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Help, can I stil have seizures with normal EEG
Mon, 07/20/2009 - 09:29So before I had my 72 hr EEG, my doctor said it could come back normal and I could still have complex partial seizures, so of course I was hopeful it would come back abnormal but it didnt. I'm supposed to see Dr later this week but am worried he will change his mind about me having seizures. Can I still have normal eeg and have seizures? If he changes him mind, what should I do.
Thanks
Comments
Re: Help, can I stil have seizures with normal EEG
Submitted by phylisfjohnson on Mon, 2010-04-12 - 11:40
I know of people who have had 5 EEGs, only to be finally diagnosed when they had other testing. EEGs are not the be all and end all of testing. And often seizure activity doesn't show up on EEGs, because it's happening too deep in your brain. Here's a comprehensive list of other tests you might want to try... http://my.epilepsy.com/discussion/988891
Good luck. You've got lots of company! Phylis Feiner Johnson www.epilepsytalk.com
I know of people who have had 5 EEGs, only to be finally diagnosed when they had other testing. EEGs are not the be all and end all of testing. And often seizure activity doesn't show up on EEGs, because it's happening too deep in your brain. Here's a comprehensive list of other tests you might want to try... http://my.epilepsy.com/discussion/988891
Good luck. You've got lots of company! Phylis Feiner Johnson www.epilepsytalk.com
Re: Help, can I stil have seizures with normal EEG
Submitted by ahardway on Mon, 2009-07-20 - 13:54
Hi Galaxymel,
I started having seizures 4 years ago 'out of the blue' right after I turned 24 (Im 27 now). From the day i was born my mother thought that i had some type of neurological problem because she said that I did this thing she called "tying up" where I would put my hands between my legs and pressmey legs together. She had all kinds of EEGs and all that on up until I got into kindergarten and nothing was found The docs. told her that I was just masterbating. It was not until August 2005 that I want into my first ever extremly violent Grand mal seizure. Immediatly, the docs. started to do several MRI's and EEG's but like you, nothing was found. In my case, I had to be put in the Epilepsy Monitoring Unit at my local hospital where they had to induct a seizure to record one while it was happening. Once they took me complelty off of my meds. I had a very small seizure where I showed no visual sighns. It was only the actual head gear that found out where my seizures were coming from, which ended up being my Left Temporal Lobe. I was then that I was considered for surgery since I was on such extremely high doses of my meds and they were not hepling out. Also, it turned out that my seizures were the hormonal type that most women have right before they have thier monthly periods due to the changes in thier female hormones. Have faith in your docs. as they try thier best to find out where,if any, your seizures are coming from. Like me, they might just have to see your brain on the computer while you are having one. I hope things work out for you and God Bless.
Hi Galaxymel,
I started having seizures 4 years ago 'out of the blue' right after I turned 24 (Im 27 now). From the day i was born my mother thought that i had some type of neurological problem because she said that I did this thing she called "tying up" where I would put my hands between my legs and pressmey legs together. She had all kinds of EEGs and all that on up until I got into kindergarten and nothing was found The docs. told her that I was just masterbating. It was not until August 2005 that I want into my first ever extremly violent Grand mal seizure. Immediatly, the docs. started to do several MRI's and EEG's but like you, nothing was found. In my case, I had to be put in the Epilepsy Monitoring Unit at my local hospital where they had to induct a seizure to record one while it was happening. Once they took me complelty off of my meds. I had a very small seizure where I showed no visual sighns. It was only the actual head gear that found out where my seizures were coming from, which ended up being my Left Temporal Lobe. I was then that I was considered for surgery since I was on such extremely high doses of my meds and they were not hepling out. Also, it turned out that my seizures were the hormonal type that most women have right before they have thier monthly periods due to the changes in thier female hormones. Have faith in your docs. as they try thier best to find out where,if any, your seizures are coming from. Like me, they might just have to see your brain on the computer while you are having one. I hope things work out for you and God Bless.
Re: Help, can I stil have seizures with normal EEG
Submitted by LIZARD66 on Mon, 2009-07-20 - 12:01
Absolutely. I had a completely clean 24 hour EEG and proceeded to have SIX GMs over the next 2 years. Granted, I was desperately trying to get help for my son, who was later dx'ed with autism.
EEGs are NOT fool-proof, even the extended monitoring. They just give an idea of the likelihood of sz occurrence.
Good luck!
LIZARD :)
Absolutely. I had a completely clean 24 hour EEG and proceeded to have SIX GMs over the next 2 years. Granted, I was desperately trying to get help for my son, who was later dx'ed with autism.
EEGs are NOT fool-proof, even the extended monitoring. They just give an idea of the likelihood of sz occurrence.
Good luck!
LIZARD :)