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Community Forum

Topic: Medication Issues

Created By: ali826 | 07/2019 | 2 Comments

This is by far the worst medication I have ever taken, period. Topamax has stolen three years from my life, and has affected me with aphasia, and long+short term memory loss. I stopped taking it...

Created By: ephyk | 07/2019 | 1 Comment

I've been taking lamictal for about 7 years now, and my doc finally agreed to let me try weaning off. I tried every seizure drug over the years, but they were never under control until I had...

Created By: dawall039 | 07/2019 | 3 Comments

Hello,

My Dr. recently recommended I try using fycompa on top of my other 4 medications. I went seizure free for 5 years but have been uncontrolled for 8 months now. Has anyone tried...

Created By: Cynergie | 07/2019 | 2 Comments

Hi I'm wondering if anyone else has had issues with Topamax as I have. My heart rate has gone as high as 250 beats per minute and I'm just sitting and relaxing. It is really scary. I can...

Created By: Dahlvn | 07/2019 | 0 Comments

The person I'm caring for is on divalproex sprinkles and every time I change a bowel movement, I notice what looks like the sprinkles in the stool. It is NOT from the diaper. Is the...

Created By: margitg | 07/2019 | 9 Comments

Terrible side effects for us and we didn't reported to the drug company. Our neurologists said it is normal not functioning well on keppra. My daughter couldn't finish summer school...

Created By: gracebays | 06/2019 | 1 Comment

Anyone else have a genetic cause for epilepsy? We've recently found out our son, 8 months old, has a single letter mutation at the GABRB3 gene. Looking for others with the same or similar...

Created By: azul527 | 06/2019 | 1 Comment

I have been 400 (200 and 200) of Lacosamide, but I don't find it effective to trear my absence seizures. I decided to change to Valproic acid.. what is the best way to do it? Is Valproic a...

Created By: azul527 | 06/2019 | 6 Comments

I only have 10 minutes every 5 months to talk with a neurologist that seems to be operating a machine, so I decided to come here, you may help me and beforehand I say THANKS.
To...

Created By: griselh | 06/2019 | 1 Comment

So My 3.5 year old is taking 1.5ml of Keppra & I want to know how much CBD oil she can take! she is 33lbs & is 37in tall & her BMI is 16.9%

Created By: carad22 | 06/2019 | 1 Comment

Hi I am a 29 year old female, I am currently taking 200mg of Topomax and 200mg of Lamictal morning and night for my Juvenille Myclonic Seizures and Partial Siezures. We are trying to have a child...

Created By: kring1970 | 06/2019 | 0 Comments
Created By: ackmke | 06/2019 | 2 Comments

I have partial aware focal seizures, and I have not responded to all of the traditional AED drugs. I was diagnosed with Temporal Lobe Epilepsy in 2017 when I was 27

Anyways, my doctor...

Created By: Etomite | 06/2019 | 2 Comments

Our son was born prematurely 3 weeks ago(35 weeks). In nicu, he started having seizures and they gave him keppra. He did not have any seizures for more than 10 days. They still give him keppra and...

Created By: moslo1 | 06/2019 | 2 Comments

My nephew was diagnosed with Epilepsy about a year ago. The trouble is he also has ADD, which means he has all the best intentions of taking his medicine when it's time, but is easily...

Created By: Bverringer | 06/2019 | 2 Comments

Hi all,
A brief history before getting into my issue. I was diagnosed with idiopathic epilepsy in october of 2017, started out on sodium valproate but that was unsuccessful so I was put on...

Created By: Chrisma85 | 06/2019 | 2 Comments

Yes I am writing this to you today as being toxic on dilantin I am sorry if thing are misspelled. A week ago I was taken to the er for a seizure via ambulance. At the er they did blood work and...

Created By: Trabs00 | 05/2019 | 3 Comments

Hi there, first time poster, I'm recent to the seizure club, due to an oligodendroglioma.
Currently on Vimpat 200mg 2x d and lamotrigine 100 mg 2x d. I'm still titrating up the...

Created By: MasonsMommie | 05/2019 | 1 Comment

We have changed insurances, the new insurance doesn't cover Vimpat. I am trying to get patient assistance, but am having problems since he is not 4. Does anyone have any advice on how to get...

Created By: Elliot87 | 05/2019 | 2 Comments

Anyone experience angioedema (face,lips, tongue, throat, eye swelling) on Keppra? Did it resolve on a different medication?

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