Community Forum

4 monthd old daughter diagnosed with focal partial seizures - overwhelmed & scared

Hi - new here and a little bit overwhelmed having just received an epilepsy diagnosis for my baby girl. About two weeks ago i started noticing seizure like episodes where my daughters eyes would roll back and twitch and sometimes her mouth would quiver. We just spent two nights in a pediatric epilepsy monitoring unit on a 48 hour EEG followed by an MRI. She did have a seizure while on the EEG and the Dr noticed what he called a "birthmark" on the right side of her brain where the layers potentially didn't develop correctly in Utero - another term for which is cortical dysplasia.

She's been started on Oxycarbazepine as the first line of defense against the seizures and we are supposed to monitor and see where we go from here.

Quite frankly i'm still processing and i'm still terrified and totally overwhelmed. I am posting this to see if anybody has had similar experiences with their children and what was their journey like/how are they doing now?

- Will my daughter develop normally?
- What are the odds medication will control her seizures.
- Any chance she can "outgrow" these seizures

thanks everyone

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline