Community Forum

Topic: Parents & Caregivers

Created By: rebecca1975 | 02/2019 | 2 Comments

Hi. I'm new here. We live in MD. My daughter started having absence seizures I don't know exactly how long ago. She reported them while we were at the neuro's for migraines. Had EEG...

Created By: aloha51703 | 02/2019 | 3 Comments

Hello,
My daughter is 9 years old and has ADHD and mild autism. Last week her school called me and said she wasn't acting like herself, was disruptive in class, and was refusing to...

Created By: TinaMG43 | 02/2019 | 4 Comments

Hello,

My son is 16, he had first seizure at school about 3 1/2 weeks ago, he was in cafeteria sitting at table watching his phone and fell to the floor convulsing. He hit his face on floor...

Created By: IWantMyIndependence | 01/2019 | 1 Comment

Hello, I'm new this site but not new to seizures. I grew up with them for more than half my life now.
My question comes from the fact that my mom has recently started talking very...

Created By: epilepsyresearcher1 | 01/2019 | 1 Comment

I'm a researcher looking into ways that apps could be used to improve seizure control in children. I'm looking into a chapter-based game in which you unlock levels based on how well you...

Created By: Mmadison | 01/2019 | 0 Comments

My seven year old has been on depakote for 2 weeks now and I’m not sure I’m liking some of the side effects. If you’ve had a child what were some of the side effects you’ve noticed?

Created By: Hazel_33 | 01/2019 | 2 Comments

Hello, I'm new to this site. But desperately need some advice from someone who understands what in going through. My 14 year old son was just diagnosed with Epilepsy. He had his 2nd seizure...

Created By: NJGiants | 01/2019 | 1 Comment

My daughter was diagnosed with generalized seizure 3 years ago. She had a few grand mal ones. One year ago we were in the car in the driveway. I turned to the back and my daughter was just staring...

Created By: eanderson95 | 01/2019 | 0 Comments

Hello, I am new to this group. I have an 18 year old son who started have tonic clonic seizures when he was 15. He only had them once every couple of months. A year ago he had two different...

Created By: Megdella | 01/2019 | 1 Comment

My 5 year old son was diagnosed a day ago. He’s only had one known seizure and it lasted 15 minutes. My question is this: Since the seizure he’s urinating twice as much as normal if not more. Is...

Created By: Worried Parent | 01/2019 | 6 Comments

First timer - 8 yr old daughter with BCECTS (aka BRE - benign rolandic). Just diagnosed and we have some practical parenting questions. Not sure where to post them to best get answers. one of...

Created By: maylin | 12/2018 | 4 Comments

Hi my 2 months old baby was diagnosed with epilepsy at 5 weeks. She is being in Keppra since then and she is doing fine 0.8ml twice a day she weight 9 pounds. MRI was fine, they are doing a series...

Created By: arp84 | 12/2018 | 0 Comments

Hello! We adopted our daughter at birth, she is now 13 months old. The day after her 1st birthday party she had what we now know was a partial seizure. She started staring to the left, threw up...

Created By: tabitha_tad | 12/2018 | 1 Comment

My daughter has been taking Keppra since January. When she initially began Keppra, and we had our 3 month appt with the neuro, we asked the neuro if Keppra can cause stomach pain in children. She...

Created By: sy5 | 12/2018 | 5 Comments

Hi there! I just joined this forum and was curious if any of you had experience with Keppra? My son had 3 seizures back to back when he was 3 years old and has been on Keppra for 17 months. He...

Created By: poonam_sspm | 11/2018 | 1 Comment

Anybody has an idea about Epilepsy predictor wearable gadgets?

Created By: oliviam.b8 | 11/2018 | 1 Comment

Hi everyone,
I am currently in my junior year of college, attending Lehigh University. I am taking an Entrepreneurship class, and chose to focus my final project on designing a discreet...

Created By: traceyjt67 | 11/2018 | 1 Comment

I was wondering if any other parent/caregiver has been dealing with a child on the autism spectrum who is having aggression associated with their child's seizures. We have hit puberty, and...

Created By: anminer | 11/2018 | 1 Comment

Hello,

I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at straws to find out what is wrong with...

Created By: carriemceachin | 11/2018 | 2 Comments

Topic:
Diagnostic Dilemmas and Testing
Hey everyone. I could really use some advice on what to do for my two-year-old son. It’s a long story, so here we go: a couple months ago my son...

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