2018 Epilepsy Pipeline Conference

Watch Community Day of the 2018 Edition of the Epilepsy Foundation Conference, Live from San Francisco on Saturday, February 24

WATCH LIVE

Community Forum

Topic: Parents & Caregivers

Created By: kjansta | 02/2018 | 5 Comments

Hi all,

I am new here. I am in research mode to familiarize myself about absence seizures. My son is 11 yrs old and I first started to suspect absence seizures seriously last summer. Long...

Created By: Mommy Michele | 02/2018 | 0 Comments

Hi. My 11 yo artistic non-verbal son has had several seizures over the past 2 months and after them he is unable to put weight in his legs. We can move them to do range of motion but he is...

Created By: Drewski | 02/2018 | 2 Comments

Hi,
Last year my daughter (age 10) was diagnosed with epilepsy after having about 6 seizures in 6 weeks. It all happened very fast and after we found the right meds (Carbamazapine) she has...

Created By: suecrowley | 02/2018 | 2 Comments

Hello, I'm new here. My 3 year old has experienced 2 seizures in the last 3 months and has just started Keppra. The doc advised we could try B6 to see if it helps with his energy/mood, but...

Created By: Sydney.martinez1 | 01/2018 | 6 Comments

My son was diagnosed with epilepsy a few days ago. He is 19 months old. We had finally hit that point where we weren’t scared of SIDS and what not, he’s our third child, and we know all the do’s...

Created By: jimmybryan | 01/2018 | 1 Comment

my mom has had epilepsy since she was a toddler. im 24 now and she has been in a nursing home since i was 18.. I was there for her at a young age. my parents got divorced and i became protective...

Created By: BeYou2018 | 01/2018 | 3 Comments

My son had his first seizure at 18. Just out of the clear blue. Labs and scans were done, everything comes back normal. EEG was normal. The doctor didn't just throw my son a meds after one...

Created By: boc1133 | 01/2018 | 1 Comment

My step son is Cambodian and 11 years old. He started having seizures 18 months ago. He was found to have cortical dysplasia. He was on medication that managed the epilepsy well. However with...

Created By: amberfrancine16 | 01/2018 | 2 Comments

My son is 4 years old and recently began jerking his arms at most random times. Some days he does it many times. Other days nothing. My other son's PT says it looks involuntary. I am unsure...

Created By: Lwid510 | 01/2018 | 2 Comments

I’ve asked quite a few questions on here. Have a new one quick background. Son is 8 years old. Had an abnormal EEG last year. Our old neurologist was less than helpful we had to wait several...

Created By: April potter | 01/2018 | 2 Comments

My son is six and has had four bouts of tics, the eye blinking sort. Well a few weeks ago he developed the eye opening wide kind. My concern is that my husband has epilepsy. A deformation in his...

Created By: snezana | 01/2018 | 5 Comments

Hello,
My son has been diagnosed with epilepsy at 17 months. He was immediately put on valproate (in our country, a syrup called eftil) and his seizures stopped. He has been seizure free...

Created By: CrosbysMama | 12/2017 | 4 Comments

Hello all. Just yesterday we received the diagnosis of epilepsy for our 5 month old son, Crosby. He had 12 seizures from Christmas Eve through 12/27 when the children’s hospital finally had us...

Created By: Ty729 | 12/2017 | 3 Comments

My son had a tonic clonic seizure lasting about five minutes Tuesday evening. He then had another seizure at the hospital that was only about a minute long. They sedated him using Ativan which...

Created By: Ty729 | 12/2017 | 0 Comments

My son had a tonic clonic seizure lasting about five minutes Tuesday evening. He then had another seizure at the hospital that was only about a minute long. They sedated him using Ativan which...

Created By: rathsusan | 12/2017 | 0 Comments

Hi,
I am a junior in high school and I am writing a paper for AP biology about benign rolandic epilepsy. I suffered from this particular form of epilepsy from the age of 3 until 12 but I...

Created By: TALPEACE | 12/2017 | 1 Comment

Hi. My son is 11 months old, about two months ago (10-14 days after vaccination against measles, he got the vaccine early because we went to Romania and there was an plague) he began to have...

Created By: CBeusch91 | 11/2017 | 1 Comment

Hello, my son has Landau Kleffner Syndrome and he has been through steroids before and we may be starting them again soon. I am wondering if any parents have done essential oils to help decrease...

Created By: fate525 | 11/2017 | 6 Comments

Hi there, I'm looking for some guidance. My son had a seizure 4 weeks ago. I guess it was a grand mal - he lost consciousness, dislocated his shoulder, hit his head. Someone who saw it said...

Created By: Lwid510 | 11/2017 | 6 Comments

I posted several months back. Long story shorter my 8 yo son had an extended EEG recommended by his neuropsychologist. It came back abnormal with several sharp spikes and waves mainly in sleep. He...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline