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Assistance for New Parents dealing with a new reality

Tue, 10/31/2017 - 04:42
Our youngest daughter (13) recently had a seizure and was diagnosed shortly after with genetic epileptic with post pubescent onset. She currently is on a progression with her medication at 50mg 2xday lamotrogome (Lamictil). Which will increase to 100mg at a later date. She competes in Cheerleading and Lacrosse and the Nurologist said to keep doing what she had been doing. There have been a few issues, but she seemed to be able to tumble and continue her lifestyle. We had some issues when they were practicing for an event when she tumbled and the music was going, she became dizzy. She just started on the 50mg dosage. Our question is do we continue and just monitor her as she adjusts or is this something that could be more serious. Just want to know if other parents have had similar situations. Thanks for any information Tim & Kathryn

Comments

Sorry to hear about the

Submitted by RTLEmum on Tue, 2017-10-31 - 13:55
Sorry to hear about the diagnosis. I'm not sure a short bout of dizziness is anything to worry about, but it never hurts to just talk to a nurse at the epilepsy center where your child is seen. If you look at the side effects of the medication, dizziness might be one of them. Certainly when ramping up an anticonvulsant, there can be side effects that diminish as the body gets used to the drug. My child has little bouts of dizziness sometimes, but it's never been determined to be anything. I would suggest keeping a seizure diary and include any suspected side effect in there and encourage your daughter to notice any unusual feelings and jot them down. It's hard to put a child on these drugs. I was horrified reading the package inserts. After several years, I calmed down. The drug really helped my child and was totally worth it. Hang in there and don't hesitate to call your dr's office. It's pretty normal to be calling frequently, especially in the beginning.

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our child takes lamotrigine

Submitted by Amy Jo on Tue, 2017-10-31 - 23:05
our child takes lamotrigine and used to always have dizziness, nausea, and other side effects once it got to a certain dose. hopefully your child’s issues are temporary and will abate soon. for our child it was more like a toxic reaction at a moderate dose so we spoke with her doc and we broke her dosing up to test that and no more symptoms. extended release might help if it continues. lamotrigine is increased slowly, 50mg is not close to the expected/common therapeutic dose.

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