Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

A group to honor the memory of those we have lost due to epilepsy and a place to support those who are grieving.

Topic: In Memoriam

Created By: Kg5dww | 04/2019 | 1 Comment

My beloved and best friend Rachel and I, met here on in the chat room around March of 2006 when we were both in college. From what I remember, the chat room was sort of a new feature...

Created By: Kaycie'sMom | 06/2017 | 2 Comments

The first time I ever heard of SUDEP was when the Medical Examiner informed me that SUDEP is the cause of my daughters death on June 10th, 2017. That is unacceptable! !!

Created By: Robert Baxter | 10/2016 | 1 Comment

I am entering this in memorium for my cousin, Andrew Vasek. Andrew was 21 years old and a picture of perfect health in September of 2014 when his mom, Nancy, heard the shower run late one night....

Created By: epihelp | 12/2014 | 0 Comments

I recently learned of the passing of Susan Nardi from our community. Many of you may remember her from our early chat rooms - she was a friend and supporter to so many, as she had...

Created By: SUDEP_Institute | 11/2014 | 0 Comments

If you have lost a loved one to epilepsy, the SUDEP Institute is here to support you.

Our services for families include:

  • Accurate information regarding SUDEP and other causes...
Created By: guitarmomma | 10/2014 | 6 Comments

Some of you might remember me as "Kayakmom" or Mrslinkgetter from the old forums. My son is Sam and he had epilepsy, depression, and schizophrenia. He lost his battle on May 1, 2011. I do not say...

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