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Living with a Nightmare
Wed, 04/25/2018 - 11:56Topic: Parents & Caregivers
Hi, I am the parent of an autistic 15 year old that has seizures that result in very scary violent episodes. He is well over 300lbs due to meds. What will happen is suddenly out of nowhere (it could be one week, a month or even 2 months), you will hear an item get thrown or a fist hit a wall. Then whimpering happens...then a scream followed by violent hitting and kicking. I wish I had a tranquilizer or something that would wrap the situation up quickly because it really is stressful. Do they have a weight device you can put on someone when they go ballistic like this?
Comments
Can the meds be adjusted
Submitted by Amy Jo on Sat, 2018-04-28 - 12:15
Can the meds be adjusted because the added weight is high enough to cause other medical problems? Does he have warnings? There are meds that can be quickly given orally that might work if he has some warning (which I know could be difficult given the ASD but worth exploring. And are you working with an epileptologist? If so, ask how CBD might impact him, might be able to reduce other meds. If you aren’t seeing an epileptologist, try that first!
If your Dr will work with you
Submitted by urfriendmichael on Thu, 2019-04-25 - 06:01
If your Dr will work with you if your established patient Some times they will give you a nasal injector of Ativan you have to be trained on how much what to watch for to make sure you don't overdose it is considered a controlled narcotic I believe.
God bless you. I'm going to
Submitted by zacksdad on Sat, 2018-04-28 - 11:41
God bless you. I'm going to ask you some questions which may seem pointless and condescending because you've been dealing with his autism his whole life, but I feel I need to ask them anyway. I apologize if this upsets you. What medication(s) is he taking? Several types of AED's can cause aggression. Have you noticed any specific incidents that preclude these episodes (triggers). Have you spoken to his doctor about these episodes? Have you looked into behavioral therapy? Is he taking medications from more than one doctor and are they talking to each other about these medications?When a person comes out of a seizure (post-ictal phase) They can/will be confused, scared or even have hallucinations. Hallucinations can also be part of a seizure. If he's only having these outbursts after a seizure, then the best thing you can do is get those under control. They have weighted vests, but they require the cooperation of the person wearing them or enough people around to force the person who needs it to put them on. Tranquilizers are too dangerous to administer for untrained people.Have you looked into a Vagal Nerve Stimulator (VNS). This is a device that is implanted into the patients chest that delivers a low level electrical stimulus to the brain through the vagal nerve in the neck. It can stop most types of seizures before they start. Do an internet search to get more information.