dealing with epilepsy for over a year now. My daughter has failed three medications Dilatin, Trileptal, Keppra and is on a maxium dose of Lamictal she is still seizing. The Dr. says it may be Panaitoipolouus syndrome (I am a bad speller)and that her seizures may be outgrown.

Right now we are having a hard time deciding what is worse the seizures or the medication they give her to stop the seizures. With every seizure and every failed medication, hope of seizures being outgrown seems to illude us.
I hope you have a better experience.
Please let me know if you find anything to help you worry less, get more sleep.

Re: Re: status epilepticus in 5 year old - any info appreciated!

Mel- My daughter, also 5, was also diagnosed with the Panayiotopoulos syndrome (or Benign Occipital Childhood Epilepsy). How is she doing? Are her seizures mostly during sleep? Was she in the ICU for three days because they did not know what was going on with her--meaning was this before the diagnosis? I ask because I have read that when doctors are unfamiliar with this disorder, they sometimes think something different than epi is going on. I hope your daugther is doing well. Did you know that with Pan. syndrome, it is most common in girls and the most common onset is around 4 to 5 years old?

Re: Re: Re: status epilepticus in 5 year old - any info apprecia

Hi Mel -

I have uncontrolled epilepsy. My now adult son was diagnosed with his first t/c at 7 weeks, one of my young adult daughters last year and my son's now 6 year old when she was two.

I had signed up with Earthlink when my g-daughter was 2 and got as a free gift a camera you could somehow program into a TV channel. My son mounted it over her crib, programmed it to this specified channel, just to have it. She'd been waking up several times a night crying,on some nights, and they thought it was teething or maybe nightmares. They'd even taken her to the doctor once and he said it sounded like she was having night terrorsbecause she'd cry for a little bit, then immediately go right back in a very sound sleep (warning bells!). Right after they installed it, they were trying the channel out and just happened to catch her having a t/c in her sleep. It lasted a few minutes then she started this crying. We have a lot of family members who have inherited epilesy so that was immediately suspected and like all of us she had an abnormal EEG but a normal MRI and other tests.

I am a lay person, not a neuro or even neurologically sophisticated but I have to say if one of my children had something in their brain that shouldn't be there and any doctor said don't worry about it? I'd get at the least a second opinion. A LOT of us have changed neuros many times until we find one that is responsive to our questions, the medical situation and you're comfortable with. I don't know why in this speciality but it sure seems common and I have seen myself a few real clunkers. And too I was told this many times for several years until I finally figured it out for myself but seeing an epileptologist vs a regular neurologist is night and day. There aren't a lot of them and many of us have to travel to go to one but to me? There's just non comparison, plus their staffs only deal with epilepspy. Consider the field of neurology has a lot of neurological problems a general neurologist has to know like herniated discs to carpal tunnel to epilepsy. But an epileptologist does one thing - epilepsy. Plus with an epileptologist it is usually the only place you can get specialized testing and have it interpreted correctly such as a VEEG. My family and I all see the same one. We all have to travel to him, but he watches me, my children and g-daughter like a hawk and he's improved my son's health greatly and kept them all controlled. I just can't get there but that's okay I'm glad my kids are.

