Community Forum

Topic: Parents & Caregivers

Created By: Amy_58d46477a2d24 | 05/2019 | 1 Comment

Hi all, my son was diagnosed 9yrs ago and been well controlled for about 5yrs. I have been a mess! I know this is all normal emotions of your child growing, changing and possibly moving away. But...

Created By: Mjovan | 05/2019 | 5 Comments

My 22 month old had a tonic clinic seizure and was hospitalized for 2 days. He tested positive for the cold virus so neuro felt the seizure was a result of the virus. Being aware of what to look...

Created By: MegLane | 05/2019 | 1 Comment

My younger brother, James, (27) had his first grand mal seizure at the age of 18. At the time, I lived at home with him and my mother, I am now age 31. Fear surrounded seizures from the first...

Created By: clh2246 | 04/2019 | 2 Comments

My 6 year old son was just diagnosed with epilepsy. He had a tonic clonic seizure 2.5 years ago. We never saw another seizure until about 2 months ago. He had 3 absence seizures over a two week...

Created By: Ingrid H | 04/2019 | 4 Comments

Hi! I'm new to this and I usually don't go onto forums to share personal things, but I'm at my wit's end. My husband is 32 and never had seizures until a year and a half ago,...

Created By: Chillville13 | 04/2019 | 1 Comment

Does anyone have any recommendations for CBD oil with no THC to treat seizures? My partner is pregnant and has had to go off all their seizure meds but their doctor said a roll on non ingested...

Created By: Amy Kate | 03/2019 | 1 Comment

Looking for friends who share concern about how to transition our still seizing kids into independence. Wondering about some kind of shared housing where family members might rotate in to monitor...

Created By: Mmadison | 03/2019 | 1 Comment

Hello,

We are working w/ my daughters school on a 504 plan for her absence seizures. Pretty much her teacher has never notice them at school (my daughter is not one that requires a lot of...

Created By: Flower Roberts | 03/2019 | 0 Comments

We need input from mothers of children who have children with epilepsy. My daughter has had epilepsy since she was a baby. Now she is 26. We have a blog and are working on a book about her life....

Created By: Sunmama304 | 03/2019 | 3 Comments

My 12 year old son was diagnosed with focal onset aware in December. They put him on Keppra and he didn't handle that well. He was switched to Trileptal and it has made a huge difference. At...

Created By: Loren | 03/2019 | 2 Comments

My 16 month old is on 100 mg of Keppra twice a day plus Vitamin B6 once a day. He started on this right after he turned one year old. He had seizures at birth for 3 days (went home on...

Created By: Kpursell | 03/2019 | 2 Comments

I am looking for help and reassurance. My four year had 2 febrile seizures 2 years apart. The second was different than the so I thought best to get neuro evaluation. After the second seizure I...

Created By: KaylaBlu2019 | 03/2019 | 5 Comments

Hi! This is my first post, and I'm new to learning about Epilepsy (although have done a lot of research). My husband is 31 and just started having seizures on Dec 26, 2018. He had two grand...

Created By: Erinna1 | 02/2019 | 2 Comments

Hi All,

Our 13yo daughter just had her first seizures a couple of days ago. She was admitted to the hospital but couldn't determine what type it was because she didn't have one...

Created By: Kakanik | 02/2019 | 6 Comments

Hello everyone
Thank you inadvance for your help and suggestions. My daughter (8 yr old) started having complex partial seizures 9 months ago. She is on Vimpat (225mgs/day) right now and she...

Created By: rebecca1975 | 02/2019 | 4 Comments

Hi. I'm new here. We live in MD. My daughter started having absence seizures I don't know exactly how long ago. She reported them while we were at the neuro's for migraines. Had EEG...

Created By: aloha51703 | 02/2019 | 3 Comments

Hello,
My daughter is 9 years old and has ADHD and mild autism. Last week her school called me and said she wasn't acting like herself, was disruptive in class, and was refusing to...

Created By: TinaMG43 | 02/2019 | 5 Comments

Hello,

My son is 16, he had first seizure at school about 3 1/2 weeks ago, he was in cafeteria sitting at table watching his phone and fell to the floor convulsing. He hit his face on floor...

Created By: IWantMyIndependence | 01/2019 | 1 Comment

Hello, I'm new this site but not new to seizures. I grew up with them for more than half my life now.
My question comes from the fact that my mom has recently started talking very...

Created By: epilepsyresearcher1 | 01/2019 | 1 Comment

I'm a researcher looking into ways that apps could be used to improve seizure control in children. I'm looking into a chapter-based game in which you unlock levels based on how well you...

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