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Mom with 7 year old absence seizures- Neurologist not worried

Fri, 09/08/2006 - 22:11
Hi there, I am new to this site and looking for advice. Last year I noticed something wasn't quite right w/my daughter. She was spacing out, wondering through out the house and I was always having to repeat myself to her. I took her to the pediatrician and I was told I was making something out of nothing. Even my husband agreed until he experiened it. He was talking to her and her eyes started to flicker and almost roll back. He wandered in circles for about 15 seconds. I took her back to the pediatrician and she had one in front of him. We were referred to a neurologist and had a EEG done. He said she had a 3:1 brain wave and prescribed Zonegran. He does not seem to be concerned about her seizures and made it seem like it was no big deal. She has been on the meds for 10 months and they seem to be getting worse. She at times has over 10 a day. some worse than others. At times her left arm shakes or she has even fallen if she has one while doing some kind of activity. The only suggestion the Neurologist has is to change her meds but warns they will have severe side effects. He suggests riding them out till she out grows them. Any one have any advice? Am I being paranoid? My husband & I asked about an MRI and he says no need. Thanks, Momyo

Comments

Re: Mom with 7 year old absence seizures- Neurologist not worrie

Submitted by spiz on Fri, 2006-09-08 - 22:42
Hi Momyo! You didn't say how old you're daughter is. My reason for wondering is his statement of her outgrowing them. Her zoning out and wandering sounds like absence seizures: http://www.epilepsy.com/epilepsy/seizure_absence.html Read that link and see if you think it fits you're description. Look into taking her to an epileptologist. They specialize in epilepsy and seizures. This link should help you find one in your area: http://www.naec-epilepsy.org/ Hope this helps! I wish you the best! -Spiz

Re: Re: Mom with 7 year old absence seizures- Neurologist not wo

Submitted by spiz on Fri, 2006-09-08 - 22:44
Momyo, Sorry! I just noticed the subject line has your daughter's age. :) -Spiz

Re: Re: Re: Mom with 7 year old absence seizures- Neurologist no

Submitted by spiz on Fri, 2006-09-08 - 22:55
...and I just noticed you have already stated she is having absence seizures. I'm batting a thousand tonight! My advice, since they are increasing, is to take her to an epileptologist and see what he/she has to say. I know AED's have side effects...some bad...but once the adjustment period is over with, they usually subside. I have absences also and the AED's I take have cut the amount I used to have significantly. I wish you both the best! -Spiz

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