Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Zonegran (Zonisamide)

Tue, 12/10/2019 - 17:32
Hi, I would like to know for your own experience if you experience the following side effects from taking Zonismide. Thank you. 1. Less sweat/heat stroke. 2. Osteoporosis. 3. Behavioral problem. 4. Kidney stone. Thank you again.

Comments

Hi, Thank you for posting.

Submitted by Anonymous on Wed, 2019-12-11 - 09:40
Hi, Thank you for posting. Treatment and how your body may react to certain medications varies for each individual. It’s important that you’re following- up with your healthcare team to determine what individual treatment plan is best for you and if you experience any changes side effects, symptoms, seizure types, frequency and behaviors.The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. To learn more about medications you take and things to looks for, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsIt may be helpful to keep a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, setting reminders, recording medical history, moods, behaviors, triggers,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

I've been on Zonisamide for a

Submitted by Jim Clayton on Tue, 2020-01-14 - 10:23
I've been on Zonisamide for a few years now.  I hardly notice any side effects.  Honestly I hardly notice any effects of the medication because I'm also taking Felbamate.  If I miss that I'll for certain have a grand mal.  But Zonisamide is more of a support medication, at least in my situation.  But in regards to side effects, I haven't noticed any of what you're referring to.

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