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Child Epilepsy-4 year old-Help. Brand new.

Sun, 03/03/2019 - 09:26
I am looking for help and reassurance. My four year had 2 febrile seizures 2 years apart. The second was different than the so I thought best to get neuro evaluation. After the second seizure I started watching him like a hawk and noticed he experiences espisodes in his sleep. He sits up but is not awake and figits and chews. Sometimes he kicks and thrust his body. Most times it is proceeded by a random outburst other times he moans and whines while it happens. He grimaces like he is in pain then he relaxes and either goes back to sleep or wakes up. He had abnormal EEG that showed frontal activity. My husband is in denial and wants to explain away as dreaming but I know what I am reading sounds like our son has some type of nocturnal epilepsy. We are scheduled for MRI and 24hr EEG. I know I’m not crazy. I have started recording them when I am aware and reading a lot. He was put on Briviact which caused excessive sleep and behavioral problems and we are now transitioning to Trileptal. Looking for any input. Thank you in advance.

Comments

Of course I'm not a doctor,

Submitted by mdogan on Fri, 2019-05-03 - 00:13
Of course I'm not a doctor, but that sounds more like benign rolandic epilepsy to me, which is what my son was diagnosed with at 3yo. He had his first tonic clonic seizure last January before his 3rd birthday and has had several since that first one, but not as bad (I call them micro seizures, since they last less than 20 seconds or so). He had his first absence seizure at school yesterday, so we are heading back to the neurologist on Monday. He hadn't been prescribed any meds, but I'm wondering if he will be now that he's had a seizure while awake. He also does the snoring, teeth grinding/mouth chewing noises, moaning/loud exhales while sleeping. Sometimes he'll bolt up while still sleeping and it freaks me out. He tosses and turns all night and wakes up tired most days, and some days has purplish twinges under his eyes. I'm going to request a sleep study, since I'm not sure how much actual sleep he gets each night. He 'sleeps' for 10-12 hours a night, but I want to make sure he's getting quality sleep. He was also having behavioral issues at preschool and got suspended for a week for hitting another child. I'm also going to ask the neurologist about special diet for him as I've read too much sugar and caffeine can be bad for people with seizures. He doesn't eat a ton of junk food, but loves juice and granola bars. There are so many things to consider and worry about!!

Of course I'm not a doctor,

Submitted by mdogan on Fri, 2019-05-03 - 00:15
Of course I'm not a doctor, but that sounds more like benign rolandic epilepsy to me, which is what my son was diagnosed with at 3yo. He had his first tonic clonic seizure last January before his 3rd birthday and has had several since that first one, but not as bad (I call them micro seizures, since they last less than 20 seconds or so). He had his first absence seizure at school yesterday, so we are heading back to the neurologist on Monday. He hadn't been prescribed any meds, but I'm wondering if he will be now that he's had a seizure while awake. He also does the snoring, teeth grinding/mouth chewing noises, moaning/loud exhales while sleeping. Sometimes he'll bolt up while still sleeping and it freaks me out. He tosses and turns all night and wakes up tired most days, and some days has purplish twinges under his eyes. I'm going to request a sleep study, since I'm not sure how much actual sleep he gets each night. He 'sleeps' for 10-12 hours a night, but I want to make sure he's getting quality sleep. He was also having behavioral issues at preschool and got suspended for a week for hitting another child. I'm also going to ask the neurologist about special diet for him as I've read too much sugar and caffeine can be bad for people with seizures. He doesn't eat a ton of junk food, but loves juice and granola bars. There are so many things to consider and worry about!!

I forgot to mention he also

Submitted by mdogan on Fri, 2019-05-03 - 00:15
I forgot to mention he also had a CT scan, MRI and both 2 hr and 24 hr EEGs. The scans were good, but the EEGs showed abnormal activity on the right frontal lobe.

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