I also have nocturnals and the thing you have to watch carefully is that even tho I look like I'm breathing when I'm sz'ing? Usually the respiratory effort is so poor my blood oxygenation saturation levels, or how much oxygen my brain is getting, falls dangerously low and that is very easy to test, with an oxymeter. You can get an oxymeter to use in your home with a prescription from your doctor then go to a pharmacy that carries durable medical equipment or check with the respiratory therapy department at your hospital. You can not eye ball anyone sz'ing and guess their well being of oxygenation and that drops very rapidly, even more so in a child as small as yours. I don't know how many people have no to a poor respiratory effort but it's something you should find out if she continues to sz. Since we know I do have this problem we got a script for an oxygen tank in our house which is very easy to use and a relief for my family to have, later we got a smaller tank to carry in the car. We experimented with masks and found the one that helps me the most. When my g-daughter started sz'ing I was already trying different things that would alarm if I had a nocturnal sz and my 02 sats dropped. I also have severe sleep apnea. Everything I tried we also tried on my grand daughter. We've tried a mattress pad that you calibrate to alarm for some, or certain types of movement which had an oxymeter attached to it (it is a clip worn on the finger). That didn't work except for me when I leave the bed with a CP nocturnally but the alarm was so jolting we think it made me go from a CP to a t/c. Finally what they've done with her is have a baby monitor screen and they decided to buy a higher tech than the monitor had, audio monitor. She also sleeps now with an oxymeter every night that alarms if her sats drop below a certain number expressed in percentages. It alarms in their bedroom so it doesn't jolt her. She fought the finger clip at first but now she puts it on herself, puts tape around it herself. To her, that's part of going to bed. She is controlled most of the time now. About every 3 months she has break through sz's, always nocturnally, as she's in a rapid growth period of her life and as I experienced with my son as a child we had to keep tweaking his medications as he grew too. Am I right in thinking your daughter wasn't on any AED when she had her two sz's? If I am, then I pray once she is placed on AEDs, and it might take a few tries to get the right one(s), I hope her sz's become controlled. Statistically 70% of all E's are controlled.

You feel she's responding to your voice? Well,what do I know about your child but I'll tell you our experiences and we've all talked about it. For me? Sometimes I sz with my eyes closed, or open, and sometimes with one eye open only. My eyes "slide" back and forth if they're open. My husband tells me sometimes when in the ER my eyes will briefly follow say a nurse passing in front of me. Sometimes my name will be called (read: yelled) and he says my eyes will flip open and roll around some, like I've had a repsonse which he said makes the nurses yell my name louder and more often which also he says can throw my sz into a worse mode. I absolutely detest coming out of a sz and have someone in my face yelling my name or demanding to know if I know where I am or who the president is. This isn't nice to say but I know it goes through my mind to flip them off. After a sz, called the postictal period many people's emotions are intensified. Mine certainly are. I can be very over reactive and have meltdowns, rage, be combative or ridiculously cuddly. Sometimes I have these huge emotions, right before I clonk out to sleep, also they can occur over nothing at all. And that's common, my kids do the same. Unfortunately my huge son gets combative and my tiny daughter has meltdowns. I wish it was the other way around. I never remember tho responding ever in a sz when someone is talking to me and I do think for us anyway if our eyes seem to follow a voice or whatever, it's some kind of reflex but not a true conscious type response. My son's eyes do the same as mine. My daughter primarily had horrid CP's at first where she swore she heard me talking to her. Her eyes are always open with that 1000 yard stare and rapid blinking. I've asked her what have I or others said and she repeats it? She's always wrong. She tells us what she has definitely, absolutely seen and felt during her CP. She's always wrong. Not to compare your daughter crassly with my dog but every sz she has lasts about a half an hour of me dying a million mini deaths altho thankfully now she's also controlled, but her eyes roll around like marbles and I'd like to think I'm getting through to her and when she glances in my direction I did get through. But I doubt it. It's hard for me to describe to anyone being unconscious except to say - you're just not there no matter what it looks like to others. The one exception is that in a status sz I get what I call snapshots sometimes. These are maybe 2-3 second periods of time where I do see and hear things and when I relate them later I'm accurate. I know of one other woman who gets these too. I don't know tho thinking about it at what point in the sz that occurs. I'm wondering now if it's when I'm coming out of it, I don't know. Sometimes in a status sz I'll have several and sometimes I have none. But I have NO emotional reaction to whatever I've seen or heard.

