Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
DC Epilepsy Meet-up
Tue, 07/09/2019 - 16:02Topic: Parents & Caregivers
I hope this does not come off as inappropriate, but I am actually working on behalf of a consulting firm that wants to meet with epilepsy patients or their caregivers in DC. Their goal is to learn more about their stories and figure out how they can improve the patient journey and experiences. My client would truly appreciate hearing about patient experiences and how they can help improve them. They would be happy to compensate the patients $500 for their time. Again, I apologize if this does not seem appropriate-- I am reaching out with only good intentions!
I wanted to know if there was any way my information and intentions could be shared with your community. My email is Michaella.librizzi@alphasights.com and my phone is 646-396-3794. I appreciate any help!
All the best,
Michaella
Hello, curious to find out
Submitted by Mickybforeman on Thu, 2019-07-18 - 11:57
Hello, curious to find out what consulting firm you’re working with in D.C. I live in Boulder, co. I am a nurse consultant for school, daycares and private schools. I also have personal family history with epilepsy. I do training for emergency meds for students with seizures with school staff. Over the years I have run into so many parents that don’t even know where to begin the journey. I have mentored a young adult group, worked as a nurse at the epilepsy camp, created a music program for the camps for several years. I am now trying to create a program for new parent/caregivers. Any thoughts? Always hopeful, Michelle