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New Strange Vision Problems Lamotrigine

Sun, 02/09/2020 - 20:49
Hi, I was just diagnosed with focal impaired seizures in the temporal lobe after three years of misdiagnosis. I started taking Lamotrigine about a month and a half and have been slowly increasing my dose every other week. I am currently up to 75mg twice a day, and it started out great. I didn’t have any seizures which was a dramatic change. Around a week ago I had a seizure in the afternoon which was a normal focal seizure, I then had another one a few hours later, which is not untypical for me. However, after this second one something really weird happened with my vision. Immediately after, the vision out of my right eye had a reddish tint and my left eye had a blue tint. It wasn’t a dramatic change in color, but it was enough for me to notice. It only lasted a few minutes. The next day the same thing happened again and I came down with the flu. I talked to my neurologist and he said that it could be something new with the seizure, could be a side effect of the lamotrigine or unrelated vision problem. The next week I had the same thing happen twice but without the typical focal seizure before and one of them lasted for ten minutes. Has anyone else experienced something similar to this? I have also been having weird symptoms the past week or so, I suspect these as side effects. I’ve been waking up with mildly bloodshot eyes and headaches, I’ve also been having a lot of nightmares. Thanks for the feedback!

Comments

Hi, Thank you for posting.

Submitted by Anonymous on Mon, 2020-02-10 - 09:26
Hi, Thank you for posting. Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy Treatment and how the body may react to certain medications varies for each individual.To learn more about Lamotrigine and things to look for, visit: https://www.epilepsy.com/medications/lamotrigine As your doctor mentioned, this change in vision you describe experiencing may be related to a number of things. It’s important that you continue to address this with your neurologist and if you continue to experience any changes in seizure types/frequency, side effects, symptoms, moods, or behaviors to help determine what individual treatment plan is best for you. Documenting your experience in detail (like you’ve done in your post), will be very helpful to review with your healthcare team and to help detect potential patterns with your seizures or symptoms.My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking and identify seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect wellness and seizures, which can be shared with your neurologist.Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline   Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , find support groups, events, and programs in your community. 

As I was being tapered up on

Submitted by amdad86 on Tue, 2020-02-11 - 14:54
As I was being tapered up on lamictal, I started having double vision.  By 500mg, It was so bad I couldnt drive.  This can happen in 5% of people.  But my neurologist said it wasnt from Rx, even though it went away when I lowered my dose to 300.  I started having multiple mild (petit-mal temporal) seizures again so I increased to 400mg.  It has been two days and my vision is so bad, I’m afraid to ski.  I’ve skied with multiple broken bones and two seasons of rotator tears and I skied through all of it.  Pain? Fine.  Double vision?  Afraid.  I’m waiting for a call back from the neurologist.  Anyone want to bet he says it’s not the Rx?  After being told for two years that I was having pseudo (not real seizures) they finally found that I was indeed epileptic.  Are they now saying I’m aving pseudo-double vision?

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