On that same topic or unconscious or no, observing to determine responsive or no? Consider complex partials which to me will remain one of the wierdest tricks my brain pulls on me or anyone else. I will never understand how this works. But this is common. I am TOTALLY unconscious right? Mine usually occur nocturnally or have been lately so I get to wake EVERYONE up every time I have one. Unconscious with my eyes wide open I get out of bed, I walk around the house looking for it appears and calling out for my deceased mother. I've done other purposeful things. Not long ago a woman told me she got out of bed, got her dogs ready to go for a walk, dressed in her husband's clothes over her jammies then wound up falling asleep at the bottom of their bed. Didn't remember a thing. I have microwaved a closed coke can and had it explode cracking our microwave window, I've even left the house and fallen down our front steps. I laid my hand on a hot burner once and didn't feel the burn until the sz ended. To everyone I look awake. My son usually stays in place with his eyes open, unresponsive doing automatisms. And,so does my dog. I KNOW epilepsy is no comedy but I have to tell you sometimes it's either you laugh or cry and some of the funniest moments have occurred because of our epilepsy's. My poor husband. Lord he's a brick. The last CP I had in my sleep he woke up to me screaming at the window for someone to stop throwing "mud balls" at our screen. And then of course he can't shut me up because I'm unconscious. Think about THAT. I still don't get it.

I don't want ot alarm you okay but I want you to know this firmly. You did the absolute right thing to call an ambulance when you did. I can no longer find this one excellent URL that my own epileptologist wrote but there are many others that basically all same the same thing and I hope you read them. If you go to Google and type in status seizure you'll probably find articles by several epileptologists that explain the dangers of a status seizure, what they are, and the time intervals which last I read were 5, 20 and 40 minutes when blood chemistries change, oxygen deprivation can become brain damaging or lethal, many things. The last time I read a sz is status after 5 minutes but if it were my child and it'd gone 3.5 minutes I'd be going for the phone. But my gosh, what a horrid ambulance response time? You know I'd call the ambulance manager and talk to him about that. That's one of the worst response times I've ever heard and it is too long for your child. That must have felt like half a lifetime for you. Good grief. You must be a whole lot calmer than I am.

If you can't get that response time down to a few minutes I'd definitely ask your neuro for one of the injectables of Valium or Ativan, whatever he recommends that you can just push onto a thigh and it automatically injects the right dose. Lately all the ER's and neuro's I've known have switched from Valium to Ativan to stop a sz and it works far far better on me. I don't know about a child though. There is also a suppository that has Valium in it to use in an emergency but it won't have as quick a response time as an injectable. My son has very severe asthma. In fact 3 years ago he lost 2/3's of his right lung. The doctor we saw up until he was 5 always had us call an ambulance and like you we had a very poor response time so I would panic or maybe I was smart, and grab him up and race at high rates of speed to the ER. After I had to give him a tracheotomy on our living room floor when he was five? I changed doctors. That was the hardest thing I've ever done in my life and I doubt anything can top it but by golly I was tired of these life saving drugs being hoarded in ER's when I needed them immediately, in the home.The pulmonologist I switched to agreed. Once we had emergency medicines in our home? The emotional atmosphere settled down. My son felt safer, let alone me and he was far safer. I have two kinds of self injectables for status or clustering sz's in my home for me. One is a compound my epileptologist has his pharmacy make up for me that he changes the drugs in it from time to time due to my response. For lack of a better name, we call it Miracle Brain. And I have Ativan. Having these have saved us a lot of ER visits and I can stop my own clustering when I'm home alone or a family member can give me an injection. It's ridiculous to have to go through all that ER stuff if it can be handled with the same drugs at home, to me. Not to mention it makes life a lot safer for me. There have been times we've given me an injection and it hasn't been enough. If it isn't? I go to the ER.

