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Has anyone elts had problems with Phenobarb?
Fri, 08/25/2006 - 17:15Topic: Parents & Caregivers
My daughter 2 year old Lexi is on Phenobarb .. her levals are well within theraputic range acording to her docters but still she's having breakthrough Grand Mals .... she has also began having nosebleeds with her larger seziures .. any help would be apreciated
Re: Has anyone elts had problems with Phenobarb?
Submitted by mommy2kyra on Fri, 2006-08-25 - 21:51
I'm so sorry to hear that your daughter is having a tough time getting things under control :( I know that a lot of medications haven't been approved for child use yet, but doctors can prescribe them if decided she could be better. My personal experience is my sz's (thankfully, my girls don't have E...knock on wood), so I can't recommend trying this or that med. I would simply recommend talking w/ your neuro about your concerns. If you don't feel that Lexi is getting decent treatment, try seeing a pediatric epileptologist. They focus on the big picture of your daughter's life, and *that's* worth every penny. I wish you the very best of luck, and hope that Lexi's seizures are brought under control very soon! (((hugs))) Heather