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Community Forum

Topic: My Epilepsy Diary

Created By: Glenn4881 | 04/2020 | 1 Comment

Looking for some feedback...

I am 39 years old this week, I have been on Depakote 500mg ER twice a days for years.

I had my first seizure back when I was about 9 years old. The...

Created By: Tori2Tall | 04/2020 | 2 Comments

Hi, I am 23 years old and I have had epilepsy for 11 years and am on 200mg Lamictal a day. I used to have seizures where I would pass out but now I would normally have seizures where I feel sick,...

Created By: TMorners | 12/2019 | 2 Comments

I had my most recent seizure almost a week ago and physically I feel fine but mentally I’m so depressed like I can’t even daydream anymore, is this still my brain recovering? I was 13month seizure...

Created By: Madud | 10/2019 | 1 Comment

Hi
Very confused I have a so who's 21 years old he had his first seizure nearly eight years ago and since then he was put on Sodium Valproate which was well controlling his condition....

Created By: jad.lebanon | 02/2019 | 2 Comments

hi all,
i would like to share my story with you maybe I'll find some matches to mine.
i was diagnosed with epilepsy at the age of 8 years old and started medication until the age...

Created By: jfull15 | 02/2019 | 0 Comments

Hello all,

I'm reaching out to anyone who has had the same or similar experience as me. I've been diagnosed with Temporal Lobe Epilepsy (TLE) for the past 5 years. I've had...

Created By: Terahlashae | 12/2018 | 1 Comment

I have had seizures since I was 14, I am 22 now and I just found out that something is unbalanced either my brain, heart or kidney. Seizures are serious and deadly. It’s VERY dangerous for me to...

Created By: marcyinkandstylist | 11/2018 | 2 Comments

After a tonic clonic seizure I feel terrified, like the worst panic attack you could imagine, it starts as soon as I come out of it, the first thing that is clear to me is that I'm terrified...

Created By: Sara1989 | 10/2018 | 0 Comments

I don't know how to ask this question but hopefully someone understands this question. So I take Vimpat 50mg 2x a day. I notice that when I take 1st dosage in the morning and I wait long...

Created By: its_roxx | 10/2018 | 0 Comments

Hey! So I'm 26 years old and I started out with seizures when I was 14...had my 1st convulsion at the age of 18...I've been sent to two different neurologists (now seeing a new one) and...

Created By: Sara1989 | 10/2018 | 2 Comments

Hi! MY name is Sara I am 29 years old and I have seizures. I have been dealing with seizures for 7 years now. I just recently started getting them treated. What made me cave in and seek help was,...

Created By: beth.pantelidis | 08/2018 | 6 Comments

hey guys ! i just wanted to ask a question to see if anyone can help me or knows the answer to this . so i’m 16 and go to parties a lot . i have mild epilepsy which is absense seizures and i’ve...

Created By: adiegadwa17 | 07/2018 | 1 Comment

My 18 month old has been struggling with absent seizures since the age of 4 months old. He started Keppra and trileptal in august of 2017. he has been very agitated with keppra they made...

Created By: CodieO | 06/2018 | 0 Comments

This is quite a long story and I advise those who are losing hope to read this story. I was diagnosed with Epilepsy when I was in fourth grade and am now 21 years old. I remember that day so...

Created By: Shelly_58d83c9deecce | 05/2018 | 0 Comments

my parents think & say every time I have a seizure they think I force to have a seizure to get attention & I haven't see or hear from my parents since 1990 they treat me like...

Created By: daviesduzit | 02/2018 | 0 Comments

On Saturday, August 29th 2015, Anthony "Superman AJ" , suffered a seizure while bathing, he was rescued by his little brother and given CPR by mom until the arrival of City of Sunrise...

Created By: ElianaLM | 11/2017 | 1 Comment

hi! i'm Eliana I've had Epi for a year, I honestly need some friends to talk to i've been alone in this whole prosses (Except my family): But my cousin has Epi but he never talks to...

Created By: Petitelexxi19 | 10/2017 | 1 Comment

Due to a closed head injury when I was 3 (fell off a swing set and hit my head on brick wall) I began having epilepsy. I took medicine and had seizures from 3-5. From 9 years old to 19 I have...

Created By: soccer42 | 09/2017 | 2 Comments

hey there. So I was diagnosed with epilepsy when I was 15 after having 3 seizures that put me in the hospital my whole life. I have been doing the whole eye flutter thing since I was 3 years old...

Created By: Dianarlove19 | 09/2017 | 2 Comments

Hi, my name is diana. I was diagnosed with focal or partial seizure this July. I am 24 years old. I'm new to all this. So my question is, i feel as the medication has worsen my condition...

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