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Onfi/Clobazam cuttiing assistance program.
Mon, 02/19/2018 - 08:35Topic: Medication Issues
I have been on Onfi/Clobazam for nearly 10 years and its one of my 3 medications that does the trick in keeping me nearly sizure free. They just cut the assistance program for 2018. Medicare will not let me enroll in Part D (i never needed it bf bc they didn't cover my meds years ago) bc I am past the enrollment period AND apparently they don't care this is a life maintaining medication. I also make too much to be on medicaid. Clobazam will cost approx 3k/mo. Has ANYONE run into this problem and what are you doing about it? (FYI.. I can get "Frisium" overseas for about $180/mo..but thats risky).
I recently found a website
Submitted by KimberlyAnn on Tue, 2018-02-20 - 10:15
I recently found a website that shows many assistance programs you can look at it and see if it may help you at all https://www.epilepsynewengland.org/pap I hope it can be of some help to you and anyone else that needs it at all.