Hello Everyone!
I have recently created a website for people with Epilepsy, Photosensitivity, and sensory disabilities. It was created to provide people with a better understanding of what...
Hello Everyone!
I have recently created a website for people with Epilepsy, Photosensitivity, and sensory disabilities. It was created to provide people with a better understanding of what...
Hi, I have a 21 year old college daughter who had her last seizure 2 weeks ago. After her seizures, the law is to not drive until three months after. After this last one though, she has been...
Hi. I am new here, and new to epilepsy in general. Earlier this year, my 19 year old daughter was diagnosed with JME. It probably surfaced about 3 years earlier. A couple years ago, she randomly...
I have some questions!
RESEARCH STUDY- one-time, one hour-long, interview!
Are you a caregiver to someone with epilepsy??
If so, you may qualify for a study in the Providence, RI area. There is NO...
My mentally handicapped Sister had 3 back to back to back seizures in May about 3 mins each and 2-3 mins in between. Since then her appetite has gone to nothing. She also had compression fractures...
My husband has recently been diagnosed with temporal lobe epilepsy. He has had focal seizures since he was a teenager but his parents never took him for help. He had his first grand mal seizures...
Seminar in Nashville on Sept. 15 for students on doing college with epilepsy!
Details/Register online: studentswithepilepsy.com
*Parents and caregivers welcomed!
I have two children, ages 6 and 8, with focal epilepsy. My son age 8 is looking for kids his age to talk to about his condition. We live on the upper west side of New York City. Please let me know...
Hi Community,
My 7 year old daughter has focal seizures, often at night time. She makes very little movement, typically throws up, spikes a fever and has great difficulty breathing. She is...
I live in TN and care for my 11 month old grandson with epilepsy. (chromosome #15 disorder) His parents have to work so I take care of him from 7am til 3pm. 5 days a week. Two days a week I drive...
Hi everyone! I have a 5 year old girl who has been on Keppra and Depakote for about a year for her Absence seizures. It was all such a shock to me when she was first diagnosed that I just agreed...
My daughter got her first seizures a little over a week ago. She was twitching sometimes on one side of her body, then both, and her eyes always kind of lean to one side and up. She had an EEG (it...
My 7-year-old daughter was recently diagnosed with epilepsy. She had her first seizure on June 8 about 30 minutes after she woke up. It was a tonic clonic, we called 911 and she was seen and...
Help! I have a 16 year-old daughter who was diagnosed with epilepsy at the age of 9. Her epilepsy is well-controlled by medication, which she is refusing to take. She has had seizures over the...
Hello Everyone,
Hope this finds you and your kiddos well! I am a speech-language pathology masters student at Eastern New Mexico University and am running a research project on children with...
Hello! I am new to this forum and I am looking to see if anyone has had experience with what we are going through right now. My 3-year-old daughter had grand mal seizure that turned into status...
Hi. I'm so new to this and we haven't got a clear diagnosis yet. My 15 month old son goes to the pediatric neurologist on Friday. I just wanted to say what's been going on with him...
Hi. I have never been on a forum before. This site was recommended to me by my daughters Neurologist. My husband and I are in our late 60's. Our daughter is 29yrs old and she will...
She has nodules 20 or so from her occipital horn to her temporal lobes on both sides. She has seizures and is on two different seizure medications keppra and oxycarbazine. She is also blind in her...
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
