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seeking similar story
Wed, 03/01/2006 - 18:12Topic: Parents & Caregivers
hi, i am new to this site and am looking to talk with someone in a similar situation as my son and family. my son is 11 years old with refractory complex partial seizures. he has the vns and also on zonegran. does anyone else have a child that has grown out of this type of seizure? my hope is that the vns will completely control them and no more meds.i would love to chat or email someone.....i still have a hard time with this at times. thanx cindy
Comments
Re: Re: seeking similar story
Submitted by c.reader on Mon, 2006-03-06 - 16:52
thanx trudy. i feel the same way about an occasional stare, however my son is still having a lot of learning problems. at 11 he is beginning to feel some pressure. we keep it as light as possible for him. we have to have another eeg and possibly more meds. ugh!!!! you are right, we all have to keep smiling and always have hope. again thanx,cindy
Re: seeking similar story
Submitted by Trudy Swain on Mon, 2006-03-06 - 12:04
Believe me you are not alone. I have two children with epilepsy.
My daughter started as a baby and grew out of them until she was five. They then returned as partial seizures. Mainly in her sleep but some during the day. At the same time she developed tics. Whether these are related or not we are not sure.
My son developed occipital epilepsy when he was four. He started off with one seizure on a Sunday afternoon and during a two week period they came every two hours. His are complex partial.
They are both on medication and thankfully we have many seizure free days. The occasional stare or small one we can live with.
We take comfort in the fact that they dont seem fazed by them. Its my husband and I that find it difficult to live with.
They are both in main stream school and are learning normally. Thats all that matters. We will live with the epilepsy and all the meds they take. If they are smiling then we are too.
Keep smiling your not alone.
love trudy
Re: seeking similar story
Submitted by Trudy Swain on Mon, 2006-03-06 - 12:03
Believe me you are not alone. I have two children with epilepsy. My daughter started as a baby and grew out of them until she was five. They then returned as partial seizures. Mainly in her sleep but some during the day. At the same time she developed tics. Whether these are related or not we are not sure. My son developed occipital epilepsy when he was four. He started off with one seizure on a Sunday afternoon and during a two week period they came every two hours. His are complex partial. They are both on medication and thankfully we have many seizure free days. The occasional stare or small one we can live with. We take comfort in the fact that they dont seem fazed by them. Its my husband and I that find it difficult to live with. They are both in main stream school and are learning normally. Thats all that matters. We will live with the epilepsy and all the meds they take. If they are smiling then we are too. Keep smiling your not alone. love trudy