Community Forum

Topic: Parents & Caregivers

Created By: MartinaDM | 06/2018 | 1 Comment

Hello! I am new to this forum and I am looking to see if anyone has had experience with what we are going through right now. My 3-year-old daughter had grand mal seizure that turned into status...

Created By: amandawright2829 | 06/2018 | 2 Comments

Hi. I'm so new to this and we haven't got a clear diagnosis yet. My 15 month old son goes to the pediatric neurologist on Friday. I just wanted to say what's been going on with him...

Created By: koj624 | 06/2018 | 0 Comments

Hi. I have never been on a forum before. This site was recommended to me by my daughters Neurologist. My husband and I are in our late 60's. Our daughter is 29yrs old and she will...

Created By: Bellasmom725 | 06/2018 | 0 Comments

She has nodules 20 or so from her occipital horn to her temporal lobes on both sides. She has seizures and is on two different seizure medications keppra and oxycarbazine. She is also blind in her...

Created By: akms66 | 06/2018 | 1 Comment

I was wondering if anyone has advice about what they have done to prevent seizures in their child around the time of vaccination?

Created By: Momof2e | 06/2018 | 1 Comment

Hi everyone. This weekend my three year old son had what could only be seen as a seizure in my eyes. He had just fallen asleep when I heard crying in the monitor and a coughing/gurgling noise. I...

Created By: Ewagner410 | 05/2018 | 1 Comment

Hello everyone. My wife and I have a 5 and half year old son who was a 26 week premie. Our son has a VP shunt and unfortunately contracted bacterial meningitis in the hospital when he was 7 weeks...

Created By: nj_mom | 05/2018 | 1 Comment

My 10-year-old son has just been diagnosed with Benign Rolandic Epilepsy. The doctor has put him on a low dose of Keppra and Vitamin B6 at night, unmedicated during the day. We never knew he had...

Created By: Ghamm229 | 05/2018 | 3 Comments

Hello, I’m new to this site as my 5 yr old was recently diagnosed with generalized epilepsy. I’m trying to understand how they diagnosis cane about and whether I should start her on meds or not as...

Created By: wmyatt | 04/2018 | 2 Comments

Hi, I am the parent of an autistic 15 year old that has seizures that result in very scary violent episodes. He is well over 300lbs due to meds. What will happen is suddenly out of nowhere (it...

Created By: Daizebra | 04/2018 | 3 Comments

Hello! I have never posted on one of these before but I need some advice. My son has been taking Keppra since March 17th( so about 6 weeks). He has 1.2mL twice a day. When he first started to...

Created By: Starr83 | 04/2018 | 2 Comments

Good Morning,
I’m hoping someone can help me here. Last week, my daughter had an eeg done because she’s been having slight twitching in her sleep at night. The nurse called me the day after...

Created By: VictoriasMommy28 | 04/2018 | 5 Comments

My daughter is 3 years old and just got diagnosed with Epilepsy.. she started having seizures Sunday, got diagnosed Monday night and has been having them ever since. It came on so sudden, and...

Created By: shylienicole | 04/2018 | 2 Comments

No idea what forum to post this in but maybe parents are best source. I am wondering if there is anything like Big Sisters out there specific to youth with epilepsy?I have it too and I think I...

Created By: Lwid510 | 04/2018 | 0 Comments

Hi all I’ve written on here a few times, my son has what is believed nocturnal seizures. He is on a Trokendi XR. The dr raised his meds back in January and for 2 months no bed wetting. Last week...

Created By: Sassy_5acd8fec0f380 | 04/2018 | 3 Comments

Our 27yr old daughter moved back home in the process of starting over when she had her first ever GM seizure, loss of conscience for 30+ minutes, EMT's, ER Dr all asked about drugs - blood...

Created By: Melanieyaz | 04/2018 | 3 Comments

Hello,
My son has very recently been diagnosed with epilepsy. 2 weeks ago he had a seizure in his room and fell and broke his 2 front teeth. I am so worried that I have even been making him...

Created By: BabiChar2 | 04/2018 | 2 Comments

Hi everyone, my baby was diagnosed with seizures when she was about 6 weeks old and she is current 3 months that is still having about 4 seizures a day. The doctors have put her on the max she...

Created By: Annakee | 04/2018 | 1 Comment

My daughter got siezures at 5 months old. She had about 32 to 38 in a 24 hour period. She was put on keppra and phenobarbital she stopped having seizures so they slowly took her off the meds. By...

Created By: nicki604 | 04/2018 | 2 Comments

So I have this question to everyone. My daughter had a dentist appointment checkup this morning for her cleaning and the roads were awful by us. Well they did her cleaning and then the dentist...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline