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Community Forum

Topic: New to Epilepsy.com

Created By: kelnew722 | 06/2020 | 1 Comment

please help me, I truly believe I am having seizures in my sleep.
for the past year I have been having similar episodes exclusively during sleep.
I usually know when an episode is...

Created By: Ge0192 | 06/2020 | 3 Comments

Did anybody heard about pseudoseizures? I m thinking i m.having.them because i haven t heard anybody to have seizures.like me. I m also a.nurse.and i did t saw any patients with seizures like.me....

Created By: SMagness | 06/2020 | 1 Comment

In the wee hours of the morning as I was dreaming, my head began to shake uncontrollably at that point, I thought I woke, and was trying to wake my husband for help... my body began shaking...

Created By: nh202005 | 05/2020 | 0 Comments

Hello

Has anyone under 50 experienced this? I've just been suspected of having it (background idiopathic generalised seizure). I'm only 32 and typically it seems to happen to...

Created By: ktee | 05/2020 | 0 Comments

Hello everybody

I'm catherine; a French girl and I'm happy I found this website to share with you my experiences.
I'm gonna start a discussion into the seizure adult...

Created By: Torilyn356 | 05/2020 | 4 Comments

Hello everyone! I'm new here and am super thankful for this resource. I 'm 24 and I had my first episode about 3 months ago, and I've had one each month since then. The first one...

Created By: MrsJJF | 05/2020 | 2 Comments

I am new to support groups in general; this one, in particular. My post concerns my sister who expereinced a horrific accident 35 years ago and began having mild seizures afterward. She was very...

Created By: quida1017 | 05/2020 | 5 Comments

Hi! My name is LaQuida and I'm new to the site and community.

Created By: Clyde_5ead2444cd3b4 | 05/2020 | 3 Comments

Hi everyone, I’d just like to introduce myself first. My name is Samantha and I’m 17. Up until recently I’d never really had an issue with my health. But then things started to change, it all...

Created By: Melanie Tapia | 04/2020 | 2 Comments

For the past 9 months my life has been turned upside down that I have never been through before. My first “episode” , as some drs have told me, was July 24th. It was a feeling I have never felt,...

Created By: Wanderlusting45 | 04/2020 | 1 Comment

Hi, I’m new here & I was really hoping for other opinions that know/experience more of what I’m talking about. I’m 38/F & in Feb 2019, I was out to dinner with friends when I was...

Created By: Brioneb06 | 04/2020 | 1 Comment

Hi. New to here. Finally coming to terms with my diagnosis. Taken since November and went through a very down period from being in denial. I am struggling with being reliant on everything -...

Created By: manuamit78 | 04/2020 | 2 Comments

Hello All,
I'm father of a 12 year old, my daughter got her first seizure on Feb 11th, we got EEG and MRI done. MRI was normal but EEG was Abnormal. Then she got her second seizure on...

Created By: Sessaro | 04/2020 | 4 Comments

Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before. My seizures are controlled by Lamictal

Created By: theweez | 04/2020 | 1 Comment

On 12/17/2018 I had a random seizure sitting at my desk at work. All the tests came up with nothing (thankfully, I guess). Things were going along swimmingly until midnight last Monday when I had...

Created By: Jclancy83 | 04/2020 | 2 Comments

Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before. My seizures are controlled by Lamictal and...

Created By: FlyBuoyDad | 03/2020 | 9 Comments

My 18 year daughter was diagnosed with Mesial Temporal Lobe Epilepsy perhaps five years ago. She is extremely fortunate in that she only ever experienced "simple partial seizures", now...

Created By: Nikster | 03/2020 | 2 Comments

Hi All, I am 30 years old and have recently had a seizure for the first time. I was about 20 weeks pregnant at the time and it occurred in my sleep. I felt absolutely horrendous and exhausted for...

Created By: Dean_au | 03/2020 | 5 Comments

Dilantin/Phenytoin side effects
Hi I've been using Dilantin for about 3 years now since turning 40 as Dilantin is rarely given to younger people in Australia. Ive found Dilantin to be...

Created By: jills | 02/2020 | 2 Comments

I am looking for some advice/guidance. I have an 11 year old son that during the summer had an incident that the neurologist believes was a seizure (he had 2 back to back). He had an MRI which...

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