Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
3 month old with Focal Epilepsy..please help
Tue, 03/27/2018 - 19:13Topic: Parents & Caregivers
My son, Lucien, was diagnosed at 2 months with focal epilepsy. It's on the left hemisphere of his brain. Does anyone here have focal epilepsy? I'm totally new to this...new first time mom, new to epilepsy, etc. He's currently seizure-free on phenobarbital taken once at night. Just wondering what the future might look like for us so i can better prepare, research, etc.
Comments
My 2 year old was recently
Submitted by Shon Renee on Wed, 2018-04-25 - 10:48
My 2 year old was recently diagnosed with focal epilepsy. It's new to us as well. She's a week seizure free since adding keppra to her trileptal. From her neurologist and general research, kids can outgrow them or they can be controlled well with medicine once they identify the type of seizure and any triggers. She's had an EEG and the MRI was extremely helpful, she will repeat imaging with the MRI in 3 months and at set intervals in the future to see how her brain is developing/adjusting, etc. My advice: Just let them be a baby/kid! Enjoy your child and just keep track of any type of seizure activity or changes you notice, and hopefully as your baby grows and develops his brain will develop/adjust/ things will align as they're supposed to, etc. That's the hope and prayer I have for my child.
My son has focal seizures.
Submitted by HayleyTyndall on Mon, 2018-06-04 - 08:48
My son has focal seizures. Has for about a year now. He was on keppra but was taken off due to hyperactivity now is now trileptal and having some other side affects. His are being controlled during the day but he’s still having about 51 a night.
lots of people have focal
Submitted by Amy Jo on Wed, 2018-03-28 - 00:38
lots of people have focal seizures but focal seizures in an infant are not always like an adult with focal seizures. it’s good that he’s responding to meds, that may not seem like a relief because you are still processing some huge concepts, but it’s a really good thing for now. are you working with a pediatric epileptologist who specializes in infants? EEGs are not the same across ages. I know our local children’s hospital has a guy who really focuses on infant epilepsies and infant EEGs. such docs are not interchangeable cogs.with focal epilepsies they usually want imaging. but given his age and other factors, they may suggest genetic testing. make sure you are at a hospital that really is for kids. most hospitals don’t do a good job with kids, kids are not little adults. things are going to change - he’ll grow, seizures might really change, etc - don’t forget to take care of yourself, breathe deeply, keep your sense of humor where possible, etc..