Hi, I'm Bek :)

Have they gotten anything on EEG or imaging, and what kinds of EEGs have you done? Meds are usually started low and increased over time and can be increased to very high doses to determine if it doesn't work. Were all your meds weaned after they determined they were not working (and how did that go really) or were the stopped for other issues? Have you consulted an epileptologist for an x-th opinion? Most seizure types are not convulsive, btw.

Most seizures are not convulsive. You could be having seizures now and not know it. The doctor to treat and medicate for seizure control would be an epileptologist (neurologist that specializes in epilepsy).Your general doctor would refer you to a neurologist. Cardiologists work on heart issues. Seizure medications are not like aspirin where once taken it is gone after a few hours. They are generally started at a lower dose then needed. It takes about 4 weeks for the medication to build up to the therapeutic levels the neurologist wants. Then it takes at least 3-4 weeks to see if it is reducing the number of seizures and adjustments to the dosage need to be made. Changes to medications are generally not done until they have raised the dosage a few times and have seen that there has been no reduction in the number of seizures you were having.Did any of th doctors run tests? The main test that are done is an EEG and a MRI. One is a brain wave test which shows the electrical activity in your brain. The other shows the brain and what may be on it. The EEG shows the electrical activity and if it is normal. The neurologists will look for abnormalities such as waves, spikes, epileptiform or seizure activity. If any are seen the neurologists will know where they came from. It will also help with a diagnosis of the type of epilepsy you may have. The neurologists will try and find anything on your MRI that is not normal. Things like tumor, cells that grew wrong and other things that might cause an electrical impulse to hit wrong. I have scar tissue in the left lobes of my brain which was caused by a concussion. Short EEG's can come back normal. I had about 20 do that. In a longer one in which I fell asleep in they found the seizure activity. Seizure activity is not a seizure itself. It is an abnormality that causes an electrical impulse to hit wrong in the brain. That wrong hit can cause a chain reaction which would be the seizure.