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In memory of Kaycie Griffith 12/15/89 06/08/17

Fri, 06/30/2017 - 10:18
The first time I ever heard of SUDEP was when the Medical Examiner informed me that SUDEP is the cause of my daughters death on June 10th, 2017. That is unacceptable! !!

Comments

Hi, We're sorry to hear that

Submitted by tbuckley on Thu, 2017-07-20 - 16:42
Hi, We're sorry to hear that you weren't informed about SUDEP. If you like, please contact the Epilepsy & Seizures Helpline at 1-800-332-1000. We offer information on SUDEP and can connect you with a bereavement support person to try and help during this difficult time.

same thing with me. My son

Submitted by Artichokeforest on Tue, 2018-12-11 - 10:25
same thing with me. My son had two seizure , then was seizure free for 5 months, then I woke up to find he was gone....

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