A group to honor the memory of those we have lost due to epilepsy and a place to support those who are grieving.
Chat and Community Forums Closed
Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.
A group to honor the memory of those we have lost due to epilepsy and a place to support those who are grieving.
My beloved and best friend Rachel and I, met here on Epilepsy.com in the chat room around March of 2006 when we were both in college. From what I remember, the chat room was sort of a new feature...
The first time I ever heard of SUDEP was when the Medical Examiner informed me that SUDEP is the cause of my daughters death on June 10th, 2017. That is unacceptable! !!
I am entering this in memorium for my cousin, Andrew Vasek. Andrew was 21 years old and a picture of perfect health in September of 2014 when his mom, Nancy, heard the shower run late one night....
I recently learned of the passing of Susan Nardi from our epilepsy.com community. Many of you may remember her from our early chat rooms - she was a friend and supporter to so many, as she had...
If you have lost a loved one to epilepsy, the SUDEP Institute is here to support you.
Our services for families include:
Some of you might remember me as "Kayakmom" or Mrslinkgetter from the old forums. My son is Sam and he had epilepsy, depression, and schizophrenia. He lost his battle on May 1, 2011. I do not say...
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
