Community Forum

Topic: Parents & Caregivers

Created By: Ashsaurusrex | 03/2020 | 1 Comment

Hello all,
My two year old son was recently diagnosed with epilepsy, so far we've only witnessed absence seizures. Because epilepsy runs on both sides of the family, she doesn't...

Created By: Katarzyna | 02/2020 | 2 Comments

Hi everyone i have 9 year old son diagnosed with partial complex epilepsy 5years ego.Over the summer he have increase in seizures. He was put on vit D 1000mg×1 and vitB6 50mg×1 . His seizures...

Created By: Bellafeet | 02/2020 | 1 Comment

My daughter was diagnosed at age 8 was seizure free for two years on keppra x2 a day since and had a grand mal yesterday at age 10 feeling overwhelmed and anxious about the future she was so...

Created By: mjharrison_5e50a11a33f7f | 02/2020 | 1 Comment

My 11 year old son was diagnosed in January. How do the parents cope with this? I am in constant fear & stress over my child's safety. I constantly question "is he about to have...

Created By: Den_5e46a9d9b7c6e | 02/2020 | 2 Comments

Hello - I am a parent of an adult son whose has had epilepsy since he was six years old. All his life he exhibited behavioral problems. The question in my mind has always been how much is he in...

Created By: Jessica.k.1986 | 02/2020 | 2 Comments

My daughter stops breathing during a seizure. She's 11 and very recently got diagnosed. She's also asthmatic so we mistook her first couple seizures for really strong asthma attacks...

Created By: Wenglish12 | 02/2020 | 1 Comment

My 15 year old son is making the switch from1500mg of depakote to 300mg zonisamide. We are in week 1 of 3 for this transition. The reason for the change are extreme depression while on depakote....

Created By: JLS28 | 02/2020 | 2 Comments

Hi - new here and a little bit overwhelmed having just received an epilepsy diagnosis for my baby girl. About two weeks ago i started noticing seizure like episodes where my daughters eyes would...

Created By: olesonfam22 | 02/2020 | 2 Comments

Our 9 year old son was diagnosed in November with partial complex Epilepsy. He started having seizures in Sept/Oct, but they were mild at first and we didn't catch on until late Oct....

Created By: gaspatio | 01/2020 | 0 Comments

Hi. My husband was diagnosed with epilepsy several years ago; general and localized epilepsy. He started having seizures very shortly before we met, so we are basically learning about epilepsy...

Created By: amlar521 | 01/2020 | 3 Comments

Hi everyone-

My son suffers from focal seizures and his symptoms change with every episode. I am just reaching out to see how other parents/caregivers find strength to help care for their...

Created By: Christieene | 01/2020 | 1 Comment

Does anyone have any recommendations for a 20 year old in need of occasional supervision in Montgomery County Maryland.
When his meds is adjusted he can’t be left alone.

Created By: Colleen1854 | 01/2020 | 2 Comments

Hi everyone, I am new to this forum. My daughter is 6 years old and she has been having seizures since she was 8 months old. She has tonic clonic seizures that resist emergency medication so every...

Created By: birdman | 01/2020 | 1 Comment

I got this email from a friend:

Do you think you could ask a question to the Epilepsy Foundation. How to get an autistic person to take his meds.
Wesley just refuses to take his med...

Created By: SDAD2 | 01/2020 | 3 Comments

Son is 10 yrs old. Doctors insist there are no issues with him receiving vaccines. His mother is adamantly in disagreement to the point of wanting to homeschool to avoid the vaccines. His...

Created By: ajsmom1106 | 01/2020 | 2 Comments

My daughter is 17 and will be going away to college in the fall. She plans to go 8-16 hours away as they are the only schools that offer her desired major. She had been seizure free for the last 2...

Created By: mythoughtis | 12/2019 | 1 Comment

Our 28 year old son is considered stable since his seizures are only every few months to 2 years or so. Just enough to create havoc since he lives and works 4 hours away. It happened again this...

Created By: epilepsymom17 | 12/2019 | 1 Comment

My 2 year old daughter has epilepsy. Her seizures are still not 100% uncontrolled, so we still see breakthroughs. Every few months, she has a tonic seizure that will cause her to stop breathing...

Created By: eschatten | 12/2019 | 1 Comment

Hi - our son is suffering from terrible headaches since his last seizure - - he was just recently diagnosed with epileptic tendencies - we thought his seizures were fevrial until a recent eeg. he...

Created By: dps | 12/2019 | 1 Comment

Hello -

Our three year old has had two episodes in which he goes very limp (no convulsive activity), his eyes roll straight back to the top of his head then his eyes shut, and his breathing...

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