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7 month old with unknown seizure disorder
Tue, 12/27/2005 - 22:11Topic: Parents & Caregivers
Hi, I am looking for any advice out there. My 7 month old daughter had a full body seizure approx 1 month ago. She was taken to the children's hospital via ambulance. The seizure lasted for 19 mins, valium was given to stop it. She was admitted to the hospital. Her CT, spinal tap, EEG and blood work were all normal. She was released and didn't have another seizure for 2 weeks. The 2nd, 3rd and 4th seizures were isolated to either her right or left side of her body and her neck and head. She was sent home after the 3rd seizure on Phenobarbitol and her dosage was increased after the 4th seizure. She had a 5th seizure on Monday that lasted for over 2 hrs. She was hospitalized and she had a normal MRI and we are still waiting for the results from the EEG. She is on Phenobarbitol, Dilatin and a third drug that I am not sure of the name of. She can't hold up her head and she can't even look at me. I feel like I have lost my baby and I am not sure what to do to help her. Thank you
Comments
Re: 7 month old with unknown seizure disorder
Submitted by angel_lts on Wed, 2005-12-28 - 07:26
Oh I am so sorry about your baby. Make sure they check out her magnesium, calciam, vit d, sodium, blood sugar level, b6, b complex. Also look into omega three fatty acids too can work wonders for some. Talk to your doctor about it.
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Re: 7 month old with unknown seizure disorder
Submitted by jjjlow3 on Thu, 2005-12-29 - 02:35
We experienced almost the exact same situation with our 5 year old about 7 months ago. He was a zombie with the phenobarbitol...they have since changed him to trileptal & that has been the key for us. After his first seizure he spent 5 days in the hospital just trying to stabilize his medication reactions. All his test came back normal, but he was a mess. Patience and strong advocacy,... what you are describing shouldn't be okay for you or your pediatrician. Keep working together, you will get your baby back! :) Good luck!
Re: 7 month old with unknown seizure disorder
Submitted by txrhb1 on Wed, 2005-12-28 - 02:46
Hi, I am so sorry you are having to go through this. Seizures in a child that young have to be just heart-breaking for you. There is some good information on the home website, located at http://www.epilepsy.com/info/family_infants.html, that might help you out. I don't know what type of doctor you are working with, but i would suggest that you try to get her in with an epileptologist ( a neuro who specializes in epilepsy), if at all possible. I wish you the best of luck, and please keep us posted. There are lots of wonderful people here on teh site that can help with information and lots of care and support. ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo