medication in babies and understanding epilepsy better

my son just about turned one now, hes complex in diagnosis terms. but im meant to medicate him (what i think) is quite too much to do anything but maybe that new american rap trend. daily he recieves about 7mg phenobarbital (orion solution which contains alcohol, noteworthy but maybe not substantial), 240mg of Leviteracetam (kepra as people call it) appporx. 1.75mg clonazepam (rivotril) and 25mg of topamax. being someone who has used benzodiazepam both theraputically and recreationally, along with many other things, i know mixing pharma drugs can be debilitating. and after reading and better understanding his medicines.. 1- topamax is a great mixer for a sedative effect, especially when in presence of benzos or alcohol (hence the noting of the elixir earlier) 2- keppra and topamax are very similar in what they do to counteract seizures, everyone else ive spoken to has had one or the other 3- phenobarb (apart from it being a barbituate, and currently with alcoholic content) has been not in conversation so i can only guess from the net, but in pill form i would think its more effective (side effects of topamax and keppra sound horrible so i have personal bias probably 4-clonazepam actuallly, unfortunately i can visually see work very well, i think hell need it for life and it solidifies the facts of youth wanting to abuse such dangerous drugs to give it the red flag. heres my "gun ho" hypothesis, since the doctors hardly want to weigh in. this kid would sleep 24/7 if you dont wake him often mind you. weaning of topamax(2 week program, regressing gradually and taking note of any unusual behaviours) weaning of that keppra, he got a bad go and he wont live long regardless of the situation, if he can survive off it id prefer him not dealing with those side effects and depression the phenobarb im leaving, purely as i think its a aggressive but effective drug with minimal side effects (barring the withdrawl from barbituates, but he wont need to worry of that. clonazepam is a definite stay, i take valium and used to take xanax (plus what i could reach when i was young, serapax, clonaz, even midazolam) that was my bad but i need it now, it slows brain activity in the way that encourages thought processing, and properly used can (personal opinion) get you over that 'hump' whether it be anxiety, abnormal brain activity...etc. and promotes motivation, calm and somewhat collected. basically, if he could id choose none. but if bare minimum...clonazepam approx 0.1ml/kg and phenobarb in the pill form in whatever least dose he can suffice comfortably. his short life may be addled with barbituates and benzos, but at least he may achieve something without being so damn sedated.(hes learning to feed on solids and bottles only recently, against doctors orders. they recommend 100% nasogastric feeding and medication) im sick of listening to these people who arent seeing the bigger picture or wanting to understand it better. to the point of taking the ng tube out and (with luck) not require re-insertion until his next doctor appointment (maybe then theyll give half a fuck) i know everyones different, but any info helps....please let me know if i should be more vigilant and take control of this myself in the most sensible way possible, or do some people just need almost every accountable anti-epileptic drug thats available? Also, comments relating to detriments of barbituates and/or benzodiazepenes on the basis of pharmaceutical abuse/addiction can kindly not be supplied. this is about serious problems in a brain which these drugs ARE manufactured to alter benefically more than harm. hes not a teenager smashing a few mgs of it for a party. any experiences related to phenobarbital are greatly appreciated. other than the pharmokinetics of it ive had no insight into this as a treatment and very curious. i feel like hes unwillingly held back and as a single parent with another child i feel as helpless as my past struggles over addictions. other than doctors this is my hypothetical final cry for help. i hope someone can give an insight somewhat...even negative feedback is still information. i cant sleep without valium(doctor is worried about xanax for me as i may sound suicidal or something ridiculous, which makes it harder. the half life of xanax is more productive, whilst hes dosing me anti depressants and diazepam to 'ease my depression'. i have anxiety and cant sleep for obvious reasons, but i undeerstand his point of view. somewhat) im not delusional, im not suicidal, and as far as intelligence i have enough to be above considered above aptitude (also always fascinated by chemistry, and dabbled somewhat in a plethora of fields...not saying im a chemist or a doctor. but im not blindly running into this by any means. i just want to see my son at least smile...or react at all. also, taboo subject ive pondered is whether CBD oil (cannabis extract made professionally for pharmaceutical purposes) be viable, because if so, isnt it obviosly the least harmful and potentially beneficial? theres too many random miracle stories to not have it as food for thought in this field. sorry for the monologue, and thank you if you cared enough to reach the end. bless you for feedback.