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no meds for refractory seizures
Tue, 03/17/2020 - 01:17Topic: Medication Issues
I have left hippocampal sclerosis ( atrophy)
Massive white matter frontal lobe lesions,
Cluster seizures , aphasia, TBI and seizure disorder.
I was recently cut off all my medication by veterans affairs in anchorage alaska who is now claiming all my. Medical neurological conditions are now factitious .
I cannot help talking to my self , having seizures. All the time now
I was percriped
Klonopin
Nuerotin
Gabepintin
Depokote
Hi. I am a service-disabled
Submitted by Patriotrehab on Tue, 2020-03-17 - 02:00
Hi. I am a service-disabled veteran with epilepsy. I’ve had some neurologists suspect that my seizures were not neurological because they were difficult to control and I know other veterans who have been treated like you have been. It’s hard when you are in the VA system. If it weren’t for my record keeping and the recent video EEG monitoring that showed that I do have epilepsy along with the original video EEG from when I was in the military and a number of routine EEG reports that showed abnormalities that I still had access to, I would have a diagnosis of psychogenic non epileptic seizures (PNES) because that’s more convenient for doctors to say when medications don’t work. I don’t know what testing you’ve been through or records are available to you, but if you are interested I can guide you on how to get all of your original records through a privacy act request and make some recommendations on how to get some advocacy to help you at the VA to get some further testing to be sure that you are getting the proper treatment. Let me know if you’re interested.