The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

depressed mom

Tue, 07/04/2006 - 05:41
hi there, i,ve been away for quite sometime coz of my son's worsening situation. Im really so stressed up. my son's doctor tells me he'll be ok but i think this is just a lie to make me feel better. I had to stop being employed by anyone coz i used to take offs every week coz my son is sick.So i just stay at home with him coz no employer wants an employee who is inconsistence. That's waht my last empoyer told me. Once he starts having seizures it never stops until they inject him and the medication on a weekly basis is so expensive. It really puts me down financially and emotionally. Seizures every week is just too much, what advice do u give? On saturday i took him to the hospital and the doctor adviced me that he should undergo a surgery to remove is tonsils, coz he gets multiple infections every week and this makes him have the fits. Im always scared coz i never know when he'll have them. He has a speech problem, so his doctor adviced me to take him to school coz this might help his speech. i just pray that this works coz even when he is in school im still not settled. though his doctor insists that its for his own good. How good is the epilim syrup? He started taking it two months ago but there is no significant changes. sometimes he can have 20 fits that follow each other even after injection. i really feel for him and i pray one day he'll have a normal life free of convulsions. I just need some kind words to make me feel better.

Comments

Re: depressed mom

Submitted by sandy4917 on Tue, 2006-07-04 - 07:54
Fortune, my heart goes out to you and your family. My children do not have seizures, but I do. I know the toll it takes on me, I can't imagine if my children suffered from seizures. Please know that you are in my prayers today. This site is a great place to find support. Hang in there. Best of luck.

Re: Re: depressed mom

Submitted by fortune on Wed, 2006-07-05 - 02:20
FWK hi sandy, thanx for ur response, it really gives me the heart to go on. what really depresses me more is when my son convulses on the way or in a public means. i really hate the way people respond to it. they behave as if u do not care about ur son. they shout at u to rush the kid to the hospital and stop looking at him. but there is nothing u can do until the fit stops but they dont understand. sometimes i getr so irritated and just tell them to mind their own business but othertimes i get so fed up so i just decide to put a deaf ear o whatever they say. a woman accused me of wanting to kill my own child coz i was holding and looking at him convulse instead of taking him to hosp.these are some of the things that really make me hate everyone who sympathises with my son.but there is nothing i can do coz the fits never av any warning. where i come from people say its related to evil but i dont believe so coz his doctor has explaained everything to me and i read books. i love him so much and i think others dont matter. what med are u on, is it working? all the best and thanx for ur prayers. good luck!!!!!!!!

Re: Re: depressed mom

Submitted by fortune on Wed, 2006-07-05 - 03:24
FWK hi sandy, thanx for ur response, it really gives me the heart to go on. what really depresses me more is when my son convulses on the way or in a public means. i really hate the way people respond to it. they behave as if u do not care about ur son. they shout at u to rush the kid to the hospital and stop looking at him. but there is nothing u can do until the fit stops but they dont understand. sometimes i getr so irritated and just tell them to mind their own business but othertimes i get so fed up so i just decide to put a deaf ear o whatever they say. a woman accused me of wanting to kill my own child coz i was holding and looking at him convulse instead of taking him to hosp.these are some of the things that really make me hate everyone who sympathises with my son.but there is nothing i can do coz the fits never av any warning. where i come from people say its related to evil but i dont believe so coz his doctor has explaained everything to me and i read books. i love him so much and i think others dont matter. what med are u on, is it working? all the best and thanx for ur prayers. good luck!!!!!!!!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.