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Here We Go...

Mon, 06/12/2006 - 09:12
Well Kassidey had her first grad mal seizure yesterday. She was getting ready to go swimming and I went to put something up and there she was laying on the floor face down making a terrible noise. I was scared to death, I yelled for my mother to call 911, she was so out of it. I couldn't get her to say my name, or anything. My only thought was, will she stay this way forever. I have never seen a seizure like this before, she has partial complex seizures and they only last about 10-15 seconds, this one lasted about 4 mins. What now? I can't quit picturing her lying on that floor like that...I can't work, I just want to sleep with her by my side. So now what do I expect, a grad mal seizure at anytime???? They still haven't got the little ones under control. Just lost

Comments

Re: Here We Go...

Submitted by dovepkb on Mon, 2006-06-12 - 19:55
I can understand you how you feel. The first gand mal seizure my son had was at night so he now sleeps with a monitor in his room each night. It works because the next one he had I heard something, and ran to him. He may have been having them before and we may not have know it if his brother had not been in the room with him while we out of town. He is taking depkote now so we will see how that controls the seizures.

Re: Here We Go...

Submitted by angel_lts on Tue, 2006-06-13 - 07:13
I know it's got to be scary. I am a person who has the seizure, but being a mom myself can be hard to see our children go through hard times. Start reading and searching for info to help your knowledge about epilepsy get better. It will help you, not to be so scared. Get your child on a good diet. It can help alot too. My group has alot of info on it that can help you with different approachs with epilepy. look for a Epilepsy foundation in your area. They have conferences and info too. take care lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: Here We Go...

Submitted by kksmom on Wed, 2006-06-21 - 12:53
I know the feeling. My three year old had her first seizure on christmas eve while visiting her grandmother. Luckily my mother-in-law lives literally across the street from us. She called us and told us to come right over. When I arrived, there my precious child was in a fit of seizures. I thought she had choked on something so I was prepared to start CPR. I ran out the house with her in my arms to the local emergency room which was right around the corner. My husband was two steps behind me. During that time I was suffering with sciatica leg pains and my legs gave out on me. My husband took the baby and we both ran like scared parents. We thought we were losing her in our arms. It was the most scarey and humbling experience I had ever had in my life. Her first seizure. She stayed in the hospital for six days. My home was absolutely not the same without her. Imagine a tree full of gifts and my little one not there to open them. I had a knot in my stomach the size of the world. My oldest girl is still traumatized. Her last seizure in May occured while she was asleep and this time I was prepared. My husband who is like a gentle giant broke down and cried. I told him, no she needs us. I sat with her while she went through it and stroked her hair. I timed her seizure and when she came out of it there I was. This time I was with my baby from the beginning to the end. As parents we have to not relish in the fact that we cannot control their seizures but rejoice in the fact that were are their biggest support factor. kksmom

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