I tend to have several status sz's a month. I don't mean to scare you but out of ignorance because my son growing up didn't tend to cluster or go status but I do, and did on and off for 2 days once. We didn't know that was dangerous. We didn't even know about clustering. I wound up having full resuscitation twice I think in one day or it might have been two days. I don't remember any of it thankfully but it sure scared but educated us. You asked about vomiting? Some of us in my family have and some never have. BUT the one thing you can do for your daughter and I highly recommend you do not only for her safety but also it will give you a feeling of not being helpless is to take CPR. Every parent should know it anyway and stay up to date with it. When you call to schedule it tell them you would also like to have someone prepared to instruct you in sz rescue because there are certain ways of positioning the body, thrusting the jaw forward to aid breathing and other things anyone who is around someone who sz's should know. For instance I have a lot of Atonic Drops and when I do drop it's been noticed I often land with my head tucked, which cuts off a lot of my breathing. I'm alone a lot but thankfully have an alert and assist dog. One of the things I've taught her is to grab my hair with her teeth when I'm on the floor, hyperextend my head then she tries to roll me to my side but apparently I flop over to my belly but that's a lot better than landing on my back, then she lays next to me. We even have a special phone now that has one big button she can push with her paw but I'm not sure how to train her when she should use the phone to call 911, since she has no ability to tell passage of time. BTW my dog is also an epileptic, thankfully controlled.

I'm an RN. When my son was diagnosed with E I think many people thought, not so bad, she's an RN and her father had it. That's not true. I can tell you it terrified me and I swear 99% of his sz's occurred when he and I were alone. If EVER I felt frightened for any reason? I called an ambulance. If he didn't need transporting and this goes for me now, there is no charge. Still I'd rather have a charge, than loose my child. Heck I even freaked out and called an ambulancae for my DOG once.

I'm glad you're here. I've always been so impressed with the support parents give others that are going through their own hard times and the huge amount of information they have. I have to say even raised by an epileptic father, being an RN I knew next to nothing about epilepsy as I raised a now 6-2, 225 pound and currently controlled epileptic child who is now a wonderful father of 2 at 29 years old,and counting (smile). It's a wonder I didn't kill him with my ignorance!

Good luck. Tis hard.


Re: Re: Re: Re: status epilepticus in 5 year old - any info appr

Gretchen you made me laugh! Since I have never had a seizure. I sometime still panic when I see my daughter laying blue on the floor seizing.I am the person scremaing over my daughters face. "What is your teacher's name"! I laughed thinking about that form her perseptive has got to be toatally and completely irratating.
I will not do that again thank you for the advise.

Re: Re: Re: status epilepticus in 5 year old - any info apprecia

Hi, Thank You for your note. My daughter is not doing so well. Her seizures are diffretnt now. You are right they were only at night. Now they are starting to happen during the day. (now without vomitting) She has been diagnosed with Pan. Syndrome. Initailly we were in the ICU while they were trying to figure out what was going on with her. We went to a neurologist and he said she may never seize again. We went home and tried to relax. Boom another seizure more medication, Boom another seizure more medication, eventually maxing out her medication and trying others.... We are now on our 4th AED medication and our 30th seizure 5 required Diastat. The Dr. are wanting the medication to try to hold her seizures to 0.
Was you experience similar? Did your daughter stop seizing and get off the medication?
I have been reading "Seizures Epilepsey and Childhood" The statistics look weak for her being seizure free, the more she fails medication and continue seizing. I would love to hear a bright side.

Re: Re: Re: Re: status epilepticus in 5 year old - any info appr

This started for us in October. She did not go on medecine until March of this year. She is still on a 15 mg dose of Topomax. She finally seems to have adjusted to the meds. I don't know about the stats for being seizure free but I do have a copy of Dr. Panayiotopolous' report and while 2/3 of the seizures in the study in this syndrome occur at night, there is also the other third that may occur during the day. I am a lay person but don't lose hope because my understanding is the diagnosis of Pan. Syndrome, even though the seizures are showing their face in the day, is still a good prognosis. The report is published by John Libby & Company. Go to Maybe you can get a copy and you will see that others with this syndrome experienced daytime stuff but still had a good prognosis. Here is a paragraph in the report about the prognosis: "Pan. Syndrom is a remarkably benign condition despite high incidence of partial mainly autonomic status epilepticus. One third have a single seizure, another half have 2 to 5 seizures and only 5 % have more than 10 seizures and these some times may be frequent but outcome is again favorable. Furthermore, seizure life span is very brief with remission occuring within 1 to 2 yearss from onset. The risk of developing epilepsy in adult life is probably no more than the general population. However, 1/5 may develop other type of infrequent, usually rolandic (13%) seizures during childhood and early teens. There are also age related and remit before the age of 16 years.... " I hope this helps. Please keep in touch.

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Hi Ekoorb, I was curious did your daughter try any other AED medicaitons? Has she had any side effects with Topamax? Do you like Topamax? Is that the first drug they tried? Has she had other seizures? Or just the status seizure that started in October. Does she have to carry Diastat in case of emergency?
Kindergarten was so hard for me, sending her not knowing if she would seize. the possibility they may have to give her Diastat almost kept her home for the year.We made it through the year. Now on to first grade all day.Yeiks! Has your daughter gone to school yet? Have you ever had to use the Diastsat? Do you daughters seizures occur mostly at night? Our daughters use to only be at night, she has had 3 big ones during the day and a couple small ones. Does your daughter always vomit on onset? Sorry, I have so many questions.

I as I have said it has been a year since we have been dealing with her seizures. She started on Dilantin then she went to Trileptal-she slept all the time and had break through seizures anyways. When she finally seized on her maxium doseage of Trileptal we tried Lamictal. We liked Lamictal better she was more like her old self. She started having break through seizures again.Now she is above the doseage reccommended for her height and weight. Her blood levels indicate she can tolerate a bit more of the Lamictal. She is having a hard time with balence and thinking clearly, she is still having seizures. We also tried a clinical trial of Keppra, she was an emotional wreck.She failed Keppra. Have you had any of these experiences? Has anyone else out grown Pana**** Syndrome with this kind of medicaiton and seizure experience?

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Topomax is the first and only medecine she has tried. As to side effects, she was cranky and felt sad in the beginning and was a little impulsive but seems to have adjusted to it now. She started it in March. To date, we have not had to carry the Diastat for emergencies but we do have it in our house and would never travel out of town without it. In the last two months (fingers crossed) nothing has happened at night. Did you go through a period where nothing happened with the meds? As to the timing of the seizures, the scary ones have been at night. I am not positive if she has seized in the day. The reason I say this is in Dr. Pan.'s book, they mention that a daytime seizure usually begins with the child being completely alert and then the child will look at a someone and say I feel like I am going to throw up. Then the child either throws up or doesn't and if the child throws up, it may progress into more or it may not. She has told me she felt like she would vomit before and one time she actually did but she was hysterically crying before that because she had bumped her head. I really don't know. She is entering kindergarten in the fall and going to camp this summer. The epilepsy specialist was going to talk about thinking about stopping meds but I said there is no way I would do that now, especially before the summer begins. He actually ended up agreeing with me. I guess not everyone with Pan. Syndrome is medicated. He decided to keep her on the Topomax several months ago because she had had a handful of stuff at night, some events smaller than others, and he felt it was frequent enough that she had to medicated. As to knowing whether others have outgrown the syndrome with that kind of medication and seizure experience, I will review the report for you tonight. I do know that there were lots of daytime seizures for the people studied and they also had Pan. Syndrome and as the language I quoted for you indicated, it was still a good prognosis. I can't rememeber are you seeing a neurologist or an epi. specialist. I am seeing our specialist next week. I am going to ask him some of the questions we are discussing. I know this is overwhelming and scary but it sounds like you are doing everything you can for your daugther. Please write back.

Re: status epilepticus in 5 year old - any info appreciated!!

my three year old had similar, i also had dificuly sleeping in case i missed something important (still do) but it will get a bit easier with time. my daughter can sleep for hours on end after her seizures but i have been told this is a normal recovery process, my daughter had a seizure that lasted 10 min long and was still in it when the paramedics came, she has been having seizurs since she was 7 months old but has only just been diagnosed with epilepsy. I know how hard it can be just hang in there you are doing well

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